does any have children/child with coeliastic disease? if so how did u notice it and wot did dr do?
361766
Hi Duttie.  I have had Celiac Disease (CD) my entire life (I am 52 years old).  Sadly, it was not properly diagnosed until last year (had to figure it out myself).\n\nCeliac Disease is an autoimmune disease that damages the lining of the small intestine.  This is the part of the gut where most of your digestion and absorption of nutrients occurs.\n\nCD is caused by an allergic reaction to certain proteins in grains (wheat, rye and barley) called glutens/gliadins.  The only treatment is total avoidance of these foods in the diet.\n\nCD can cause a wide variety of symptoms.  The disease is now known to occur in about 1 person in 100, but here in the U.S. only about 3% of people with the disease get properly diagnosed (me, for example).  The classic symptoms include diarrhea and weight loss, but these are actually not the most common symptoms.  Unexplained fatigue is the most common symptom.  Many patients are actually over weight. Many patients with CD get the 'label' of Irritable Bowel Syndrome (IBS).  Any time a doctor says this to a patient and the doctor has not ruled out CD by proper testing, then it is my professional opinion that the doctor is incompetent.\n\nLiver problems, other allergies, skin problems, brain dysfunction, kidney stones, virtually any organ system can be affected by this disease.\n\nAs a child I had a lot of problems with allergies, chronic ear infections, bladder problems and eventually bowel problems/diarrhea.  The medical docs 'blamed me' for these problems.  As an adult, I got the useless label of IBS.  Note: IBS is not a diagnosis (it does not tell you what is wrong) - it is a LABEL for unexplained bowel problems.\n\nHope this is helpful to you and your children.  CD does tend to run in the family.  Researchers recommend testing for close relatives if someone in the family is diagnosed with this disease.\n\nBest wishes and good luck!
208526
Most of the information in here is correct. Please do not self diagnose yourself with this disease however; it will make it hard to get an offical diagnosis. The only way to have it offically diagnosed is via Endoscopy with Duodenal Biopsy to confirm via villi. There are lab titers that can be drawn such as, TTG, IGA, IGG and Serum IGA to determine if you are in danger of having this disease. The TTG is the most common indicator of the disease. The IGG can be falsely positive in up to 3/4 of the population and even higher in other races. Prometheus Labs out of CA does a celiac panel that is pretty popular amongst providers; but can be spendy for the patient. Prometheus will also do a celiac gene test, to see if the pt has the gene present to have the disease. The Gliadin antibodies are the strongest lab markers today for tracing the possibility of having the disease. Also, Celiac Disease is also VERY common in pt's with Down Syndrome.
277628
A friend of mine was diagnosed about 3 years ago. The best thing she did was saw a nutritionist. There are a lot of things listed on food labels that one may not recognize as containing gluten. Also check out a local support group. They can point you towards restaurants in the area with gluten-free menus...Outback chains have a great gluten-free menu.
108032
I think you should seek a second opinion.  Sometimes pediatricians are quick to dismiss b/c they see so many of the same things all the time.  It could be something more serious (though I have no idea).  A friend of mine is in the process of getting over an extremely rare disease, and he wasn't properly diagnosed until he was taken to one of the best hospitals in the country.  Sometimes it takes some insistence and a clean pair of eyes to get to the root of the problem.  Best of luck with your kids!
456401
HI. My son was diagnosed with MODY 3.  You are right there is not a lot of comprehensive information.  What i can tell you is what my late husband experienced, but it's not pleasant.  My son is currenly 13 years old, I don't expect him to show symptoms until he is 16, but we keep him checked.  My husband was diagnosed with diabetes at the age of 24, he had it unbeknownst to him since he was about 17, he did not do the greatest job taking care of it, he had multiple eye surgerys and was diagnosed with kidney failure at the age of 31.  He was on dialysis for 3 years and died on his 35th birthday. It is a very tragic tale, and I am going to do everything I can to keep my son from going that same route.  My late husband was not a drinker, not a smoker and not over weight, but his diabetes was very progressive and aggressive. All I ask is that you PLEASE take this very seriously and take care of yourself.  If you want to chat more on this..I'd love to hear from you.
