What would you do if you found out your baby was severely deformed/disabled for life?
396245
Wow! Myself, I don't know how should I react with that situation, but surelly what should I DO. But anyway, let me tell you what my SISTER DID.\n\nBut first, I think that when you have sex with someone, you must be ready for its consequences. If you are not ready for receiving and dealing with whatever news come after the sex act about a disease, and a non planned child, DON'T HAVE SEX, PERIOD!\n\nMy sister got pregnant, she planned this child with her husband. Well, at her 5th or 6th month of pregnancy, doctors discovered that my nephew had SEVERAL strange/big problems, which between them was deformation, problems in his vital organs (stomach, liver, lungs, pancreas), and other brain/mental syndromes. Two doctors told my sister to ABORT, they offered her to make it for free also. But she doesn't agreed.\n\nWell, we believe in God and we placed all in His hands. People around the world also helped us to pray, and today, my nephew is 4 years old, he is AWESOMELY SMART, and he has no problem at all. But yes, God let on His body a mark of was He did with him, and is that all his internal organs are twisted horizontally (all what should be in the right side are in the left, and vice verse).\n\nSo, a person that decides to abort or not to take care about his child, doesn't deserve to even have a chance to live (THE SAME DECISION THAT HE/SHE WANTS TO TAKE: KILL [ABORT]). It is not easy, but if you get focused, and commit in love, your life will be great and honorable!
773406
I doubt you are going to devine an answer to such a complicated issue on this or any forum.  First of all no one can predict the future.  Secondly the child apparently hasn't yet been diagnosed completely.  Instead of fishing around for answers that no one can possibly provide, offer your complete support to the family both the parents and children there in.\nThese questions serve no good purpose and as I mentioned aren't going to yield palpable answers.
123614
It's a condition called "spina bifida" and it varies in severity.  Some people born with this defect go on to live fairly normal lives while others are profoundly disabled.  The doc who said it's nothing to worry about was probably correct, but there's nothing wrong with getting a second opinion.  The opening might possibly be a portal for infection, but most physicians are familiar enough with the condition that they can be accurate in their estimate of the level of such a risk.  If the parents do choose to have further studies done, they should be aware that MRI is expensive, and depending on circumstances, their insurance carrier may decline the cost.  Best bet - have a second pediatrician examine the child and ask him/her to confirm or contest the first doctor's prognosis.  Don't forget, all of us have an odd little hole in our persons that, in rare instances, can be a problem.  It's called the bellybutton.  I suspect the condition in the child in question is no more serious than is your own bellybutton.
524010
Is this YOUR BABY we're talking about? Please, don't put his/her health in the hands of an amateur forum. Respect his/her mind and body. You must consult a doctor for diagnosis and treatment. (I am a physician myself and this is the best advice I can possibly give you.)
300895
Sounds like a lot.  If it is life or death, what choice do you have.  Otherwise, it might be time to ask for a second opinion.
954144
Do not take any homeopathic or over the counter meds or supplements except a basic vitamin pill without checking with your doctor first!\n\nTiny amounts of substances that are fine for us can create horrific birth defects or organ damage in a 2 week old fetus.\n\nYou'd never forgive yourself if your baby was born deformed or with a health problem.
800298
Yes NHS is crap, similar experience here and I lost my little girl, stillborn at 40 weeks, she had only been dead a week, cord wrapped around her neck. I'd visited my doctor and gynaecologist earlier in the week and they never picked up on it. I knew she'd stopped moving as much but stepmum said it was the calm before the storm. Took me in to start me off, did a scan and told me she was dead, and I'd have to give birth naturally. Sheer hell I'll never forget it. So get your husband to kick but as much as he has to till they take notice. Be careful and good luck. X
964116
I'm with Lita. This isn't funny or anything to joke about. This could be your babys life. Call the doc.
