Can somebody help me to find out what alternative methods to fight lupus are? Where to look for aome help?
357495
http://www.mayoclinic.com/health/lupus/DS00115
1060579
The first link below is very informative, the second has a forum that should link you with others dealing with this disease, although it is based in the UK.  The third is listed because your disease seems to occur frequently with ulcerative colitis, and the Crohn's Colitis organizations are widespread and quite effective ... perhaps your local branch can connect you with a support group in your area.  You might also find information at your nearest transplant center.\n\nGood for you!!! that you are proactive and getting yourself educated.  Best wishes for your journey.
970415
A good family friend of our also has systemic lupus.  She has not really found a way to "combat" the fatigue that she experienced.  She tries to make sure that she does not "over do it" and that she makes sure that she gives herself plenty of time to rest.  She finds that she does feel better after mild/moderate exercise...but she has learned what her limits are and that when she needs to rest, she knows that she has to.  \nYou might want to try something along the lines of Yoga.  It might help your endurance a bit and it will help relax you.  You should check out your local YMCA or YWCA and see what they offer.  I think that you could benefit from any type of mild exercise.  My friend sure does!
657253
If you have been recently diagnosed with Lupus or have someone close to you that has been you may have many questions.  Find out if there is a support group in your area.  If not there are multiple resources (as listed by an earlier answer).\n\nTo "Live" with lupus is a choice quite simply... TO LIVE... the symptoms can be managed somewhat.  The key to it all is to find a doctor you are comfortable with.  Keep your appointments... treat infections and illness ASAP.  DO not try to be uberperson... rest when you need to rest, eat healthy, exercise whenever you can tolerate it.  The world will have to get with the program.
183504
Hi. I have systemic lupus and my pain sort of varies. Sometimes I feel really good. Sometimes I feel horrible. I have aching that is sometimes accompanied by a low fever. I take Ibuprofen and go to bed. Rest is one of the best things for Lupus. The joints that it seems to affect the most on me is my hip, knee, and shoulders.\nHope this helps :-)
925076
its a antibody also used in Rheumatoid and some malignancies, should hopefully help you with SLE too, there are lots of hits on yahoo if you want to learn about this drug, good luck
317264
If I couldn't walk, I would be worried.  Sounds great that the lupus came back negative, but what is next?  If the DR is not doing more test, or taking another coarse of action, maybe a second opinion is in order!
563620
Yeah, my friend from HS had Lupus as did my suitemate in college.  Check out the following sites for more info.  Be strong!  =)
650717
I've had arthritis for about 15 years now and it's miserable. I try to take hot baths a couple of nights a week, unfortunately take pain killers and Conair has an awesome pad you put in your tub that makes it like a jacuzzi - does wonders and you can get it at Sears. Have you tried Glucosamine? The only time it really ruins my activities is if a storm is coming in. I can tell the minute the barometric pressure changes. Good Luck and God Bless both of you.I understand.
444875
Turmeric is a natural anti-inflammatory..I have just found out that yucca is great for arthritis--breaks up calcium deposits and is anti-inflammatory..A natural healer I just saw prescribed large doses (for me 9 caps and 6 of nature's sunshine calcium with vit D --I am overweight so he may have used more??) for rheumatoid arthritis.\n\n.Please use caution with prescription anti-inflammatories..My mother got permanent kidney damage from taking Motrin for arthritis and is now dying and on dialysis.  \n\nAlso try raw apple cider vinegar in sea salt water or with honey (you may not be able to use honey being diabetic)and water --a few spoons and drink few times a day..\n\nI have heard a vegan diet will reverse arthritis.  Also see Dr. Richard Schulze's incurable (save your life) program..it has cured diabetes according to testimonials.  I definitely believe in it.
