my mother has lupus and i was wondering if anyone could tell me what is good to take to help with lupus?
146222
I have been checking some notes that I have.  Earl Mindell says to increase your Omega-3 fats.  I have found a study that says that aspartame (the component in no-cal sugars) can cause lupus.\n\nPeople with lupus or other autoimmune diseases should not eat – I-canavanine, a compound in alfalfa, can trigger an autoimmune response in the body similar to lupus.\n\nFor Potassium, I found: Deficiency Symptoms: Gastrointestinal disorders; Irritability and depression; Lupus (mega-doses have shown a positive response in 80% of cases studied)\n\nSulfur Deficiency: Degeneration of cartilage, ligaments and tendons, Lupus, Several collagen diseases, Sickle cell anemia \n\nIt has been claimed that supplementation with pharmacological doses of pantothenic acid (vitamin B5) may alleviate the symptoms of rheumatoid arthritis and lupus erythematosus.\n\nAnd one I did not expect to find:  Water cures ... lupus...  These conditions are caused by prolonged chronic dehydration.  In these conditions exercising one's muscles should be part of the treatment program.\n\nLots of different information, but some good leads.  I would try one or all of them.
627085
I also have SLE Lupus....I get the sores/hives on my scalp mostly. What meds are you taking? Are you a stay at home mom? Steroid creams do help and yes, stress makes it so much worse. Use a sensitive skin face wash and use a steroid cream prescribed by doc. Take good care of your self and get the book Healthy Healing...lots of good advice for Lupus symptoms. Try to go on a detox for a week...this makes skin clearer and helps muscle pain.\n\nHope this helps. Email me if you want to know more about the book. I can email back everything the book says to do.
1120958
Not only can Lupus cause the more common symptoms mentioned, but it also causes the body to turn on itself. When my wife was diagnosed with Lupus at 23 yrs old, it attacked her kidneys and turned 70% of them to scar tissue. Prednisone was used to treat it and that caused AVN, osteoperosis, osteoarthritis and a whole bunch of other stuff.\n\nNow, at the age of 34, my wife has recently spent 2 weeks in ICU after the Lupus attacked her brain and sent her entire body chemistry out of whack. This condition is referred to as Lupus Cerebritis, or CNS Vasculitis. In her case, due to all of the complications connected to it, is was nearly fatal for her.\n\nAs doctors know little about it, when compared to other more common conditions, it makes Lupus more difficult to diagnose and treat. There is still much research and experimentation ongoing relating to Lupus. \n\nJust my 2 cents for you...
595342
My advise is to go to a medical university. My friend always had either a false positive result or a negative. She went to the University of Georgia medical center and was diagnosed with Lupus. A medical university uses more updated procedures and equipment. If it seems your size is greater than your sister, mother, aunt, or grandmother when they were your age, the university medical center will be happy to help you. I am sure you are up to date on all the  symptoms.  Good luck!
828500
Start with this, I have never heard anything about hemp seed; sounds like quack practice. mcc_md@yahoo.com for further info.\n\nTREATMENT OF SLE — Although there is no "cure" for SLE, a variety of general and specific treatments and strategies to reduce symptoms, limit damage to vital organs, and reduce the risk of recurrence are available.\n\nGeneral treatment considerations — Although specific drugs are used for particular organs, a number of general issues are applicable to every person with SLE. Diet and nutrition, exercise, and preventive measures including immunizations, avoiding certain medications, and issues related to pregnancy are among the most important general issues for patients with SLE. (See "Overview of the therapy and prognosis of systemic lupus erythematosus in adults").\n\nDiet and nutrition — It is not well known what the effect of dietary modification is in SLE. One study reported that frequent intake of meat was associated with more active and progressive disease. In contrast, dietary fish oil has been reported to be beneficial. These findings await confirmation, however, and at present we do not recommend fish oil supplements in the treatment of SLE.\n\nA conservative approach is a balanced diet consisting of carbohydrates, proteins, and fats. However, the diet should be modified based upon disease activity and the response to therapy:\n\nPatients with active inflammatory disease and fever may require an increase in caloric intake. \nCorticosteroids (prednisone and others) enhance appetite, resulting in potentially significant weight gain. Hunger can be somewhat lessened by the ingestion of water, antacids, histamine H2 blockers (eg, zantac), and/or proton-pump inhibitors (eg, prilosec). If weight gain is significant, however, patients should follow a low calorie diet. \nSignificant increases in blood levels of fat and cholesterol may occur (hyperlipidemia). Patients with hyperlipidemia should be encouraged to eat a low fat diet. A lipid-lowering agent should be considered if cholesterol levels remain high despite a change in diet. \nVitamins are rarely needed with a balanced diet. However, a daily multivitamin should be taken by patients who are not able to obtain an adequate diet or who are dieting to lose weight. \nPatients on long term steroids and postmenopausal women should take 400 to 800 units of Vitamin D plus 1000 to 1500 mg of calcium per day to minimize the degree of bone loss. \nIt is important to note that herbal supplements are of unproven benefit, and may even cause harm.