401628
like the other answers yes and no  some are born with disabilities and parents may not realise it til  a milestone is missed some can have a serious injury or illness that can make them special needs . and both the former and the latter will call for  special education.  environment can play a part in it or can make the disability seem worse .now i have to kids who r high functioning autistics and mentally retarded and we do not know where it came from or how it happened which unfortunatly is the way with lots of parents of special needs children. and as to the dropping ur baby on its head if this has happened get them checked out and if it wasnt ur kid let the parents know cuz yes that can have harmful (and /or deadly)side effects on the kid.and most of the special needs kids can need a variety of services for along time and some will never be able to live by themselves.
320213
You are obviously looking for the best advice possible, so please if you can do anything to rectify this situation then do it and as soon as possible. I am so proud of you even though I dont know you, for recognising that this man is in difficulty, please go to someone who can help him, go to his or indeed your Dr. and seek immediate advice. This is wrong, you know it I know it and I am sure every other user of this site will see it for what it is.  It is abuse of the worst kind.  I have a son with special needs, and this is my worst nightmare. I applaud your concern, now please get help for him....
909624
If I could keep the years I have already had and swap now I would swap with my friends little boy. He died as soon as he was born and never got a chance at life. So I would give him what I have left if he wants it
1060898
You are fortunate in a way that it was seen now. Most kids get diagnosed at age 11-14.  There are a number of things that can be done.  \nSurgery is a choice when the others are not giving proper results.  The people that I know who have had surgery have had the fusion of multiple vertebrae.  This stops the progression at that location, but it is one that left them on their back for an extended period of time and in a cast for several months.  Long term outcomes depend on the person and the amount of fusion that was done, but you can expect problems above and below the fusion area to develop later in life.  Surgery of this sort will not be an option for your son at this time.\nThe bracing and body jackets have come a long way in the last number of years.  This is one place to look at this point.  The aim is to keep the spine as straight as possible so that it doesn't grow up "bent".\nThere are a number of exercises that can be done to strengthen the back muscles to hold the back straight.\nThe biggest thing is to help keep your son's spine mobile and to encourage him to stand straight.\nIf scoliosis is properly taken care of, you can expect a normal life with less pain and mobility issues than otherwise.\nAll of this information is available from your doctor, physiotherapist or orthotist.
382121
I would talk to her about it. I think it's cruel to put his hopes up like that. I would tell him he is limited but so are many other people and that doesn't mean he can't live a very normal life. But anything? no
234787
When my son was born he became severely ill. He was taken to children's for surgery. I had just miscarried before I got pregnant with him and he was kind of my last hope. We felt awful when he didn't recover right away like they said he would. He lost a lot of weight before he started to come around, and we were there, in the hospital, for about a week and a half. Our biggest inspiration was the other parents we saw and talked too. Some had been there months waiting on transplants that probably wouldn't come. Some knew they would never take their children home, and some helped their children plan their own funerals. What was a week and a half to all that. The point is there is always someone worse off then you. You have your life and you should enjoy it. You never know when your time is up, so you better live now.
405198
i would suggest consulting with a genetic counselor to discuss your particular situation. see info below...
533459
better get an EPT and find out...sounds like there is a good chance of it. \nour baby is the joy of our life, if she is she needs to know asap so she can start taking prenatel vitamins and taking good care of her self. \nBest Wishes...this is a big deal and really serious. be positive and know that each and everyone of us are here because of the same condition. it will all work out one way or another. stay positive! Life is a gift...this could be the most important thing she ever does. Do it right and learn as much as you can together. your help is going to mean a lot to her, plus you will be an Auntie!!!!
369120
I can tell you are already worried. Yes get him to a doctor. Babies are pretty resilient, but you don't want to mess around with this. He could have a blood clot or something if he ruptured any blood vessels when he fell. Better to be safe than sorry later. Nobody will fault you for taking him to the doctor, and little ones that age fall over often when trying to crawl or sit-up. Don't worry that anyone will think you were beating your baby. Just get him to a doctor.