My father has guillen barre syndrome and my mother just recently asked his doctor some questions.?
483156
This is a weird disease and is often misdiagnosed.  In fact it is more the rule than the exception that this is misdiagnosed.My mother came down with it after the flu shots were started. Has your father had the \nflu shot ? The drug companies now have insurance to cover this eventuality. Contact the drug company that made the shot. Maybe they will give you some help with the medical bills. My mother had that over twenty years ago and I didn't know she had had the oral vaccine when it first came out. If I had that knowledge I would have advised her to contact the manufacturer.  As it was my parents did not have Medical insurance. And they used up their life savings paying the hospital bill.  She was hospitalized for a month but that was over 20 yrs. ago when there was no treatment for this disease.  The prognosis is as weird as the disease. It is the only neurology disease that you can fully recover from.  However some people are left with permanent effects that range from a mild limp to paraplegia.That was at the time of the unknown treatment.  My mother was left with a dropped left foot. She had some permanent neuropathy. The treatment should prevent your father from having any permanent residuals.  He is lucky to get it now that it is more recognized. I could go on at length about this disease but this should give you a handle on this polio like disease.
158045
Definitely see your family physican.  It could be many things, palsy, Parkinson's, Chorea, stroke, injured muscle, etc.  Your doctor can run the necessary tests to diagnosis the condition.
916442
ouch, sorry. well my uncle has ALS, he's had it since about 2002, he's in a wheel chair now and can't talk. my uncle is one of the most nicest people in my life, when we first heard he had it my dad came down stairs crying, that was the first I can remember seeing my dad cry. everyone loves my uncle and fortunately my uncle is gratefully for his time right now. I hope you feel better soon.
186689
Hello Sir,\nI can understand your problem because my mother suffered almost with the same kind of proble. she also consulted with many neuro surgeons and orthopedic surgeons but nothing happened. The only thing that helped her was physiotherapy. You better go to a qualified physiotherapist. I hope that will definitely work for you.\nI hope that the problem of your wife will soon be over.\nI will pray for her.
521276
First of all- you are a great kid! Thank You for being so caring towards your mother. It sounds like she needs a meds evaluation. I say this often to people on here who say their meds aren't working because yes, there are meds that may work better but she may not be dosed right either. Weight fluctuations can cause problems, etc. Her meds may not be working effectively because symptoms of depression are still evident. I would suggest that you and your Dad encourage her to see a Doc ASAP. if she has trouble paying bills, etc- re-delegate this task to someone else (Dad)- make sure she has help with household chores, etc. Focus on reducing her stress- regardless of whether it means having a hot meal on the table when she gets home, doing laundry, or whatever else needs to be done. Maybe she's due for a vacation- she should take one if she can- even if you stay in town and do small activities like going to the movies, going out for dinner, etc.
333227
We have a child at out school with MS, he doesn't have a special diet, is wheelchair bound, they do basic range of motion, and streching. But the best thing for you to do is contact your clients doctor, cover your butt, you wouldnt want to do anything that could potentially hurt this woman.
106956
Your mother should be very careful with this.  She possibly may need to go on to medication.  My mother (who is overweight) always experienced blood clots in her legs.  She would treat them as they came/went (with heat and massage) until one traveled up her leg, into her heart (where it loged itself) and pieces began breaking off...one to her brain causing a stroke and one to her lung.  She now take warafin (blood thinners) and is going for weight loss surgery so she won't have to take them anymore.  There is a definite relation between weight and the occurance of clots.\nPlease get your mom to go to her MD...prevention is the best medicine!!  Let me tell you...teaching my mom the alphabet, how to read and write (after the stroke) was the hardest thing I've ever had to do.
