Anybody here have any experience with MODY diabetes, esp. the Glucokinase variety?
456401
HI. My son was diagnosed with MODY 3.  You are right there is not a lot of comprehensive information.  What i can tell you is what my late husband experienced, but it's not pleasant.  My son is currenly 13 years old, I don't expect him to show symptoms until he is 16, but we keep him checked.  My husband was diagnosed with diabetes at the age of 24, he had it unbeknownst to him since he was about 17, he did not do the greatest job taking care of it, he had multiple eye surgerys and was diagnosed with kidney failure at the age of 31.  He was on dialysis for 3 years and died on his 35th birthday. It is a very tragic tale, and I am going to do everything I can to keep my son from going that same route.  My late husband was not a drinker, not a smoker and not over weight, but his diabetes was very progressive and aggressive. All I ask is that you PLEASE take this very seriously and take care of yourself.  If you want to chat more on this..I'd love to hear from you.
851045
pretty much all the diets today are based on a form of atkins-south beach dietetc..most diabetics are on the same type of thing. They must control their carb intake carefully so it cant be that dangerous...there are a few very sick people who may not be able to follow Atkins safely-severe kidney damage perhaps-check w doctor if you are chronically ill.  I've lost on 20lbs it but after a while I got off and went to bad habits-that happens with a lot of dieters.  There is an emotional impact of eating and one needs to confront that and not blame the specific diet.Im getting back to it now and am losing more slowly as I accept I have some lapses from time to time But it is a really good way to cut off sugar if you are addicted to that. The protein and fats keep you satisfied so you can break the habit since you arent that hungry all the time yo can pass up sugar...with less struggle but you need to be ready to at least try. \nNo sugar is the best advice for us all, but a few people can just  reduce a ltille bit of all foods and do well-they are not carb cravers or those of us who cannto stop at one piece etc. \nWhole grains and other low glycemic index  can be introduced once a person loses and is on maintenance or you cna lose slowly by starting out just reducing carbs little by little A lot of people need more drastic to reduce cravings for bread etc.
391762
Hello! I am so glad I saw your post I feel your pain. I had the same problem and I have to be very careful. My seizures(not to scare you became more frequent for me ) they occurred around "that time of the month" and when I was under great deals of stress they occurred. I had to quit one job I had because of it. I also had to cut my hours back BEFORE I quit the job. I was working 10 hour days and the doctor said "no more" \n\nYou are probably hypoglycemic. I am. What I do, is I carry candy in my purse. The Bob's peppermints are excellent, they are pure sugar or carry the tubes of glucose, or the glucose pills. Don't go eating big meals. You need to eat smaller and balanced meals. Don't go eating a lot of carbs and a lot of protein. You have to balance them one neutralizes the other. The only time you should eat candy is if you need it, if you feel the symptoms of a seizure. \nPeanut butter crackers are a great snack, I find that they keep my blood sugar balanced. I usually have a few peanut butter crackers and about 4 oz of low sugar fruit juice for a quick snack. \n\nYour doctor will probably order a glucose tolerance test for you. OH PAIN THE A#$ . It is six hours long. They poke you once every hour and they make you pee in a cup at that time too. Before they draw the blood, you have to drink this really sweet bottle of pop. It tastes like orange or grape flavored carbonated corn syrup. I drank it and almost fainted which is an expected side effect sometimes. \n\nTHey are looking for diabetes, well I was found to be hypoglycemic. The doctor showed me the chart I started at 98 as fasting . It rose to 150 and dropped all the way down to 52. No wonder I was drooling all over myself . The lady at the lab made me go to another room and she had me go to sleep. \n\nYou need to follow your doctor's orders and you basically treat it the same way you do diabetes if hypoglycemia is your case. It is the same diet, you treat the seizures the same. What happens is as a hypoglycemic we produce our own insulin and we react as if we injected to much into our body. \n\nAs long as you follow the diet, don't get stressed out at least not too much and listen to your doctor, the seizures will be controlled. The doctor will properly educate you on that. If you sit and worry about whether or not it is going to happen , it will happen. BELIEVE ME> I used to be SO PARANOID. I didn't realize it, but I had talked myself into having a seizure because I was so worried about whether I was going to have one again\n\nThe big thing DON'T EVER EVERY SKIP A MEAL. Eat breakfast before you leave for work. \n\nJust make sure you are properly educated . It is no different than being a diabetic . ;)\n\nIf you need anything else let me know I will be more than happy to help you. Good luck to you. \nDon't worry about it.\n\nYour number one key....control it, don't let it control you. That was my mistake and it came from fear and worry .
768325
I believe that diabetes may be a disqualifier to join the military. I know several people that were diagnosed during their service (including my brother in law, serving in a navy helicoptor squadron in San Diego), but I never knew anyone that had it when they enlisted (and knew about it)
560187
Try silly yaks.  There are a lot more, some for GFCF, some for overweight celiac, some for diabetic celiac and so on.  I only do silly yaks though...I found it just by searching groups.
245866
yes,i eat baked chips all the time and i've had diabetes since I was 5 and i'm now 14.You just gotta watch your carbs and take insulyn.
