IS there anyone online with epilepsy right now?
154795
well i dont have epilepsy but my 3 year old does....if you need to chat or just wanna vent...you can im or email me....
162046
Sure, here is a mobile site with live help...\nhttp://www.crimsonfire.com/livechat.php
1055483
Focus groups...\n\nand you get paid for particpation...anywhere from $25 up...and they can be done online...by phone or in person...depending on the company.\n\nsending you a list...websites and phone numbers...\n\nif you like...and need a bigger list...let me know...\n\nI am very sorry to hear about  your disability...especially the seizures...\nthe very best that life and love have to offer you.\n\nOh yes...at each group you go to...network with the others you find there...ask around for more in your area...they will know all the ins and outs for groups and getting paid by cash.especially.\n\nPeace.
348998
A tonic clonic seizure (grand mal) lasting for 10 minutes or more can lead to brain cell loss/damage and even death. My brother has epilepsy and it's a very serious disorder. =>
796029
it maaaay be you're about to get a migraine or you may have an oncoming seizure.. i think you'de better see a doctor
494313
local bookshop or vet perhaps.   why not online?? surely you are online just now!
79666
As it's been mentioned, people that are uneducated on epilepsy are basically just afraid of it.\n\nMy sister has JME and watching a full clonic/tonic seizure can be a scary experiance.\n\nWhat my sis does is educate the people around her on what it is and what to do. (Main point: Never, EVER shove something into someone's mouth that is having a seizure.)\n\nTalk to your friends.  They may be a bit distant at first, but once they realize it's really nothing that can harm them and that they can HELP you, they will be fine with it.\n\nBest of luck and never let it get you down!
94602
I've had epilepsy since I was 12 and and EEG is not always going to be give the doctors the answer they want when when they want it. If you are having seizures of fits they just need to find out what meds are going to keep you stable so you don't have to keep going to the doctor for them to figure it out. If they can't figure it out between the two try a new neurologist for a second opinion.
691542
actually i would also love to see some epileptic seizures to use in one of my projects about epilepsy... thank you for ur question
658010
Yes sounds like it. My daughter has it and is now on medication. The Medication these days are fantastic. From the sounds of it you will be able to get it under control and when you are old enough you will be able to drive if it is controlled. One useful tip I thought was great, when you have a bath(which it is not uncommon to have a fit with the heat) tie a small string around you big toe and the plug, and if you do have a fit you will kick the plug out. Good luck for the Future   By the way please don't let the first answerer scare you. It is very rare for this to be dangerous.If you take the right precautions talk to the epilepsy foundation they will be able to help you too.
478646
You can go to pubmed.com you should be able to find out more information there. I have had a 'TYPE' of seizure disorder since I was five, I am now 28-with a 7 yr old-who has no symptoms of ever having any type of seizure disorder - I even had one while I was pregnant for her, she is perfectly normal and healthy. Good luck on finding what you need to know!!
329372
hit me up. delima7 i about to go online right now
992779
Hello. - Link:\n\nhttp://www.ilae-epilepsy.org/ctf/gelastic.html\n\n\nHave a great weekend! :)
651943
check this out.\nhttp://www.epilepsynse.org.uk/pages/info/leaflets/factssgy.cfm\n\nNot only is it possible, instruction is available. \nCool. Maybe you could reprogram him to give you a raise and salute you when you come to work.
516778
Hi,\nI am so sorry that you are going through this.  Unfortunately, I think most people who have chronic medical problems have had similar experiences (I know I have) and of course, I do not think you should give up.  I totally understand wanting to give up because I have felt that way after being treated by incompetent physicians, rude and condescending staff, etc.  But remember, this is your life and you have to try to hang in there with this.  YOU know that your seizures are "real," it's just going to be a question of getting to the right person.  I know you feel like you've tried and tried, but it might just be the next doctor you talk to.  \n\nI know you are upset and I don't exactly understand what you are saying, but most (good) psychiatrists know that many of the medications that they give can cause symptoms like seizures and tremors, etc.  It seems like they should be able to clearly see what you are saying (as I understand it):  you were misdiagnosed with a mental illness, given medication which caused temporal lobe epilepsy and that now temporal lobe epilepsy is your "main" diagnosis; not the mental illness.  I hope I'm understanding you properly.\n\nYour situation sounds so stressful, I don't even know where to start with how to help you.  For example, I think you could be helped SO much by a support group for people with epilepsy/seizures.  You are probably already familiar with the epilepsy foundation.  I put the link below.  They have a place on there where you can locate support in your area.  Then, maybe at the support group, you may find someone who thinks they have the greatest, most caring neurologist in the world and you could try to see that person.\n\nI'm thinking that maybe when these physicians see your chart and see all of the mental health diagnoses, they are, like you said, "writing you off" to a degree - it does still happen unfortunately.  You've probably already done this, but in the visit, I would bring my films (x-rays/ C.T.'s, etc.) and whatever documentation you have that you have temporal lobe epilepsy as your primary diagnosis.\n\nIn the broad scheme of things, it probably doesn't really matter if they are treating you for a mental illness or for the epilepsy as long as you get the treatment you need.  Like I said, a psychiatrist COULD be the right person for the job.  I don't know.\n\nI guess I don't have any answers, but I wanted to reach out to you mainly to tell you to get some rest, maybe take a little break from doctors (I do that some times) and then maybe things will look a little more optimistic to you.\n\nI couldn't tell from your question if you were just very frustrated and were saying, "now die?" or if you really meant it.  Because I am a social worker, I need to make sure that if any time you feel like you might hurt yourself or someone else, you should either go to the emergency room and/or call the 24-hour crisis line where you live.  I put a link to the national suicide/crisis hotline below.  Calling either of these numbers DOES NOT MEAN that you are crazy or suicidal.  It means you need someone to talk to about your frustrations; someone who won't judge you and who will help you get through the night.\n\nPlease take care of yourself.  I wish you all the best...
219147
No! If this should happen, I suggest you visit the Epilepsy Foundation where they can be of legal help to you.
801049
Not making fun of epileptics tonight?