has anyone try hemp seed. for fatigue.it was recommend to me. for my  systemic lupus?
828500
Start with this, I have never heard anything about hemp seed; sounds like quack practice. mcc_md@yahoo.com for further info.\n\nTREATMENT OF SLE — Although there is no "cure" for SLE, a variety of general and specific treatments and strategies to reduce symptoms, limit damage to vital organs, and reduce the risk of recurrence are available.\n\nGeneral treatment considerations — Although specific drugs are used for particular organs, a number of general issues are applicable to every person with SLE. Diet and nutrition, exercise, and preventive measures including immunizations, avoiding certain medications, and issues related to pregnancy are among the most important general issues for patients with SLE. (See "Overview of the therapy and prognosis of systemic lupus erythematosus in adults").\n\nDiet and nutrition — It is not well known what the effect of dietary modification is in SLE. One study reported that frequent intake of meat was associated with more active and progressive disease. In contrast, dietary fish oil has been reported to be beneficial. These findings await confirmation, however, and at present we do not recommend fish oil supplements in the treatment of SLE.\n\nA conservative approach is a balanced diet consisting of carbohydrates, proteins, and fats. However, the diet should be modified based upon disease activity and the response to therapy:\n\nPatients with active inflammatory disease and fever may require an increase in caloric intake. \nCorticosteroids (prednisone and others) enhance appetite, resulting in potentially significant weight gain. Hunger can be somewhat lessened by the ingestion of water, antacids, histamine H2 blockers (eg, zantac), and/or proton-pump inhibitors (eg, prilosec). If weight gain is significant, however, patients should follow a low calorie diet. \nSignificant increases in blood levels of fat and cholesterol may occur (hyperlipidemia). Patients with hyperlipidemia should be encouraged to eat a low fat diet. A lipid-lowering agent should be considered if cholesterol levels remain high despite a change in diet. \nVitamins are rarely needed with a balanced diet. However, a daily multivitamin should be taken by patients who are not able to obtain an adequate diet or who are dieting to lose weight. \nPatients on long term steroids and postmenopausal women should take 400 to 800 units of Vitamin D plus 1000 to 1500 mg of calcium per day to minimize the degree of bone loss. \nIt is important to note that herbal supplements are of unproven benefit, and may even cause harm.\n\nExercise — Inactivity produced by acute illness causes a rapid loss of muscle mass and stamina. As a result, fatigue may follow even after the illness subsides. This can usually be treated with graded exercise. In selected cases that do not respond to regular exercise, relief of fatigue can sometimes be obtained with prednisone or antimalarials (hydroxychloroquine or chloroquine).\n\nImmunizations — Influenza vaccine is safe and effective; pneumococcal vaccine is also safe but fewer antibodies are created in people with SLE than in those without the disease. People whose immune systems are weakened should not receive live vaccines. The efficacy and safety of hepatitis B vaccination has not been determined.\n\nAvoiding certain medications — Sulfonamides and penicillin (but not the synthetic penicillins) may cause exacerbations of SLE and should therefore be avoided. In contrast, medications that cause drug-induced lupus, such as procainamide, hydralazine, and isoniazid do not cause exacerbations of SLE and may be used if otherwise needed.\n\nPregnancy and contraception — Pregnancy should be avoided during active disease (especially in women who have significant organ impairment) due to the high risk of miscarriage. Women with SLE should not become pregnant until the disease has been controlled adequately for at least six months.\n\nOral contraceptives containing high dose estrogens c
443292
Like all the previous replies, know you are not alone. We all have this disease and that is why we are able to reply here and help you out.  It is extremely frustrating when others don't understand the disease, or find it surprising how we can get so tired so often; how we can be in pain so often.  Sometimes I truly believe others think we are making it up. I am on a sick leave from work due to a string of flares that would just not go away. I get foggy spells sometimes, I am usually tired most of the time, and my joints get very achy and I can be bed-ridden for the entire day. Then some days are flare/pain free and you wouldn't even know I had the disease.\nOn a side note, I also have been taking Plaquenil for the past year and a half and have always been worried in the back of my mind that I would be within that small percentage who suffer eye damage from it. If you are on Plaquenil (hydroxychloroquine is another name for it)--make sure you see your Optometriest twice a year, rather than once a year.  \nLastly, to all the people who replied to this question and are suffering from ANY auto-immune disease, I wish you all the best of luck and hope that someday they will find a cure for us all.  Take care.