282229
Celiac disease is a disorder that causes problems in your intestines when you eat gluten, which is in wheat, rye, barley and oats. Gluten is like a poison to people with celiac disease.\n\nI'm guessing this is what you were talking about,  If so you can click on the link below for further information:
91475
Are you kiding?  I have three children.  I know that the Flying Spaghetti Monster exists.  He's left his foot prints all over my kitchen.lol
1034843
Oh, I am so sorry for you both. I would go to a naturopathic doctor and get her off all that stuff. You can get rid of this condition but because of her age, I hesitate to give you too much info. Her body is building mucus and her adrenal glands are probably stressed and her poor liver is trying to process all that medication. Doctors and meds are good but if you aren't getting results, you need to find a reputable ND. In a short time she should be completely well with no meds. Please look into this. My daughter was on similar meds when she was young and it really played havoc with her spleen and liver. It took 3 months with an ND and she was finally well. Because of all the drugs, she developed a horrible case of eczema. It almost covered her whole body! It is completely gone. Yes, there is a cure for eczema. I had it too and we have been free of it for 9 years. I had allergies and asthma and that is gone as well. My daughter is 20 and very healthy now.\n\nA good chiroprator with herbal knowledge might be your answer too. There are other choices.
481682
First of all, you or your loved one are not alone. There are many resources out there for celiac disease, including formal associations, information Web sites, newsletters and support groups.\n\nCeliac disease, also known as gluten intolerance, is a genetic disorder that affects 1 in 1,331 Americans. Symptoms of celiac disease can range from the classic features, such as diarrhea, weight loss, and malnutrition, to latent symptoms such as isolated nutrient deficiencies but no gastrointestinal symptoms. (celiac.com)\n\nThe following organizations can provide information and resources on celiac disease:\n\nGluten-Intolerance Group\n15110 10th Avenue, SW, Suite A\nSeattle, WA 98166-1820\n(206) 246-6652\nwww.gluten.net\n\nCeliac Disease Foundation\n13251 Ventura Blvd, Suite #1\nStudio City, CA 91604-1838\n(818) 990-2354\nwww.celiac.org\n\nCeliac Sprue Association/United States of America, Inc.\nPO Box 31700\nOmaha, NE 68131\n(402) 558-0600\nwww.csaceliacs.org\n\nOTHER USEFUL SITES\n\nwww.celiac.com\nInformation, support groups, recipes, product information, reference articles\n\nNational Institutes of Health has information on celiac disease and gluten-free diet. See links below.\n\nAdditional resources can be found through local support groups and libraries, reliable internet sites, and your healthcare provider.\n\n\nHope this helps,\nNewarview
370654
i guess it depends. how did you arrive at the conclusion that this little one has ADHD? is this only one doctor's opinion? and have you come to this only after pursuing a new diet for her? (lots of parents say that diet can help quite a bit--you'll have to google ADHD and Diet.) \n\nand why does this doctor think she has ADHD? has he/she done a battery of tests on her, or is this based on a simple visit? what has gotten you to this point? most children aren't diagnosed with ADHD until they become a disruptive presence in a classroom, so what are this little girl's symptoms? did you get to this because you were fed up with her behavior and the doctor is trying to make things better for you? \n\nhere's my take on it: i have taught in schools with kids diagnosed ADHD. some of them i believe truly had a chemical imbalance, and the drug worked on them. but most of them were having a range of behaviors that were disruptive, but mostly because of the environment. one study i read about said that ADHD symptoms might disappear for boys who take a 40-minute walk with their fathers in the woods before school. so it it really that this girl is in an environment that doesn't suit her temperament, or is being expected to behave contrary to her nature because of the adults around her? \n\nif you are having doubts about medicating your child, then you obviously have reservations. and thus, perhaps you shouldn't. i would certainly say that if it were my 3-yr old, i would be pursuing all kinds of research on alternatives to try first. because drugs should only be because nothing else works. if i've tried a few different diets suggested by researchers and given it a good long time to work, if i've tried hard to be more patient, and i've worked on adjusting her environment, if i've asked her what she thinks about it, and i've experimented with behavior management--then i'd consider pills. but not before.
