I need help for my child that has severe tourette syndrome the medicine is'nt working anymore.?
459754
My son has Tourettes OCD and ADHD.  He is only 11 and is on Clonodine.  I am wondering if eventually it will not work for him anymore.\n\nI am curious what your neurologist has to say.  I have heard that it takes trial and error and sometimes years to find what works best.  It may be possible for your child to function OK without any medicine.  It will just take time to adjust to the tics and incorporate them into daily living. \n\nBlessings to you.  If you want to, please feel free to contact me through this site to discuss further.
1070936
You know how people who have Tourette's have a medication that they can take to suppress the outbursts, but when it wears off, they go apeshit for a while?  I think it's like that.  Normally they're scratching all day, but not while they're sleeping.  They've got a lot of itchiness built up in the morning.
645284
The meds are probly not the answer. Take a look at life style. Elimanate candy and juink food. Make sure he gets 3 balanced meals a day. Plenty of sleep, and of couse a little one on one parent time.
674935
I would type in the drug BEXTRA on the net there are a ton of sites stating that it can cause problems.There are lawsuits for that medication.I hope this helps you.
625173
you are in a very bad situation and I wish I could help more. i think you are on the right track with the herbal meds, and you can't quit work because starvation won't help your child. maybe you should look for a holistic doctor and try them- they tend to use herbs when possible and in some cases their results are quite remarkable. godd luck and vaya con dios
200186
try spending more time with her... if you do your research children often diagnosised with ADHD often are just wanting and needing attention.  parents (not you) but a lot of parents find it easier not to discipline in a constructive manner by reinforcing, correct behavior, and concistancy. so you often find that so parents can get out the easy way they allow there children to play video games, watch an anormious amount of TV, eat things with red and blue dyes, and are not consistant with reinforcing behaviors that are expected, all of these say to kids play by yourself, watch tv by yourseld, and eat what you want to. leaving children lonely and wanting attention, try to play games with your child, rent a movie for just you and him/her and have a fun popcorn movie night, go for a walk, watch what you child is eating, (look up red, yellow and blue dyes in foods on the net and the effects from them) pay attention to what your child can't verbally express to you and stop trying to feed them pills. we need our children to be productive not so loopy that they can't function. these medicines are addicting and dangerous. did you know a lot of the ADHD meds cause children to halucinate? we have to work with our children and I am sure you are a wonderful parent and concerned other wise you wouldn't be asking this question, but maybe you could start asking your child more questions as well
485878
PLEASE I AM BEGGING U DO NOT GO STRAIGHT TO THE DOCTOR LIKE THAT LAST ANSWER SUGGESTED AND PUMP UR DAUGHTER FULL OF MEDS BECAUSE THAT MAY NOT BE THE ANSWER AND GIVING HER MEDS THAT SHE DOESN'T NEED CAN MAKE HER WORSE\nLETS FACE IT SHE IS 8 YEARS OLD. SHE WONT CONCENTRATE AS MUCH AS U WANT HER TO IN SCHOOL MOM, AFTER ALL SHE IS STILL A KID. I HAVE AN 8 YR OLD LIL BOY AND HIS TEACHER AND I HAVE TO WORK TOGETHER TO GET HIM TO PAY ATTENTION, HE LIKES TO TALK IN CLASS AND GOOF OFF SOMETIMES, THE TEACHER AND I FELT IT BEST TO MOVE HIS DESK AWAY FROM HIS DISTRACTIONS UNTIL HE EARNS THE RIGHT TO BE BACK IN HIS NORMAL SPOT PLUS AT HOME I TALK TO HIM EVERY DAY ABOUT HOW IMPORTANT IT IS FOR HIM TO PAY ATTENTION AND TO DO HIS BEST IN SCHOOL I ALWAYS TRY TO WORK OUT AN AWARD SYSTEM IF HE BRINGS HOME A GOOD NOTE FROM HIS TEACHER AND SAY 4 OUT OF 5 DAYS HE HAS GOOD NOTES THAN I GIVE HIM AN AWARD LIKE GOING TO THE PARK A SMALL TOY FROM WAL-MART. IT DOESN'T HAVE TO MONETARY BUT SOMETHING THAT SHE WILL APPRECIATE AND CHOOSES TO DO WITH IN REASON
627336
Besides medication, what else are you doing for treatment?  You should talk to someone about your feelings.  Not necessarily a professional, but at least someone you trust.  If that isn't helping, then maybe consider professional therapy.  This is VERY common, and often goes untreated.  You've recognized a problem, now just keep working at it.  You probably won't be on meds forever.  Don't focus on the fact that you're taking pills, focus on relieving your PPD.  You daughter will thank you later!