\n\nExercise — Inactivity produced by acute illness causes a rapid loss of muscle mass and stamina. As a result, fatigue may follow even after the illness subsides. This can usually be treated with graded exercise. In selected cases that do not respond to regular exercise, relief of fatigue can sometimes be obtained with prednisone or antimalarials (hydroxychloroquine or chloroquine).\n\nImmunizations — Influenza vaccine is safe and effective; pneumococcal vaccine is also safe but fewer antibodies are created in people with SLE than in those without the disease. People whose immune systems are weakened should not receive live vaccines. The efficacy and safety of hepatitis B vaccination has not been determined.\n\nAvoiding certain medications — Sulfonamides and penicillin (but not the synthetic penicillins) may cause exacerbations of SLE and should therefore be avoided. In contrast, medications that cause drug-induced lupus, such as procainamide, hydralazine, and isoniazid do not cause exacerbations of SLE and may be used if otherwise needed.\n\nPregnancy and contraception — Pregnancy should be avoided during active disease (especially in women who have significant organ impairment) due to the high risk of miscarriage. Women with SLE should not become pregnant until the disease has been controlled adequately for at least six months.\n\nOral contraceptives containing high dose estrogens c
993085
(m)\n\nTreating Lupus \n\nDiagnosing and treating lupus are often a team effort between the patient and several types of health care professionals. A person with lupus can go to his or her family doctor or internist, or can visit a rheumatologist. A rheumatologist is a doctor who specializes in rheumatic diseases (arthritis and other inflammatory disorders, often involving the immune system). Clinical immunologists (doctors specializing in immune system disorders) may also treat people with lupus. As treatment progresses, other professionals often help. These may include nurses, psychologists, social workers, nephrologists (doctors who treat kidney disease), hematologists (doctors specializing in blood disorders), dermatologists (doctors who treat skin disease), and neurologists (doctors specializing in disorders of the nervous system).\n\nThe range and effectiveness of treatments for lupus have increased dramatically, giving doctors more choices in how to manage the disease. It is important for the patient to work closely with the doctor and take an active role in managing the disease. Once lupus has been diagnosed, the doctor will develop a treatment plan based on the patient's age, sex, health, symptoms, and lifestyle. Treatment plans are tailored to the individual's needs and may change over time. In developing a treatment plan, the doctor has several goals: to prevent flares, to treat them when they do occur, and to minimize organ damage and complications. The doctor and patient should reevaluate the plan regularly to ensure it is as effective as possible.\n\nNSAIDs: For people with joint or chest pain or fever, drugs that decrease inflammation, called nonsteroidal anti-inflammatory drugs (NSAIDs), are often used. While some NSAIDs, such as ibuprofen and naproxen, are available over the counter, a doctor's prescription is necessary for others. NSAIDs may be used alone or in combination with other types of drugs to control pain, swelling, and fever. Even though some NSAIDs may be purchased without a prescription, it is important that they be taken under a doctor's direction. Common side effects of NSAIDs can include stomach upset, heartburn, diarrhea, and fluid retention. Some people with lupus also develop liver, kidney, or even neurological complications, making it especially important to stay in close contact with the doctor while taking these medications. \n\nAntimalarials: Antimalarials are another type of drug commonly used to treat lupus. These drugs were originally used to treat malaria, but doctors have found that they also are useful for lupus. A common antimalarial used to treat lupus is hydroxychloroquine (Plaquenil)*. It may be used alone or in combination with other drugs and generally is used to treat fatigue, joint pain, skin rashes, and inflammation of the lungs. Clinical studies have found that continuous treatment with antimalarials may prevent flares from recurring. Side effects of anti-malarials can include stomach upset and, extremely rarely, damage to the retina of the eye.\n\n* Brand names included in this publication are provided as examples only, and their inclusion does not mean that these products are endorsed by the National Institutes of Health or any other Government agency. Also, if a particular brand name is not mentioned, this does not mean or imply that the product is unsatisfactory.\n\nCorticosteroids: The mainstay of lupus treatment involves the use of corticosteroid hormones, such as prednisone (Deltasone), hydrocortisone, methylprednisolone (Medrol), and dexamethasone (Decadron, Hexadrol). Corticosteroids are related to cortisol, which is a natural anti-inflammatory hormone. They work by rapidly suppressing inflammation. Corticosteroids can be given by mouth, in creams applied to the skin, or by injection. Because they are potent drugs, the doctor will seek the lowest dose with the greatest benefit. Short-term side effects of corticosteroids include swelling, increased
497757
I have lupus and I've been taking glyconutrients for six years. And I haven't had a flare up since. I can go out in the sun with no problems, my hair has grown back and my skin has cleared up. My mom takes it too, she is a breast cancer survivor and chemo really takes a lot away from you years later. But she astounds doctors because she has a lot of energy and is in good health compared to others who have taken chemo treatment. If you're thinking about getting it I say go for it you won't be sorry.