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My wife has been taking cellcept for her Lupus for the last two and a half years with little side effects.  She was a little sick to her stomach at first but now it really doesn't affect her.  It has done wonders for her Lupus flare ups though.  She hasn't had kidney involvement since being on the drug and she is only taking 5 mg of prednisone right now.  She also has antiocardiolipid syndrome and takes coumadin to thin her blood.  If you have any more questions or would like some more detailed info please feel free to email me
925076
its a antibody also used in Rheumatoid and some malignancies, should hopefully help you with SLE too, there are lots of hits on yahoo if you want to learn about this drug, good luck
724803
Rest and a well balanced diet seemed to help my mom when she was going through it, but here's a link to the American Cancer Society's suggestions:\nhttp://www.cancer.org/docroot/MBC/content/MBC_2_2X_What_About_Fatigue.asp?sitearea=MBC
391029
me, too. It has been going on for a while now. I actually fall asleep at work sometimes, or am close to being in physical pain trying not to.\n\nI asked for help on here too, and got lots of good advice--the best I thought was that I should get more exercise. I bet that really would help. Only problem is==>too tired to start. When I get home all I want to do is crash.\n\nI have been thinking about going to the doc to rule out anything like diabetes, or thyroid probs, or hormones, or God forbid, cancer, lupus, etc. There are SO many physical causes for tiredness including depression, chronic fatigue syndrome, allergies, and so on.  So I guess we need to see first if we are otherwise healthy, and then see if we can find an exercise partner to make us shake a leg. I hear that once you really get into an exercise routine, the tired feeling goes away.\n\nI am willing to try if you are.
365023
Take a look at this on WebMD http://www.webmd.com/hw/lupus/hw123406.asp
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There are so very many autoimmune disorders and rare autoimmune disorders but the one I keep coming back to is SLE.  As you have already said this has been ruled out, my only suggestion is that you get a referral to a specialist in autoimmune diseases.  I am wondering what it was that made your doctors rule out Systemic Lupus Erythematosus.  Do you happen to know?
1070638
Hey Sam, I have had crohn's for 15 + yrs. I know how you feel. Those who have never had this disease will not. I have tried probiotics, aloe vera juice, fish oil, jordan rubins program, you name it its been through my system (not always pleasantly). I am currently on Remicade and have been for over a year. It has put me into remission. I also believe it is an auto immune disease whether caused by man or environment I'm not sure. I have had many days where I feel like crap & often have deep thoughts of this disease. I do know hereditary is a factor as I can prove by most of my relation having ms, ra, lupus & crohn's. Do you have a good dr? If not find one even one who specializes in homeopathy can help. I wish you luck in finding a miracle we all are looking for!
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If you have been recently diagnosed with Lupus or have someone close to you that has been you may have many questions.  Find out if there is a support group in your area.  If not there are multiple resources (as listed by an earlier answer).\n\nTo "Live" with lupus is a choice quite simply... TO LIVE... the symptoms can be managed somewhat.  The key to it all is to find a doctor you are comfortable with.  Keep your appointments... treat infections and illness ASAP.  DO not try to be uberperson... rest when you need to rest, eat healthy, exercise whenever you can tolerate it.  The world will have to get with the program.
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I actually have my son on it right now.  Yes, I think it's working.  It's NOT going to replace an anti-depressant but if you need a little help dealing with stress it can do wonders.  I didn't tell him what it was but he noticed a difference in just a couple of weeks.  \n\nI started taking it and noticed a difference in less time  than that.  I started taking it to deal with some added stress that left me with symptoms of chronic fatigue and find that while I didn't actually notice it so much while taking it, I noticed a real drop in my overall mood after about a week of not taking it.  By constast, St. John's Wort didn't work for me AT ALL.\n\nIt's not a miracle by any means, but I'd recommend it.