206430
My child is three, and autistic, and has sleep issues, too. I use products from Melaleuca, the one that helps him has chamomile, so you could try that. You can buy chamomile tea at any store. If he doesn't like the taste of it, make it up then mix it with juice, or whatever you give him to drink. Just don't let him see you do it. What I use helps him sleep, but doesn't knock him out, I even give it to him during the day to help calm his tantruming.
213376
My son has mild Tourette. It really bothers me that everyone thinks it's a "cursing disease." (Thanks so much, LA Law and Ally McBeal). Less than 10% of people with TS have copralalia.  \n\nAnther misconception that I find upsetting: that most kids with TS exhibit violent behavior (a myth spread by some MOMS of kids with TS and behavior problems--some have it, and some don't, but please don't tell people they ALL do!!)\n\nAlso, it's very hard for people to understand that the condition ebbs and flows. Not just the tics, but the ADHD and obsessive-compulsive symptoms that tend to come with it. Just because a child's symptoms were mild one day doesn't mean that he can control them on another day.
23062
Tourette Syndrome   Gilles de la Tourette syndrome (Tourette Syndrome or TS) is a neurological disorder which becomes evident in early childhood or adolescence between the ages of 2 and 15.  Tourette syndrome is defined by multiple motor and vocal tics lasting for more than one year.  Many people have only motor tics or only vocal tics.  The first symptoms usually are involuntary movements (tics) of the face, arms, limbs or trunk.  These tics are frequent, repetitive and rapid.  The most common first symptom is a facial tic (eye blink, nose twitch, grimace), and is replaced or added to by other tics of the neck, trunk, and limbs. \n\nThese involuntary (outside the patient's control) tics may also be complicated, involving the entire body, such as kicking and stamping. Many person report what are described as premonitory urges -- the urge to perform a motor activity. Other symptoms such as touching, repetitive thoughts and movements and compulsions can occur. \n\nThere are also verbal tics.  These verbal tics (vocalizations) usually occur with the movements; later they may replace one or more motor tics.  These vocalizations include grunting, throat clearing, shouting and barking.  The verbal tics may also be expressed as coprolalia (the involuntary use of obscene words or socially inappropriate words and phrases) or copropraxia (obscene gestures). Despite widespread publicity, coprolalia/copropraxia is uncommon with tic disorders
479822
ADHD is a medical condition. Medication controls the SYMPTOMS of this disorder but it doesn't cure it. Some kids, like the one in my class with ADHD right now, actually do worse on the meds and have to be taken off. Then there are side effects. For other kids, medication has helped tremendously and worked well. The kind, dosage, and timing of the medication must be experimented and adjusted.\n\nWhatever you decide to do, medication SHOULD NOT be the only, or indeed the primary, means of intervention. You say he is not focused or organized. It is imperative that you find someone to help you teach your son skills and stratgies to help him cope with these challenges. You have the right as a parent to request special services for your son. That is, to ask under special education law or the American with Disabilities Act to have accomadations made for your son in the classroom.\n\nWhat kind of doctor diagnosed and prescribed medication? Hopefully you have the resources to take your son to a doctor who specializes in ADHD and related conditions. Other conditions mimic ADHD but do not respond to medication because they aren't the same medical disorder.\n\nYou may also desire to have your son tested for food allergens or sensitvities and monitor him for sleep disturbances. Also, increase the amount of physcial activity that he gets each day and limit the amount of computer games, video games, and television programs to less than 30 minutes a day. None of these things actually causes ADHD but in my opinion they may worsen the effects. \n\n\nTo sum up: it is not always necessary nor desirable to treat ADHD with medication though sometimes it is very useful. But medication should ALWAYS be paired with other interventions and therapy to work with the child.\n\nGood luck!