830697
Hi Stephen.  I am sorry to hear about your suffering.  I have a couple of thoughts/suggestions.  \n\nFirst, have your been properly tested for vitamin B12 deficiency?  This is a common cause of peripheral neuropathy and most doctors do not know how to properly test for deficiency.  Usually doctors order a serum B12 test, however this can be normal even with deficiency.  The best laboratory tests for B12 status are serum Homocysteine and urinary Methylmalonic acid.  So, be sure this is not an issue.\n\nSecond, I would like to suggest a powerful book by Sherry Rogers, M.D.  It is called: "Pain-free in 6 Weeks".  She is an expert in environmental medicine.  In the book Dr. Rogers explains many, many causes of chronic pain that are not well understood (or even known) by most doctors.  The book is available at Amazon.com.  I highly recommend it.\n\nLast thought, how many Chiropractic evaluations have you had?  Have you ever had a neck injury (e.g. whiplash, sports injury, fall, etc.)?  It is not common, but an upper cervical subluxation could cause your symptoms.\n\nI hope this has been helpful for you.  Best wishes and good luck.
936620
SERIOUSLY  ,  SOUNDS  LIKE  EPILEPSY  SOME  KIND   OF  SEIZURES  ,  ALSO  COULD    BE  LEUKEMIA ,. I  WOULD  ASK  FOR  A     CBC WITH  DIFFERENTIAL   ,  IRON  LEVELS ,  COMPLETE  URINE  TEST , HA1C  ,  THYROID PANEL,   LIVER  PANEL , \nTELL   YOUR   MOM   RIGHT  AWAY  , YOU WANT  MORE  TEST   DONE.
906836
Hi\nSorry you got such a stupid first answer. And then, the second response was so unhelpful and patronizing! Gee, what does she think that every parent that gets such diagnosis is jumping in one leg with joy ?" cool, my child is autistic. Now we can be in the in crowd." She needs to have her head checked. We are just going through the diagnosis and I know it is a very painful and sad stage in the life of any parent in that situation. And I am sure that aside from maybe not speaking your child has other symptoms. Otherwise, you would not have gotten the diagnosis. \nAnyway, I just wanted to tell you that I posted yesterday a very similar question, so if you click in my profile, you will see the answers that I have gotten so far and they are all a zillion times more helpful that the ones you got. I hope they help! Also, I just found out through my sister that lives in Miami, that they have two great schools there. One is private in Dade County  "The Carrie Brazer Center for Autism and Alternative Approaches, Inc.' (visit their home page at www.cbc4autism.org) and a public one Mailman Center for Child Development in Broward County.\nRight now, I am living in Switzerland and they have a fabulous school in Mongre its called FEDEA and the instruction is in English or French. Each child has his own teacher!!! And they have daily outings, they use the ABA Method, and its an amazing school but there is no financial assistance and the cost is seventy thousand swiss francs per year with translates into $ 56, 000.00 per year. So needless to say, unless you are quite rich the cost is prohibitive. That is why I'll have to move back home soon. Good luck to you! And if you need someone to talk to or excahnge info just email me.
1145128
it is not unusual for the elderly of her age to slump...especially in female.  disk space narrows, muscles atrophy, etc.  the first suggestion i read here would apply to olympic athlete...much too vigorous.\nwith the agreement of her gerontologist, she ought to seek an organized program of supervized water exercise, such as given by local Arthritis Associations, YWCA's, etc.  by all means, the beginner's class in which many aged people are generally the bulk of the participants.slowly does it...and the social aspect will help as well.  your mother is not atypical for many people her age, male and female.  Medicare will not pay for such programs, but I checked with my local Arthritis Foundation which has classes in an inside swimming pool, and 3 classes per week costs $45.00...perhaps you could help defray the costs if your mother does not have sufficient income.....i have no idea what her personal circumstances are, but it might make a great birthday present......and if you pay for it, she will feel obligated to go, even if she does not want to....can she drive? if not, perhaps you can drive her?  perhaps your community has programs for the elderly that include picking them up for such activities?
722265
Yes I have...It is a something that runs in my family...I believe it is called Menier's (not sure of the spelling)Disease...It is caused when the water level in the middle ear is disrupted...My father takes anti-vert, although from what he has told me a person can build up immunity to its effects...He does get it very bad at times and he is aware of its onset, so he takes 1/2 of a Valium which reduces the anxiety of knowing that he may be laid up in bed for a week, but it does seem to help him with the symptoms...or...get this...he puts the hair drier to his ear...the gentle air flow seems to help level out the water imbalance...he is 76 years old so he has become quite proficient in his own health care...He was also told about a surgical procedure...but that could possibly leave you deaf...I like the hair drier idea myself...contact your doctor and ask your family members if they have had it...I know my paternal grandmother had it, my father has it, and I get it too...My best preventive is just move more slowly, avoid wild amusement park rides, and when I'm on a boat or a passenger in a  fast moving car, I NEVER look down...only forward...I hope this has helped...
