does anyone know what you do when you have sarcoidosis,please, need help?
140459
Sarcoidosis involves inflammation that produces tiny lumps of cells in various organs in your body. The lumps are called granulomas (gran"u-lo'mahs) because they look like grains of sugar or sand. They are very small and can be seen only with a microscope. These tiny granulomas can grow and clump together, making many large and small groups of lumps. If many granulomas form in an organ, they can affect how the organ works. This can cause symptoms of sarcoidosis. Sarcoidosis can occur in almost any part of your body, although it usually affects some organs more than others. It usually starts in one of two places: \nLungs \nLymph nodes, especially the lymph nodes in your chest cavity. \nSarcoidosis also often affects your: \nSkin,Eyes,Liver. \nLess often, sarcoidosis affects your: \nSpleen,Brain,Nerves,Heart,Tear glands,Salivary glands and \nBones and joints. \nSarcoidosis almost always occurs in more than one organ at a time. \nSarcoidosis is not a form of cancer. \nThere is no known way to prevent sarcoidosis. \nSarcoidosis was once thought to be an uncommon condition. It's now known to affect tens of thousands of people throughout the United States. Because many people who have sarcoidosis have no symptoms, it's hard to know how many people have the condition.\nThe goals of treatment are to: \n\nImprove how the organs affected by sarcoidosis work \nRelieve symptoms \nShrink the granulomas. \nTreatment may shrink the granulomas and even cause them to disappear, but this may take many months. If scars have formed, treatment may not help, and you may have ongoing symptoms. \nYour treatment depends on: \nWhat symptoms you have \nHow severe your symptoms are.\nWhether any of your vital organs (e.g., your lungs, eyes, heart, or brain) are affected \nHow the organ is affected. \nSome organs must be treated, regardless of your symptoms. Others may not need to be treated. Usually, if you don't have symptoms, you don't need treatment, and you probably will recover in time. \nThe main treatment for sarcoidosis is prednisone. Prednisone is a corticosteroid, or anti-inflammatory drug. Sometimes it is used with other drugs. Sometimes other corticosteroids are used.
258257
Two years ago, I was diagnosed with possible lymphoma.  I had a ct guided biopsy that was inconclusive - no cancer.  After they surgically removed a lymph node, they were able to tell that it was sarcoidosis.  I wish I didn't have a surgery scar on my abdomen, but it is better than cancer.  You'll probably have to let them cut a lymph node out to biopsy it.  I was treated with steroids for about 3 months and I'm currently symptom free.  Good luck!
95837
You may have got to much of it in your system and never quite recovered because it trying to over power your ammune system right now, and a year is way too long to have a "cough". You need to go to the doctor if you already haven't, and don't rely on any over the counter medicine to help it, depending on what it really is it could make it worse.
1070638
Hey Sam, I have had crohn's for 15 + yrs. I know how you feel. Those who have never had this disease will not. I have tried probiotics, aloe vera juice, fish oil, jordan rubins program, you name it its been through my system (not always pleasantly). I am currently on Remicade and have been for over a year. It has put me into remission. I also believe it is an auto immune disease whether caused by man or environment I'm not sure. I have had many days where I feel like crap & often have deep thoughts of this disease. I do know hereditary is a factor as I can prove by most of my relation having ms, ra, lupus & crohn's. Do you have a good dr? If not find one even one who specializes in homeopathy can help. I wish you luck in finding a miracle we all are looking for!
6126
LISTEN TO YOUR BODY.\n\nI have a HORRIBLE cold right now (why else would I be on this site?!) and I realized that this is the one time I feel like my body has control over me, not the other way around. And it's probably because I wasn't taking good enough care of it to keep it going like I was!\n\nThe two most important things you can do are (1) SLEEP, and (2) DRINK...a LOT. I mean like there will be no water tomorrow. If you're like me, you probably get a fourth of what you're supposed to each day. Which means now is the time to make up, because your body is punishing you. :-)\n\nAside from that, take vitamins (that, again, you should be taking every day). Boost up your immune system with things like Vitamin C (OJ!), Zinc, and Selenium. Go with the Nature's Way echinacea if you would like, but make sure to give your doctor's recommendation dibs.\n\nAlso, stay away from work, school, or other places where you might spread your ickyness. Not for too long, but remember there are other people out there (people with kids!) who will be very unhappy with you if you cramp their style by getting them sick.\n\nKeep the foods you eat pretty bland (is this the rationale behind chicken soup and crackers?) so that you don't put your digestive system through the ringer. The key is nice 'n easy.\n\nI am not sure of this, but I was always told to stay away from dairy products (milk, cheese, etc) as they contribute to the production of phlegm. I'm in the draining process now and don't need any more mucus, thank you.\n\nTake the time (when you're not sleeping) to catch up with movies, books, or online shopping (my personal favorite!) to keep yourself indoors. Try to keep your physical activity to a minimum, but depending on how severe your cold is, this might not be a problem. My body protests every time I try to climb a flight of stairs (and I live on the 3rd floor!) so taking it easy is not difficult for me.\n\nThis is just me, but I like to stay away from over-the-counter medication (unless I need it to sleep at night - NyQuil is my legal drug) because I think I can better gauge if I'm getting better without it.\n\nGood luck and feel better!
