Is threr a way to prevent Zellweger Syndrome?
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Zellweger Synbdrome is a genetic disorder.  It is an autosomal recessive disorder due to defects in more than 13 genes encoding peroxin proteins \n\nYou may contact Kenneth Setchell for inclusion in the clinical trial described below.\n\nClinicalTrials.gov identifier  NCT00004442 \nKenneth Setchell   (513-636-4548) Children's Hospital Medical Center - Cincinnati, OH    is the principal investigator for a clinical trial to treat Zellweger Syndrome patients with cholic acid, chenodeoxycholic, and ursodeoxycholic acids
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My Dr. and I just discusses this last week. Not all people who go through that are going through it due to being lazy. I have limited things i can do as of exercise as i was a passenger in a car accident that almost broke my neck. My feet are bad and i can't walk much or use a tread mill.\n\nDr. talked about this due to trying to help me lower my blood pressure, diabetes, high cholestrol, ect.\n\n I will review all the info here and all the sites you listed and talk to my Dr. again. Thank you Ziggy for your information.
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Your main concern is sun exposure, aside from drowning, that is. Use a pediatric approved sunblock and use a floatation device, since the little one will be slippery!\n\nAge is irrelevent.
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It can be stopped with some minor laser surgery.\n\nCoach
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Consult to a doctor\n\nGood Luck
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i'll share something with u..drink luke warm water after take ur meal,eat spicy food,sour food n dont sleep after u eat..im ur mum case.the best way is always drink green tea.its reduse cholestrol faster n safe
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There's a water/alcohol/borax thighy called "Swim-Ear".  Put some drops inthe ear, I think.  Ask the pharmacist. (It's over the counter and cheap)
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it's a condition called funkitis... and I often suffer from it too... there is no known cure... we just have to hope that we never get so funky that it's fatal... but if you are half as funky as I am... I fear we're doomed...
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Poor thing. Hopefully the chemist is open by now. For the skin I used Aloe Vera Bio Active Gel on my kids, as well as calamine. Cool baths helped. Piriton for the itch. Not sure about the mouth, but you could try ice pops. And lots of calpol/nurofen of course. Hope he's over the worst soon. Hang on in there.
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Drinking more water and eating  a low  protein, low nitrogen, low sodium diet will prevent them from coming back. There is still some debate on what causes them exactly.
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The only way to prevent is by taking coumadine or wafarin.  The sticky platelets are caused by an error in the "coagulation cascade" -- there are 13 factors that impact coagulation, including calcium.  When one of the factors doesn't work properly, platelets can get sticky.  There can also be too many platelets in the blood, essentially causing a traffic jam or blood clot.  Without running the coagulation studies, or having more info, it's a little difficult to explain the "why" of it.  The important thing is that your son and husband take their medication **** and I CANNOT stress this enough **** get their levels checked regularly.  Blood thinners are insanely unstable, and the dose that works one day, may be too much the next.  Keep seeing the doctor, stay on top of this with the medications.  There is not a procedure that would "cure" this; there are some extreme cases where the people need to have platelet phoresis (a process in which the blood is run through a machine that removes the platelets and then the blood is put back into the person).  Good luck to you, and your family.
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Being in the med field this sounds strange for to me to tell someone else, but try not bathing in soap or any other substances. Just H20 and avoid being too clean, my niece has the same issues, and avoid clothing that rubs? as far as topical treatments i have a natural remidies book that ~I can't locate~ try health food stores, maybe something as simple as garlic? there are many foods that aide the body in homeostasis!
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Drink lots of water... try slippery elm, drink prune juice and avoid carbohydrates.
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Recomend he go see a good chiorpractor, they will work wonders very quickly.  Also, be sure he drinks lots of water.  Dehidration will cause it to be worse.  He can determine how much water to drink by dividing his weight by 2.  He should drink that number of ounces of water every day to help.  Hope he gets better soon.
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Try a liver cleansing diet and avoid alcohol.  Keep your skin clean and moisturized avoid high fat and sugar.
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i really don't think there is a prevention for it my husband has had 2 he eats only baked food and sugar free food he is a diabetic as well he doesn't eat salt no soft drinks or sweet tea he doesn't drink but smokes he is 53 yrs old  he has stints in his heart and the lower part of his heart is not pumping blood at all which leaves him wide open for another heart attack he takes plavix with an aspirin every morning and meds for his cholesterol we have taken every precaution to prevent this but it hasn't worked
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I just emailed you! Lol! I have a 7 year old with autism who is on a gluten free/casein free diet. He is EXTREMELY hyperactive. Before I put him on the diet (he was almost 3) he would be even MORE hyper after eating foods with milk, and would have these crazy laughing spells. He already bounces off the walls, but it was obviously more so with the milk products, not to mention the stools he would have after eating them. I was changing like 10 pull ups a day. He would not even touch milk after I took him off of the bottle but he was addicted to cheese, and cereals/crackers with wheat in them.  AFTER I put him on the diet, within a matter of only a couple of weeks, he just stopped peeing on himself. Period, including at night. So to me I related that directly to the diet. I have wanted to give up on the diet sometimes, but you know, every time I let him have some foods which he normally doesn't have, he acts even more hyper than usual, and if you knew my son you would find that hard to believe! Lol! I have considered Feingold as well as vitamin therapy(B6 and Magnesium), but with my financial situation and stress level, any more changes would just be really hard for me to enforce right now. I also had completely takem him off of sugar for a long time, but I have caved and so he has it every now and then. I can't really tell if it affects his behavior or not. I am still looking for a solution that works, I am just kind of burned out by the trial and error of it all!