659442
WOW, Epstein Barr can prove to be very debilitating due to the over exhaustion feeling. My advice to you, don't use conventional drugs. Go to an herbalist and talk with them. There are many herbs that can help you with this disease. Mono for adults is always worse than for teenagers. It seems that adults can sometimes keep it longer than a teenager as well. Having both of these at the same time is going to prove to be challenging, but I guarantee you if you seek alternative medicines you will be back on your feet in no time!
372815
i've had TMD for 5 yrs now. tried a million things-massage ,physiotherapy,splints, cortisone shots on the joint, tons of painkillers,antidepressants, block treatment, u name it. ive just arrived in calgary,canada to try what they call neuromuscular dentistry. this coupled with a NUCCA chiropractor ,they say ,will work. my severe headaches, blocked ears,puffy eyes, stiff neck ,frozen shoulders, aching back,tingling limbs ,terrible anxiety and chronic fatigue have literraly CRIPPLED ME.all the best to you my friend... i truly hope you do not get to my stage. god bless you.
445263
I suffer from the effects of lupus also. Your energy level is a hard thing to deal with, believe me I know. I personally do what I can when I am able. Have you talked with your doctor about it? My doctor gave me this same advice. "Do what you can when your level is up and rest when you need to". You have to allow your body to catch up. Sometimes when I over do it I end up in bed for days. Each person is different. I hope you have a good relationship with your doctor or doctors like in my case. So, when things change with your body's' health you can get the best advice for you. I would love to talk sometime, since we have the same disease. I know from my own experience that talking helps.
248029
try www.sciencedaily.com and search the disease. this are results of clinical trials. maybe you can find something. in  portugal we take aloe vera from a monastery franciscan and eat fiber.
607383
Some new drugs are also becoming helpful in dealing with lupus at the cellular level. One drug receiving a great deal of attention for lupus is rituximab, known as Rituxan. This drug is having success in studies in achieving remission and getting rid of many of the more serious health effects of lupus. \n\nSide effects:\nHeadache, nausea, facial flushing, or dizziness may occur. If any of these effects persist or worsen, contact your doctor or pharmacist promptly.\n\nRemember that your doctor has prescribed this medication because the benefit to you is greater than the risk of side effects. Many people using this medication do not have serious side effects.\n\nTell your doctor immediately if any of these serious side effects occur: fatigue, decrease in amount of urine, weakness, fever, chills, pain at the tumor site, joint or muscle pain, stomach pain, sore throat.\n\nTell your doctor immediately if any of these unlikely but serious side effects occur: chest pain, cough, diarrhea, increased thirst or urination, tingling of the hands or feet, flushing, unusual bleeding or bruising, sweating, mental/mood changes.\n\nTell your doctor immediately if any of these highly unlikely but very serious side effects occur: fast/slow/irregular pulse, chest pain, slow or shallow breathing, dark urine, yellowing eyes or skin.\n\nIf you have hepatitis B, rituximab may infrequently cause the infection to worsen. Very serious liver disease could occur (during or within several months after rituximab treatment). Seek immediate medical attention if you develop persistent stomach/abdominal pain, dark urine, extreme fatigue, yellowing eyes and skin. Treatment with antiviral medication is usually given to control hepatitis B.\n\nA serious allergic reaction to this drug is unlikely, but seek immediate medical attention if it occurs. Symptoms of a serious allergic reaction include: rash, itching, swelling, severe dizziness, trouble breathing.\n\nIf you notice other effects not listed above, contact your doctor or pharmacist.
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I worked for me but I was usuing it 10 times per day and was constantly stoned. Basically it just temperarily masks symtoms and is not the best choice. Its effects arre too short lived and its wayyyyyyy to expensive. I now take lexapro (10mg once a day) and xanax (1 mg as needed). I was recently put on Depakote 750mg becuase once I detoxed for 3 months, my dr. and I found that I had an underlying mood disorder. I can honestly say I'm much better off not self medicating and taking only what my dr. perscribes.