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Do check out all the websites listed and keep looking, as it's not very common so it's hard to find information on it.\n\nDespite what you might read, it is it's own autoimmune disease, and it should not be confused for UCTD (Undifferentiated Connective Tissue Disease).  MCTD is diagnosed when there is a positive and high value for one specific blood test - the anti-RNP.  This should also be accompanied by a high positive ANA result as well - generally speckled pattern.  While some people with lupus have a positive anti-RNP, it is a diagnosing criteria for MCTD.\n\nMCTD can have symptoms of 3 other autoimmune diseases making it a good impersonator of the others and difficult to diagnose - Lupus, Scleroderma, and Polymiositis.  It is HIGHLY common (estimates I've read say about 95%) for MCTD diagnosed patients to develop Raynaud's Syndrome.  I developed it about 6 mo. after my initial diagnosis.  Also arthralgia or arthritis are very common, as with Lupus.\n\nAlso common with MCTD is esophogial issues (related to polymiositis) as well as pleuresy related to the lungs and fluid build up around the heart as well.\n\nIn general the life expectancy and overall symptoms of MCTD are similar to Lupus, but tend to be slightly better outcomes overall.\n\nFeel free to contact me if you have any more questions, as I have had to find all of this out on my own and have been educating my family and friends about this, Lupus, and other autoimmune disorders.  It was good because about a year ago, my aunt was diagnosed with RA and I was able to help out some in explaining a few things and being supportive.\n\nIf you or someone you know has been diagnosed with this, or the doctors believe you/they might have this, it's important to know that it's not worth being scared over.  It's manageable and treatable with medications and general observance.  Also I have found out that just knowing is far better than wondering.  While I still have some symptoms daily, my medications have made them unnoticeable to most people and I'm able to continue to do most of the things I've been doing.  And sometimes I honestly don't notice anything or much at all - you just get used to some of the little things and realize it's life as normal.  :)
828500
Start with this, I have never heard anything about hemp seed; sounds like quack practice. mcc_md@yahoo.com for further info.\n\nTREATMENT OF SLE — Although there is no "cure" for SLE, a variety of general and specific treatments and strategies to reduce symptoms, limit damage to vital organs, and reduce the risk of recurrence are available.\n\nGeneral treatment considerations — Although specific drugs are used for particular organs, a number of general issues are applicable to every person with SLE. Diet and nutrition, exercise, and preventive measures including immunizations, avoiding certain medications, and issues related to pregnancy are among the most important general issues for patients with SLE. (See "Overview of the therapy and prognosis of systemic lupus erythematosus in adults").\n\nDiet and nutrition — It is not well known what the effect of dietary modification is in SLE. One study reported that frequent intake of meat was associated with more active and progressive disease. In contrast, dietary fish oil has been reported to be beneficial. These findings await confirmation, however, and at present we do not recommend fish oil supplements in the treatment of SLE.\n\nA conservative approach is a balanced diet consisting of carbohydrates, proteins, and fats. However, the diet should be modified based upon disease activity and the response to therapy:\n\nPatients with active inflammatory disease and fever may require an increase in caloric intake. \nCorticosteroids (prednisone and others) enhance appetite, resulting in potentially significant weight gain. Hunger can be somewhat lessened by the ingestion of water, antacids, histamine H2 blockers (eg, zantac), and/or proton-pump inhibitors (eg, prilosec). If weight gain is significant, however, patients should follow a low calorie diet. \nSignificant increases in blood levels of fat and cholesterol may occur (hyperlipidemia). Patients with hyperlipidemia should be encouraged to eat a low fat diet. A lipid-lowering agent should be considered if cholesterol levels remain high despite a change in diet. \nVitamins are rarely needed with a balanced diet. However, a daily multivitamin should be taken by patients who are not able to obtain an adequate diet or who are dieting to lose weight. \nPatients on long term steroids and postmenopausal women should take 400 to 800 units of Vitamin D plus 1000 to 1500 mg of calcium per day to minimize the degree of bone loss. \nIt is important to note that herbal supplements are of unproven benefit, and may even cause harm.\n\nExercise — Inactivity produced by acute illness causes a rapid loss of muscle mass and stamina. As a result, fatigue may follow even after the illness subsides. This can usually be treated with graded exercise. In selected cases that do not respond to regular exercise, relief of fatigue can sometimes be obtained with prednisone or antimalarials (hydroxychloroquine or chloroquine).\n\nImmunizations — Influenza vaccine is safe and effective; pneumococcal vaccine is also safe but fewer antibodies are created in people with SLE than in those without the disease. People whose immune systems are weakened should not receive live vaccines. The efficacy and safety of hepatitis B vaccination has not been determined.\n\nAvoiding certain medications — Sulfonamides and penicillin (but not the synthetic penicillins) may cause exacerbations of SLE and should therefore be avoided. In contrast, medications that cause drug-induced lupus, such as procainamide, hydralazine, and isoniazid do not cause exacerbations of SLE and may be used if otherwise needed.\n\nPregnancy and contraception — Pregnancy should be avoided during active disease (especially in women who have significant organ impairment) due to the high risk of miscarriage. Women with SLE should not become pregnant until the disease has been controlled adequately for at least six months.\n\nOral contraceptives containing high dose estrogens c
248029
try www.sciencedaily.com and search the disease. this are results of clinical trials. maybe you can find something. in  portugal we take aloe vera from a monastery franciscan and eat fiber.
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There are many alternative cures, the best way to find out about what is out there is to keep searching. I found a great web site just follow the link there is loads of info.
580103
If you meant hurt, yes Lupus can cause muscle pain /aches and arthritis. The medical literature does not specifically talk about back pain.
445263
I suffer from the effects of lupus also. Your energy level is a hard thing to deal with, believe me I know. I personally do what I can when I am able. Have you talked with your doctor about it? My doctor gave me this same advice. "Do what you can when your level is up and rest when you need to". You have to allow your body to catch up. Sometimes when I over do it I end up in bed for days. Each person is different. I hope you have a good relationship with your doctor or doctors like in my case. So, when things change with your body's' health you can get the best advice for you. I would love to talk sometime, since we have the same disease. I know from my own experience that talking helps.
365023
Take a look at this on WebMD http://www.webmd.com/hw/lupus/hw123406.asp