Anyone with MS suffer from heat related fatigue?
817976
Fatigue is one of the symptoms of MS, and your not alone in feeling fatigued when in the sun. \n\nDo you keep up your fluids when out side? As a lack of fluids would certainly increase your fatigue levels, also do you apply a sunscreen?\n\nI worked with a lady who had has MS, she would also would become fatigued when very hot, she would also try to avoid being in the sun, as much as possible, partly because of the fatigue, and the sun exposure (she would not feel her skin burning). \n\nI would put her into bed for a rest about 2pm and take her back out about 5pm. I would leave 3 bottles of water for her each afternoon, and would have to replenish them when I returned to make her tea.\n\nTake care
118404
I am a nurse also.  MS is an autoimmune disease.  Being compromised, if you never had chicken pox or can't remember having them, I would stay away from someone with shingles.  If you can't stay away, do not use their sheets, or towels.  Their clothing,sheets, and towels must be kept separate from everyone elses, especially the one who has MS.
190603
Question: As a child did you ever run a really high temp? My brother ran a sudden high fever(cause never found, of 105 and soaring)that nearly killed him. He was wrapped in towels and buried in a tub of ice to bring the fever down. But while waiting on the ice to be brought he was bathed from head to toe in rubbing alchol. At that time the doctor did the only things he knew to do. The fever came down but my brothers normal temp of 98.6 was changed to 96.0. So a temp of 99.0 is not low grade fever anymore; at least not for him.  Are you under great amounts of stress? Stress can do wild things to your body. Under tremendos stress  the muscles literally separated from the bones in my chest area. Doctor's at first thought it was a heart attack but my pulse did not indicate such to be the case. I felt as if a huge weight had been droped on my chest, but it was stress. Vicatin would not even allow my body any relief, and the doctors had said if it didn't help that morphine was the next step.Fianlly, after several months of just letting nature run its course; I finally stopped hollering with every breath. I would shake like I was in a ice house on min. and feel normal the next; but my temp. was up and down like a yoyo. Do you have any other symptoms, coughing, sneezing,dizzy spells, black outs, nausea? Have you been to a doctor yet? If not; I strongly reccommend you go see one immediately. Keep in mind not all diseases or illness's cause the same reaction in a person. You can take 50 people with the flu. Some it turns into more upper respitory infections, and some of those can be fatal. Others just feel crappy and tired. While some can't see much difference in the flu and what most people would call a bad cold. My temp. runs 98.6; 99.0 is low grade, and any thing more than 102.6 I start calling the doctor. As I said I strongly reccomend you go straight to a doctor and have them check you out. I wish you well.
719552
It is thought to be caused by a virus. It causes extreme fatigue, muscle pain and general malaise. Some people recover and some don't. It is not fatal, but does cause problems for those who do not recover, for life. There are a couple rules of thought about treatment. One is vitamin B12 injections monthly and and plenty of rest with a balanced diet. IT IS NOT A FORM OF MS AND IS NOT HEREDITARY. GEESH!
1118124
I was diagnosed with MS May 4, 2005.  It started in Nov. 2002 with optic neuritis (i didn't know that's what it was at the time).  Then in August 2004 I developed a headache that lasted for about 5 months, followed with dizziness/vertigo.  I had a check-up, an MRI, heart echo, 1,001 blood tests, and finally a spinal tap (LP).  It's funny, I thought by now I would have accepted it, but it is still the first thing on my mind when I wake up, and the last thing on my mind when I go to sleep.  It's a big blow to get a diagnosis like this one.  I was 30 when I was dx'd, like most people.  There's too much to type here.  My e-mail is: multiplesclerosissux@yahoo.com if you wanna talk!  My name is Brian.
28322
I am a dental assistant and my sister has MS.  This sounds like a MS problem not dental.
536295
I have certainly gone through a few 'dry spells' although I wouldn't say I got 'frigid'. I have absolutely gotten the 'cold shoulder' and many times have been 'frozen out' of a situation. Hmm...HEAT? Certainly I've a gone through a 'thaw' or two, enjoyed the 'warmth' of spring and I have been know to 'fire up the furnace' and 'stoke the engines' and 'set the place ablaze' on occasion.