363344
donot eat too much sweet infront of him (if male) \ndonot eat too much bulky food infront of him at one time\ndonot eat too much food rich in carbohydrates specially consisting of simple sugars\ndonot drink too much fruit in front of him\ndonot drink simple sugar (glucose, flavoured glucose)infront of him\ntry to be patient if he awakes two to three times in a night for peeing (it will not happen that often)but you have to be considerate.\nkeep some sweet along you always and give him some if he feels sweaty, lethargic , abnormally sleepy, anorexic or dizzy.\nkeeping glucometer along with ample gluco-strips is mandatory.\nmonthly serum fasting glucose level has to be done.(to see the efficasy of the drugs).\ntype 2 initially can be resolved just with diet and exercise, if not then drugs (which may be a single , or combinations of upto three drugs upto three times daily).\n\nthough sexually wont affect initially , therefore one has to play carefully especially with the mind (more psycologically)\n\nin the end of if he is  unable to control himself to type-II, then No doubt there will be need of Insulin injection lately, and living with that perosn is a little more tricker than living with type2 diabetes , though not difficult too.
1043329
There has been research going on for many many years in this field....best place to start with any info is your own doctor...you say your glucose isnt stabilized...if thats the case then you should be under a doctors care for it....all hospitals have counselors and information needed for diabetes and its treatment.Many of the teaching hospitals is where alot of the research is happening.
31897
Study of "Mad Cow" disease.  Or maybe something on insulin and diabetes.
325487
Let me begin by saying that I commend you on your efforts to continue your education and not let diabetes stop you. I am 24 years old and finishing up my MA in English, so you are not alone. I completely relate to your situation, although I am not currently insulin-dependant. \n\nThere are new treatments out there. The new isulin inhaler should be on the market in just a matter of months .. sometime this summer and that would be one option. An insulin pump would also be a great option for you if you are up to 3 injections daily. This way, your sticks are greatly reduced. \n\nI am not sure about the pancreas transplant issue, but I have heard of islet cells being transplanted. I would recommend doing your own research on this. Consult with the ADA and see what you can find out there. I think these things are still pretty experimental for the most part. \n\nAs for other organizations that can help you with your expenses / treatment, etc., consider consulting your local health department. I work for a health department diabetes program and I am sure there is a similar program in your area. You can probably access free diabetes education resources and even get some help with meds. \n\nGood luck and best wishes.. I hope everything works out for you in your education and otherwise.
487604
Unfortunately, I did, but it was a combination of symptoms that led to the diagnosis of Type II diabetes for me.\n\nMy eyesight was very blurry, I was tired, thirsty, running to the bathroom, headaches...I didn't know the effects of hyperglycemia (high blood sugar) after taking Prednisone.  After complaining to my parents, they took my blood sugar.  It read 526.  Was rushed to the hospital the next morning when it read 327, and stayed that way for 4 hours afterward.\n\nMy eyesight problems scared me the most because I like to read, not to mention watching TV.  At the time I couldn't see past 10 feet; driving was a nightmare.  I didn't go blind, but I might as well have because I couldn't see too much of anything anyway.
688269
Both my brother and his wife have Type II diabetes.  They had a baby 05/20/04.  He was 8 weeks early because she developed pre-eclampsia (high blood pressure) and her kidneys began failing.  They had to induce labor to save her and my nephew.\n\nThey are both fine now.  He is into his terrible twos and not diabetic.
141823
I'm a Type 2 diabetic myself, and I can speak from experience here...if I eat something heavy in sugar or carbs, especially without anything else in my system, my body "crashes" after the initial sugar rush wears off.  One of the big problems with Type 2 is the wild variations in blood sugar count at any given time...it's like your bidy doesn't react in any stable way to big swings in blood sugar count.
417371
A few changes of spices and herbs could make all of the difference. Your food will help lower your blood sugar. I have been researching this for a year. You might want to look at the many foods and spice that could help;\n\nTumeric-A spice on your food could lower your sugar level\nhttp://curezone.com/blogs/m.asp?f=605&i=...\nApple Cider Vinegar\nhttp://curezone.com/blogs/m.asp?f=179&i=...\nhttp://curezone.com/blogs/m.asp?f=179&i=...\nCinnamon\nhttp://curezone.com/blogs/m.asp?f=172&i=...\nApple Cider & Cinnamon\nhttp://curezone.com/blogs/m.asp?f=179&i=...\nACV & Cherries\nhttp://curezone.com/blogs/m.asp?f=179&i=...\nAloe Vera\nhttp://curezone.com/blogs/m.asp?f=15&i=2...\nhttp://curezone.com/blogs/m.asp?f=15&i=1...\nAlmonds\nhttp://curezone.com/blogs/m.asp?f=125&i=...\nWalnuts\nhttp://curezone.com/blogs/m.asp?f=84&i=5...\nhttp://curezone.com/blogs/m.asp?f=84&i=4...
275713
i am a severe diabetic and this advice is the best. dont listen about sugar free snacks...they still have carbs and that is what messes up diabetes. CARBS. listen, ask your doctor about the insulin pump by medtronic mini-med. it saved my life and i feel like i am cured from that crazy disease. keep your head up
709322
ask your phsician to check "fasting glusose level"\n\nI'm not an m.d., but used to have "hypoglycemia"
972228
if the constant high sugar intake is continued, a lot of people believe this will increase your risk of type-2 diabetes. Now, whether this happens in 10 years, 20 years or never is dependant on a lot of factors.\n\nBottom line - comsuming lots of excess sugars can play havor on your glucose/glycogen systems and stress your liver, kidneys, and pancreas and result in spikes in insulin and depressing the production of key enzymes used for energy management.