477785
You need to be tested for Celiac Disease (CD).  This is a very common condition (1 in 100 people have it).  But it is often not 'recognised' by doctors and therefore, is rarely diagnosed (in the U.S. doctors only diagnose it in 1 in 3500 people, whichi is only 3% of the people with the disease).\n\nCeliac disease is an autoimmnune disease that causes serious damage to the lining of the small intestine.  The small intestine is where most of the body's digestion and nutrient absorption occurs.  Damage here leads to the 'odd' combination of malabsorption of basic nutrients (vitamins, minerals, amino acids) and hyperabsorption of bacteria, toxins, and food particles.  The result can be a whole variety of problems that can affect almost any organ of the body.  A particular form of CD causes a skin rash called "Dermatitis Herpetiformis".\n\nCeliac disease is CAUSED by an allergic reaction to the proteins in WHEAT, Rye and Barley.\n\nYour doctor may know very little about this disease (as the statistics above indicate).  In the last few years, many major medical journals have published review articles on CD to try to educate the medical profession (sadly, most docs do not read their own medical literature).  If your doctor 'resists' testing you for CD I would suggest two courses of action:\n1) DEMAND a referral to a doctor that SPECIALIZES in Celiac Disease, and\n2) DEMAND that your doctor read the entire April 2005 supplement of the medical journal "Gastroenterology".  This entire issue consists of review papers on CD.\n\nBest wishes and good luck!
674410
check this site out\n\nhttp://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
894027
I have had this disease for over 30 years... it was a gift from my mom who has had it for 65+ years.  The only complication that i recently have is weight gain.(due to taking insulin which is a protein for so long)  This is not the worse disease to have.  When I was first diagnosed the only sugar free item was TAB soda..... so i did stand out alot being "different"\nPlease go to the doctors with your grand child and learn as much as possible.  If she eats 5 small meals a day... tests her blood 4 or more times, exercises, visits her dr. every 3 months.... she will live a long healthy life.  Make sure she stays away from splenda items... this is a sugar.  Eating right and exercising is not a curse... get the whole family to eat the diabetic diet.....and play together..... let her teach you how to test the blood...have her test your blood.. see who has the best #\nThere are support groups for parents and children..... talk to her dr about where and when..... so she won't feel so "different" \nYou are a great grand parent.  I understand your worry... the main thing is to accept her.... go out for a s/f ice cream one night and talk to her about things... but keep an eye on her blood sugar levels... that is the most important...... You will be fine....
472759
Well my mother is a celiac. Basically it is an intolerance to gluten, which is a protein found in most wheats and starch. The villi (nutrient absorption organs) within your bowel cannt absorb it and you may get severe bloating, pains, cramps, diaroheaor headcahe etc. Malnurtrition is also very common. If the diet is not adhered to, it can lead to Lymphoma of the bowel. I have a stack of info regarding this so feel free to email me:\nsmileitsleah@yahoo.com.au
986631
Hi, he might be hyper-sensitive to a lot of things that enter his stomach, have you tried feeding him shredded wheat in the morning? It is natural, he will like it and the stools should firm up, if you do not feel like your sons doc. was the right guy for him, go to another pediatrician, get a full set of labs done on him, if the problem is in his body, it will most likely show up in his blood work.\nDo a complete panel would be my advise.\nGood luck, God Bless and happy Thanksgiving
1118367
http://www.celiac.com/index.html\nhttp://dmoz.org/Health/Conditions_and_Diseases/Digestive_Disorders/Intestinal/Celiac_Disease/
695918
What is her diet? Lifestyle? Does your daughter have a high level of stress? Is her immune system intact? There are multiple reasons she was diagnosed with PUD, important point is to have her treated with antibiotics which could possibly clear up her digestive problems.