78674
Breathe in lavender oil, it can really help, now I've helped you can you help me? Click on my name and anserw my question please!!!
1044867
I can't answer your question.  No one can.  For some people, it goes completely away and never comes back.  For others, it comes and goes for the rest of our lives.  I have had it for 5 years now.  I have been totally disabled for 3 years.  Mine has gotten steadily worse despite very agressive treatments.  I am on 2 different chemotherapies right now. I have failed a half dozen drugs already.  I am on oxygen 24x7 and it is at stage 3 in my lungs.  I am still on Prednisone, despite many attempts to wean off.  I wish I had good news for you.  There are very good support groups on msn groups and yahoo groups.  Search for sarcoidosis and you will find them.  There is actually good news - you may be one of the lucky ones that gets better and never looks back.  God Bless
746938
defenatly take someone with you.  i've told this to someone else in another question, but i stand by it, chew gum.  it sounds weird but doing something with your mouth is calming.  don't look at the needle whatever you do.  focus on something on the wall.  theres usually a poster in the room.  read that.  i really hope everything goes well and don't forget to breath.
267928
EITHER TAKE OFF WORK OR GO VISIT THE DOCTOR.  SOME THINGS YOU HAVE TO SEE THE DOCTOR FOR.  YOUR BODY IS YOUR TEMPLE, TAKE CARE OF IT.
287214
You are a hypochondriac, go to your doctor and tell him/her what happens to you maybe he/she will be able to refer you to someone who can help.
816614
Deane,\n\nI am single and have systemic lupus. It causes pain and fatigue that come and go, and you never know when you just can't stand or walk anymore. I lost both my jobs because of it. It is hard when people ask what "you do." I now answer, I am a human "being" not a human "doing." \n\nWhen our identity is wrapped up in what we do, and then what we do is taken away there is a period of grieving. All the stages of grieving for a dead person come into play, but we are here and grieving for who we used to be. Truth is, we are the same person. And everyone is going to face physical detioration and death. We just got to do it a little earlier. So be angry and sad and hopeless. Then try changing how you think. I am not saying be a Polyanna and say, "OOOOOOOOOO I am so glad I have this and I don't have leprosy!" That is just silly. But begin to focus on what you can still do.\n\nAs far as relationships go, I believe it is best to be upfront about your physical limitations. And as you begin to enjoy your own company again, others will too. Please consider looking for a support group. If you go to one and it does not work for you, go to another one. Not all groups are created equal. \n\nYou have a life, you just have to claim it. After all the grieving and wallowing and cursing and swearing that we do, and we all do it, there is a time to transform our lives. Cure is absence of disease or deformity. Healing is being at peace with yourself right where you are. You may not get cured, but you can heal. Good luck to you.
267614
It's difficult to give you advice without knowing what's wrong. If you are physically sick, you should go to an emergency room at a hospital. If you are emotionally unwell, take a deep breath and try to relax. Then call someone you feel close to and ask for help or advice. In the morning, call a therapist, counselor, or pastor and make an appointment to get some help. Good luck!
27996
I strongly recommend talking to your doctor and getting a chest xray to rule out pneumonia.  Being as you had a cold which is primarily an upper respritory disease, if it suddenly relapsed into a stronger virus (and being as your immunities are already down) it could turn into any number of things quickly.  Also, bulk up on your vitamin C and zinc.  Both will help you feel better faster.  The primary thing, listen to your body.  Sounds like you are worn down from all of this and are in serious need of rest.  And dont forget the old standard of homemade chicken soup.  Not the canned stuff.  Homemade chicken soup has so many vitamins and nutrients in it that its not funny and its also a comfort food.  Hope you feel better soon.
1035229
My wife is a Dr.  Her brother is a Dr. (shrink), a lot of the conversations we have sometimes dwell on mental cases.  You are not alone hon!  Granted your problem is serious and you should be talking to your Dr. about this.  You probably need to try a different medicine first, unless you just started a new med?  The fact that you're bring this out into the public is an indication that you don't really want to die, but are crying for help.  You can voluntary admit yourself into an in house treatment program and leave at anytime.  It is called autonomy, which is your right to decide what is best for you, as long as you can make sound comprehensible decisions.  Once you become a threat to society in general, then you will be admitted against your will, not only to save you but to save others.  Get some rest, stay away from any drugs and alcohol, see your Dr. tomorrow and tell him/her what is on your mind.  It's OK and everything will be alright, give it time.  People love you!!  You're not scum, just a normal human being with a physical condition no different than a heart problem, lung problem, bone problem, you are not scum Cassie!\n\nRJ
544097
Couldn't find a yes/no answer to that but found a good website http://www.sarcoidcenter.com/ which allows you to mail them.\n\nHope this helps!
1076298
I have sarcoidosis (which is in remission).  I was prescribed steroids but never got to take them because my inflammation began going down right before I took my first dose.
293126
I got that before too, a couple of times already. The moment i had it i thought i'm getting a heart attack but mine always go away after a day. I think i kinda pulled the muscles while sleeping. If your lung still hurts after a day or two i suggest u see a doctor. Take care!