874364
Tourettes is a Neurological disorder in the brain.  It is not contagious.  The conventional wisdom is that it is hereditary, but there has been recent genetic research that may suggest otherwise. (I have the info, please let me know if you'd like it).\n\nThree is pretty early for symptoms to start, but not impossible.  My recommendation is keen observation, notes, and a video camera.  \n\nAn EEG is good, but not a determining factor in diagnosing Tourettes.  It will, however, rule out any seizure disorders, and that is important.  There is no "one" test for Tourettes.  It is diagnosed by observation in the Dr. office and your oral history.\nDO THIS:  While he is playing alone and there are minimal distractions, video tape him without him knowing.  This will prevent him from "hamming it up" for the camera.  This information will help tremendously in the diagnostic process.  Your notes and observations will also be vital to the process.  We did this (video tape) with our son when the tics and vocal tremors were very obvious, just in case they were not present during the prescribed day and time of the appointment. \n\nTourettes is difficult to diagnose in small children because it is difficult to know if the movements and/or sounds they are making are in their control.  And since he is so young, it would be difficult to ask him.  If you have referral a Pediatric Neurologist in your area, I would keep the appointment as an office/information visit.  Assuming the tics continue,  bring your video camera (to show that tape) and your husband with you.  For some reason, a Doctor will take a set of parents seriously and not attribute what you are saying to "a hysterical mom".   Start a relationship with this doctor.  This will help over the years.  \n\nABOVE ALL stay calm.  Having a child with Tourettes is not the worst thing in the world.  You will find this to be true when you spend any amount of time in a Pediatric Neurology waiting room.  And please ignore the stupid, uninformed, and rude answers that will come. Coprolalia (cursing) occurs in a VERY SMALL number of TS patients and is not a requirement for a diagnosis.\n\nIf your child has TS, the most important thing to do for him is to provide a safe, stress free (as much as possible) home environment where he is allowed to tic without comment from others.  Unconditional acceptance is imperative.\n\nWe got the diagnosis at age 9.  Symptoms really started to kick in at 7-8.  Little things started at 4.  He is now almost 12 and is doing great.  He is sweet, loving and a great kid.  He has a high IQ, plays chess, builds advanced Lego sets, makes stop-motion animation movies on his iMac and it artistically gifted.  I would not trade him for the world.  \n\nYou are blessed to have a Pediatrician who gives the referral to a Neurologist right away!  I had to switch pediatricians until someone listened!  My road to diagnosis was rocky.  I hope that my journey will be a help to you in yours.  Blessing and prayers for a good outcome.
139978
Here are some ideas from a parent of 2 children with autism and adhd. As for your child acting out in public,children with Adhd and Autism often have very, very short attention spans and prone to having sensory overload. When going out in public does he have something like a blanket that he can take along as a comfort measure? You might want to try  taking activities along for him to do (drawing, books,etc..) Avoid legos, they drive kids with autism and adhd up a wall!\nYour child may very well need medication. Ask you doctor about a cocktail of drugs. My son takes Luvox and Risperdal everyday. We can tell when he misses a dose! He get more aggressive, acts out, is hard to redirect.\nMay I suggest that the parents get on some sort of anti-depression medication. Having a special needs child can be VERY harrowing!!!\nIf you need any more help don't hesitate to ask. We can arrange a way to chat.
706379
Wow, that's a new one!  I have been doing research on Tourettes for the last two years.  I have never heard of nicotine for this.  Please document, as I like to stay current on all treatments, information, and developments.  \n\nThanks for the link, watson64
615936
There is no cure- only treatment.  Behavioral training, speech and occupational therapy, and parent education and support can often improve a child's problem behaviors, communication skills, and socialization. Medications are sometimes helpful as well. A child with autism responds best to a highly structured, specialized educational program tailored to his or her individual needs. However, specific treatment varies depending on the range of individual symptoms, which can combine in many different ways and change over time.
40565
Treat your child with a decent over the counter medication. \n\nIf more action is needed for this really rather mild concern, then contact the school's bosses (district HQ or school board, for example) and/or the county public health department.\n\nIf you are still unsatisfied, try a local news station or newspaper. \n\nI am unsure how big of a response you can expect from this however, so you may need to modify your expectations.