1170925
Hey my mom has had ms since before i was born i think and Im 16 now...it hasnt really affected my life. sure it restricts our activities together but I love her more than ever..A few of my friends family members have it too and they feel the same way..sure i get really frustrated when we're like..out and she gets tierd all of a sudden and we have to leave or if she has a mood swing because of pain but i cant blame her. id be angry too
350347
yes there is such a thing called a heat rash. itll go away soon, just get away from the heat to room temperature. not ice or anything
1182489
The same used to happen to me, anytime during the afternoon, I'd want to sleep right at my workstation at work but on visiting the doctor, I found out I was anaemic and started to take iron tablets.  \n\nI feel much better now but on the odd day, I still get the tired feeling.  I put it down to having to work too much lol  \n\nSeriously though, pay your doc a visit.
635956
"My sister was diagnosed with erythromelagia over seven years \nago, she was sixteen at the time. Her symptoms were the same as \ndescribed by most here, incredible pain, redness and \nswelling in her hands and feet. She suffered with this pain for \nfour unrelenting months. She was in the Children's\nHospital of Philadelphia. The cure was nitro-prusside. \nAfter two days of being given this drug in ICU her pain was\ngone and has never returned. At the time she was one of the \nfew cases known in the US. Her treatment came from the\nsuggestion of a Turkish doctor. For further information\ncontact her doctor, Dr. Shapiro at the Children's Hospital\nof Philadelphia. Tracy Cartwright was the case name."\n\n"Erythromelagia. means hot feet. I have decided finally to check the web about my hot feet. I will buy peppermint leaves and a book on how to cook it. I will mix it with tea tree oil and use it at night. The bottle of lotion thatI used up had peppermint and tea tree oil. It worked when my feet got hot at night, but I wish there was more peppermint in it. So, this is why Im gonna make my own. I dont believe that hot feet are caused by certain nutrition or nicciotine and alcohol. Thats b.s. Every one I know who does it, but dosent suffer from hot feet. Try to look up this erythromelagia on medical web sites and medical web libraries, not by just surfing the web."
805272
Yeah, you should see the rheumatologist.  The previous poster is right, the creatine kinase (CK or CPK) tends to go up when patients are on cholesterol medicines, or right after heavy exercise.  That being said, an elevation of CK in the setting of fatigue (like you're describing) makes me worry about myositis, usually an autoimmune problem.  see the rheumatologist (the autoimmune specialist), and they'll work it up further.  Like the prev poster said, it could be hypothyroidism, but I'd doubt it.  It's not malignant hyperthermia or neuroleptic malignant syndrome, I'll guarantee you that.
171000
Here's what I found:\n\nAs a result of the inflammatory, demyelinating process in the central nervous system, people with MS can experience a wide variety of symptoms. The most common symptoms of MS include:\n\nFatigue (also called MS lassitude to differentiate it from tiredness resulting from other causes)\n\nProblems with walking\n\nBowel and or bladder disturbances\n\nVisual problems\n\nChanges in cognitive function, including problems with memory, attention, and problem-solving\n\nAbnormal sensations such as numbness or "pins and needles"\n\nChanges in sexual function\n\nPain\n\nDepression and/or mood swings\n\nLess common symptoms include:\n\nTremor\n\nIncoordination\n\nSpeech and swallowing problems\n\nImpaired hearing\n\nAll of these are considered primary symptoms of MS because they are a direct result of demyelination, the destruction of myelin—the fatty sheath that surrounds and insulates nerve fibers in the central nervous system—and of damage to the nerve fibers themselves. Demyelination and neuronal damage impair transmission of nerve impulses to muscles and other organs, resulting in impaired function. Many of these symptoms can be managed effectively with medication, rehabilitation, and other management strategies. \n\nIn addition to the primary symptoms caused by demyelination, there are other types of problems or complications that can occur as indirect results of the primary symptoms or the experience of having a chronic illness:\n\nSecondary symptoms of MS are complications that can arise as a result of the primary symptoms. For example, bladder dysfunction can cause repeated urinary tract infections. Inactivity can result in loss of muscle tone and disuse weakness (not related to demyelination), poor postural alignment and trunk control, decreased bone density (and resulting increased risk of fracture), and shallow, inefficient breathing. Immobility can lead to pressure sores. While secondary symptoms can be treated, the optimal goal is to avoid them by treating the primary symptoms.