362087
I really hate to here of your father falling ill once again. Let me tell you just last week my father was told that he has cancer of the pancreas.It is a scary time for all involed but most of all the patient. I went to see my father just last year after 24 years, we had some bad issuses between us as well does my sister and brother does with him. I feel better that I went I can honestly say that I have no regrets. You feel how you feel and you can only do what you feel is best towards your dad. Always remember that you tried your very best towards him. May god bless you and your father, put your trust in him and he will lead the way. Good luck.
1013312
First off, I'd like to extend my premature condolences and am sorry that you're even going thru this. \n\n       Talk to your father and see if you and him can put your head together and consider legal action. I'm not saying sue. There's no one to sue, not until you get a case. There should be an investigation with this place. Take it from there, but also.....\n\n        On the other hand, my father's in the medical field and 1 day before my grandmother passed on last November she was doing fine for a couple of days after having complications. She was talking like her usual self until she slipped into a coma of sorts... My father termed that "the calm before the storm" and that he had seen that all the time at his hospital. He has been dealing with patients for almost 30 years now, so I definitely take incentive in that. This is likely what it was....she was doing ok for a time following her malady, but whatever was the underlying cause of her condition went in and took over even when she appeared to be up and around. It's a sad and confusing part of death. Apparently, it's also common.
978580
Go and ask to speak to thedoctor in charge of your dad at the hospital, tell them you want to know what is going on and what is wrong with your father, tell them you are worried because nothing seems to be doing done for him and make sure you the doctor gives you some answers.  As long as you are firm but respectful, you should get some proper answers.  If you are still not happy ask for another doctor to take a look at your dad.  I hope you get this sorted out quickly.
1147822
Wow.....this disease usually strikes young adults in their early 30's. My sister has had it for 10 years and a close friend has had it for almost 15 years. MS is different for both of them. My sister has long periods of time when she's fine and then she'll have spells of being extremely tired and the muscles in her legs are like jelly......my friend goes to the National Health Institute periodically for a new kind of medication given by needle. The new medication is given on a case by case basis.  Without the medicine her systems are chronic.... no energy ....loses her balance....blurred vision.....unable to stand. With the medication she still has those symptoms but not quite so bad. It's a hell of a disease. Has your friend had a 2nd opinion?
212163
Hello again there!  Sorry to hear about how you feel.  I also have CFS or abstein bar.  I'm a bit of a pro at it, the difference with me is that I am a new person after my treatment. CFS starts out as Mononucleosis (MONO) the virus which if untreated turns to CFS, so that's why my doctor treats it with Valtrex.  Depression and anxiety come with CFS which also causes joint and muscle soreness, that's where the antidepressants come in.  As far as the fybromyalgia the only thing I know for it is pain management and that is something I don't dare explain because I have no personal experience but from my mother having it I know it's not easy to treat. Listen, if your doctor disagrees with the treatment that I just described to you as far as the CFS then you need to find someone who is more open to your health solutions. I love my doctor, he's so wonderful that my trust in him is unmentionable. I know it's scary to try someone new, but you need to feel better.  Wouldn't you like to feel normal again?  Be able to get up when you wake up and go.  Not fall asleep at the wheel.  You get my point.  I'm a new person and I have a new baby.  Believe me it feels good to be awake and the weight of the world is now a lot more manageable.  By the way drinking makes it worse, a lot worse!  So if you do, you need to take a break until you're all better.  Believe me it didn't help me any, I thank GOD for today. Chat with you later   I hope this info helps u a little bit. By the way if you're having trouble with a day at a time, try an hour at a  time.  Sounds like you're under a lot of stress and that makes the CFS worse all of the time.  Help is on the way,  you'll be alright. My doctor always reassured me that I'd be o.k., he is very involved with his patients and that's why everyone loves and trusts him so much