1070638
Hey Sam, I have had crohn's for 15 + yrs. I know how you feel. Those who have never had this disease will not. I have tried probiotics, aloe vera juice, fish oil, jordan rubins program, you name it its been through my system (not always pleasantly). I am currently on Remicade and have been for over a year. It has put me into remission. I also believe it is an auto immune disease whether caused by man or environment I'm not sure. I have had many days where I feel like crap & often have deep thoughts of this disease. I do know hereditary is a factor as I can prove by most of my relation having ms, ra, lupus & crohn's. Do you have a good dr? If not find one even one who specializes in homeopathy can help. I wish you luck in finding a miracle we all are looking for!
804371
My wife has been taking cellcept for her Lupus for the last two and a half years with little side effects.  She was a little sick to her stomach at first but now it really doesn't affect her.  It has done wonders for her Lupus flare ups though.  She hasn't had kidney involvement since being on the drug and she is only taking 5 mg of prednisone right now.  She also has antiocardiolipid syndrome and takes coumadin to thin her blood.  If you have any more questions or would like some more detailed info please feel free to email me
1095921
There are so very many autoimmune disorders and rare autoimmune disorders but the one I keep coming back to is SLE.  As you have already said this has been ruled out, my only suggestion is that you get a referral to a specialist in autoimmune diseases.  I am wondering what it was that made your doctors rule out Systemic Lupus Erythematosus.  Do you happen to know?
108014
First of all, I'm sorry for your mom.  My mom had Lupus also. Check with the social security office on applying for disability.  I know my mom didn't qualify, but she never was able to work.
539713
I am not quite sure what you mean.  But, listed below are some very good sites on SLE (systemic lupus erythematosus).  Hope that helps!
363933
There are Medications but No Cures. There are over 300 Types of Lupus. I have a Form Myself. Good Luck
414454
This question should be for your personal doctor because no one else could give you an adequate answer without a complete understanding of your medical history. Please consult your physician. Lupus is a very complese immune disorder and no advice from people without your complete history should be taken.\n\nGood luck, I wish you the best.
1123806
My mother was having a serious problem with her gout. I did a little research and found a product called "Gout Cure All Natural Gout Relief." I ordered some for her and she has only had one minor recurrence since (over six months now). Check out the website: www.goutcure.com. \n\nGood luck.
730800
Absolutely.  I have systemic lupus among w/other health problems.  Science will be able to learn a lot from my cadevar.
56697
Lupus (systemic lupus erythematosus, or SLE) is a chronic disease that can cause inflammation, pain, and tissue damage throughout the body. Lupus is an autoimmune disease, in which a person's immune system attacks its own tissues as though they were foreign substances. If you develop serious lupus, you may have problems with your kidneys, heart, lungs, or blood cells. \n\nAlthough some people with lupus have mild symptoms, the disease can become severe. For most people, ongoing monitoring and treatment can control symptoms and prevent serious organ damage. \n\nThere are five types of lupus erythematosus: systemic, discoid/cutaneous, subacute cutaneous, drug-induced systemic, and neonatal. This topic focuses on systemic lupus erythematosus (SLE), the most common and serious type of lupus. \n\nWhat are lupus symptoms like?\nLupus symptoms vary widely, and they come and go. Common symptoms are fatigue, joint pain or swelling (arthritis), fever, and skin rash (especially with sun exposure). Mouth sores and hair loss may occur. Over time, people with lupus develop nervous system symptoms, most commonly migraine headaches. Periods of time when symptoms worsen are called relapses or flares. Periods of time when symptoms improve are called remissions. Lupus symptoms rarely disappear completely.