\n\n\nTertiary symptoms of MS are the social, vocational and emotional complications associated with the primary and secondary symptoms. The diagnosis of a chronic illness can be damaging to self-esteem and self-image. A person who becomes unable to walk or drive may lose his or her livelihood. The strain of dealing with a chronic neurologic illness may disrupt personal relationships. People with MS frequently experience emotional changes as well, but it is important to note that mood swings and depression can occur as primary, secondary, or tertiary symptoms of the disease. Professional assistance from psychologists, social workers, physical and occupational therapists, and public health agencies is indicated for managing many of these psychosocial and vocational issues.\n\nIt is important to remember that not every person with MS experiences all of these symptoms. Some people may experience only one or two of them over the course of the disease, while others experience quite a few. Symptoms can come and go quite unpredictably, and no two people experience them in exactly the same way. Most of the symptoms of MS can be effectively managed, and complications avoided, with regular care by a neurologist and allied health professionals.
114199
I know how you feel.  I started on Copaxone, and had no issues, then I started to progress a little, then I switched to Betaseron.  Now I am taking Betaseron and Imuran.\n\nMy advice to you is if you aren't having an increase in symptoms, and your MRI's are fine stick with Copaxone.  Each person is different, and reacts to different medication differently.  But if you are intent on finding that one therapy that you are most comfortable with visit the following website, it is not for profit and definately for those of us with MS.
355383
What can a person do to cope with CFS? \nWhen you have CFS, learning how to pace yourself and manage or avoid physical and emotional stress is important. Physical activity helps you to feel better not just physically, but emotionally as well. Regular exercise can lessen body aches, joint and muscle pain, and increase energy. But, be careful not to over do it. Too much exercise can end up causing more fatigue. As you build up strength over time, you may be able to increase the intensity of your exercise program. Physical therapists and rehabilitation medicine specialists can help you develop an exercise program and a daily activity plan that won't be too stressful or something you can't handle. \n\nCognitive behavioral therapy is a special treatment that can help you to change the way you think about your condition. It also helps you to develop ways to improve both your daily functioning and quality of life. \n\nYoga, stretching, and self-hypnosis are some alternative treatments that some people report help with CFS. Keep in mind that there are many alternative treatments, dietary supplements, and herbal remedies touted to cure illnesses like CFS, which can end up doing a person more harm than good. Remember to always keep your health care provider informed of the other health care professionals and alternative practitioners you are seeing. \n\nHaving an illness for which there is no cure can cause psychological stress and even depression for some people. It is normal to feel cranky, sad, angry, and frustrated with an illness that causes extreme fatigue and pain. Psychotherapy (sometimes called "talk therapy") can help you learn how to manage your feelings about this difficult illness. It may also be helpful to join a support group, where you can talk with other people who are going through the same thing. See the "For more information…" section at the end of this FAQ for referrals to consumer organizations that can help you to cope with CFS. \n\nIf a person becomes so disabled with CFS that they can no longer work, they can contact the Social Security Administration for help with disability benefits. There are two social security programs that have the same medical requirements for disability payments - the Social Security Disability Insurance Program and the Supplemental Security Income (SSI) Program. Your prior work history will determine if you can receive Social Security disability. SSI payments are made on the basis of financial need. Contact the Social Security Administration toll-free at (800) 772-1213 or check out their web site,  for more information.
1105841
two good references for you\n\nhttp://www.mayoclinic.com/health/first-aid-heat-exhaustion/FA00020\n\nhttp://www.mayoclinic.com/health/first-aid-heatstroke/FA00019
1128544
Fatigue is a common symptom.  Dizziness or balance difficulties and a general feeling of malaise often occur.  Most affected people have a low grade fever at some point.  The problem is that symptoms vary widely depending on what kind of autoimmune disorder a person has.  Here's a good website for further information.