Does anyone else have arnold chiari malformation?
459586
I do.  Hi, nice to meet another chiarian. How is life for you?  I have been diagnosed with ACM since 1999.
192313
not me personally, but I have taken care of many patients with it. You may need to adjust your medications if it is recurring. See your doc.
278107
I am praying none shud have this condition...usually life threatening but rare nowadays by the advent of newer antibiotics...but it must be really painfull condition and cud expect loss of sensation on one side of body..
369416
Did they do a myelogram?  Also, was the spinal tap done to rule out meningitis?  Normally, your symptoms should be subsiding by now.  If it continues, I would call you doctor.
1044653
Both my brother and I had ours removed while we were kids.  His ruptured and was quite serious.  But my other 8 siblings still have theirs.
698909
MAN I FEEL FOR YOU I HAVE BEEN DEALING WITH R.S,D FOR YEARS NOW . WHICH IS A NERVE DISE. I,M GOING IN DEC.1 TO HAVE ASPINAL CORD STIMULATOR PUT IN TO SEE IF IT WILL CUT DOWN THE SOME SO I CAN GET OFF THE PAIN  MEDS OR CUT DOWN ON HOW MUCH I,M TAKING A DAY.IT SUCKS BUT WHAT CAN YA DO .E MAIL ME AT ICDDPPL1995 @YAHOO.COM.GOOD JUCK
750127
i have it.it feels like someone is pouring boiling hot water down my back.then some takes me by the head and keeps beating me into a brick wall..this illness really sucks.go to fibrohugs.com.and look for letter to normals.that about sums it up!
882655
Yes, I had amazing results...at one point they also brought in a massage therapist and taught me a couple of simple techniques to do on my own...I suffered greatly from migranes for a long time, but after Chiropractic care, I hardly ever have one now.  I go for a routine adjustment every few months and no problems at all.
199323
Im a guy, but i had a hiatal hernia, and my doc(who is a friend and has a pretty good sense of humor) informed me that giving birth to a baby of any size can cause one. I, of coarse, let him know i had never given birth:)
361342
A Chiari type I syndrome means that the very lowest part of the brain, the "tonsils" of the cerebellum, are sitting lower than normal. (These have nothing to do with the tonsils in your throat.)\n\nThe cerebellum, or "little brain", is the part at the back of the brain that controls balance and coordination. Normally, the cerebellar tonsils sit just at the base of the skull, above the hole in the base of the skull through which the spinal cord goes. (The hole is called the foramen magnum.) In Chiari type I, the tonsils are hanging down through the foramen magnum. They can be just a few millimeters down, or all the way down to the level of the 2nd vertebra in your neck (rarely even lower).\n\nHaving a Chiari I is not necessarily a problem. If there's enough space in the foramen magnum for both the spinal cord and upper brainstem (the part of the brain that feeds into the spinal cord, which controls a lot of important things like breathing, heart rate, and the lower cranial nerves that go to things like swallowing and eye movements), then no problem.\n\nHowever, if there's not much space, having the tonsils wedged in the foramen magnum can cause pressure on the brainstem and spinal cord, giving you problems with double vision, funny eye movements, poor balance, or swallowing problems. It can also impair the normal flow of fluid around the brain and spine, causing headaches.\n\nIf a Chiari malformation is symptomatic, surgeons can operate to remove some of the bone at the back of the skull, to make more room for the tonsils. They don't take any brain out, just relieve the pressure.\n\nHowever, in many cases, a Chiari is discovered because someone has a scan for some other reason (e.g., they had a minor head injury) and it is not producing any symptoms. This kind of "incidental" finding doesn't need treatment and you could well go the rest of your life without any surgery. It shouldn't limit your activity in any way, except that chiropractic neck manipulation is probably not a good idea.\n\nThe sites below have some excellent information, but can also be a bit scary. Rest assured, I've seen many people with Chiari type I who don't need surgery. (I'm a neurosurgeon.)\n\nOf note, Arnold was a pupil of Chiari and had his name attached to the syndrome for years, but it's now generally felt he doesn't deserve credit and a lot of surgeons just call it Chiari, not Arnold-Chiari, though you will still find info under either name.
439321
I actually have (NF)2.Whitch of course is more rare.Also I do not have cafe'o late spots or macrocephaly.I actually did not know I had NF until my right side went numb 3  years ago.The 1st sign of NF was when I was 12 and I wasn't able to open my hand,my radial nerve had shut down.I had MRI after MRI but never an MRI of my Brain whitch looking back it baffels me.Now I am 21 and have had 3 brain surgeries.All Succesful except my first I lost hearing in one of my ears yet they took out 3 tumors.(Thats very typical for NF 2 patients) My 2nd surgery was a tumor behind my left eye(9 hour surgery),I kept my vision thankfully)Except my 3-6 nerves were damaged so I can't move my eye).My last was a the biggest surgery I have had...medulla oblongata...that could have cost me talking and walking.It was a miracle tho everything went well because it was by the brain stem wall.I have a really really really good neurosurgeon and he also is a good person.We will have 30 minute conversations about just daily life,he really cares bout me.\n\nI don't mean to scare you,I actually have great news for you.The hardest part of all this was when I was at Texasw Lutheran University and got right side numbness.We did not know why...Even went to hospital and they did not help me at all.Not knowing really was the hard part.\n\nThat is why it is really good that you are already getting MRI's.When she hits puberty I recommend that she gets one every 6 months.I think everything will be fine if you monitor it.I will pray for your daughter.\nLast about myself,I have been really strong throughout this process,and I only think I will have to deal with a gamaknife surgery for my last tumor left on my other auditory nerve.(right now it is tiny)\nAsk me any other questions you have.\nArtie\nP.S. I descided to answer q's about this to help other NF patients.In fact,I am going to NF golf tournament in SAn Antonio on Monday,helping others in the community will make me feel better also.
893380
thats prety crazy, have you seen a doctor about it?
714720
I can tell you from first hand experience it's no fun. I ruptured L5-S1 many years ago and had to have surgery. I'd say I recovered to about 95% after wards. There are some new techniques now that you may have a better chance of staying healthy than I did. I have since ruptured L3-4 and had another surgery. Now I have degenerative disc disease and have to take meds every day. I tried a Chiropractor with no success. I'd do whatever the doctor said if I were you. See a good neurosurgeon.
1006043
I had a CAT scan about 5 years ago that showed and arachnoid cyst. The doctor wasn't concerned about it and it never caused me any problems. Heck.....I forgot about it until I saw your question.
917210
I had one September of last year. Unfortunately, part of mine died away. Apparently, that doesn't happen often. Up until that point it was looking pretty good and after the recovery of the surgery there wasn't any pain associated with it. I just had the Dorsi flap reconstruction (from the back) though and since then I have limited movement, muscle aches and spasms. Feel free to email me for specific questions.
1145362
A CT scan detected ascites, hepatomegaly with. enlargement of the caudate lobe and compression of the. inferior caval vein (VCI)......I think
723396
I know someone that this happened to and they had damaged a nerve in their head from sleeping on the couch, laying their head on the arm rest. They had to get an MRI or something to figure it out, but they're just giving it time to see if it heals itself otherwise there's some kind of surgery. Might be your problem.