I have Fibromyalgia;It is very painful.I know lots of others have it.What do you guys do for your pain.?
112756
I have had fibro since late 80s.  FINALLY officially diagnosed in 2001.  Dr had me on pain pills, which caused memory problems.  More pills for memory, which caused other problems.  More pills for those problems, which caused more problems, which led to more pills. . .\n\nI finally left a job which was VERY stressful.  Got off the meds.  Now I only take over the counter meds, usually Pamprin or Midol (helps a lot) or ibuprofen.\n\nMassage therapy helps.  I went to Massage Therapy school so I could become my own boss, and I found that it helped me with my symptoms SO MUCH.  \n\nAvoid high temps or humidity.\n\nI find a hot shower in the morning helps ease the stiffness you have when you wake up.  Somedays it takes all the energy I have to take that shower, but I do it.\n\nI also do simple yoga before I go to bed.  That has helped my sleeping a lot, which helps the fibro.\n\nIf you don't have a supportive family, join a support group.  You need someone who will believe you.  This is a stress factor for most of us - people telling you that you are making this up for attention, or because you're laze and don't want to work.\n\nBlessed be,\n\nGypsy
631187
I know how you feel. My mother was diagnosed with fibromyalgia about 8 years ago. She is in shocking pain for which she takes prednisolone. She is allergic to many things so this is her only option. She also suffers from extreme tiredness and very weak and sore muscles. She also has Mitochondriamyopathy which contributes to the fibromyalgia. I have been having a lot of trouble for several years now and my physiotherapist thinks I have fm as well. I can understand how you must feel. Are you very sensitive to touch? that seems to be a major problem for my mother and I. I don't know if there is any other suggestion to help with pain since you are on meds, apart from hydrotherapy which is what I am doing at the momment. It allows you to get moving more freely without the weight of your body putting strain on your muscles. Keep moving for as long as you can, the hydro really does help. Good luck.
191959
Fibromyalgia is not well understood.  There is no real test that will definitely diagnose it nor is there any specific treatment for it.  The symptoms are often vague and seem sort of non-specific and seem to have no cause.  Most sufferers are women from their mid-30s to late-50s and the symptoms can sound like depression, PMS, chronic fatique, etc.
367211
Hi, my mother has has the same problem and she was finally diagnosed with fibromyalgia....A lot of Doctors will tell you that you might be suffering from depression or stress but in reality there really could be another diagnosis. You should try to find a doctor that actually specializes in Pressure Point Exams and Fibromyalgia.\n\nAlso, I have been living with undiagnosed pain for the past 4 years. I have alot of the signs/symptoms so I am going to see a specialist soon that deals with fibro and maybe I can get my pain under control. I hope this helps!
755251
I think you are referring to a condition called Fibromyalgia whereby muscles become extremely painful and movement is severely hampered. It is a kind of rheumatism and is linked to ME and IBS. \nIt comes and goes, and sufferers are better off in warm conditions. Although the pain can be helped a little, no cure has been found yet.
1062434
Fibromyalgia is a syndrom with symptoms of all over pain, fatigue, irritable bowel, mood shifts, and more.  \n\nIt does not go away.  It is made worse by stress and environmental factors.\n\nYou may email me if you would like more info.
422361
What is fibromyalgia?\n\nFibromyalgia is a chronic disorder that causes widespread pain and tenderness in the muscles and soft tissue (including tender points) as well as sleep problems, fatigue, and a variety of other symptoms. These problems can be severe enough to disrupt a person's work and daily activities. Fortunately, the condition does not permanently damage the muscles, joints, or internal organs.\n\nFibromyalgia is a syndrome of chronic pain, not a disease or a psychological disorder.\n\nWhat causes fibromyalgia?\n\nThere are theories as to what may cause fibromyalgia, but at this point there is not enough evidence to support any single cause. Some theories suggest that fibromyalgia may be related to oversensitive nerve cells, an imbalance of chemicals in the brain (neurotransmitters), or an inability of the brain or spinal cord to dampen pain signals.\n\nWhat are the symptoms of fibromyalgia?\n\nMost people with fibromyalgia endure cycles of muscle, soft tissue, and back or neck pain, sleep problems, and often debilitating fatigue. Fibromyalgia is also characterized by the presence of up to 18 specific tender points on the body—these are painful only when you press directly on them.\n\nAlthough less common than pain, fatigue, and sleep problems, a variety of other symptoms may occur as well. These include headaches, morning stiffness, difficulty concentrating, a circulatory problem that affects the small blood vessels of the skin (Raynaud's phenomenon), and irritable bowel syndrome. As with many conditions that cause chronic pain, anxiety and depression are common in people with fibromyalgia and may make symptoms worse.\n\nSymptoms tend to come and go. Periods when they are constant (flares) may be followed by periods when they are absent (remissions). Some people find that cold, damp weather, emotional stress, overexertion, and other factors make their symptoms worse.\n\nHow is fibromyalgia diagnosed?\n\nFibromyalgia can be difficult to diagnose because there is a lot of variation in the combination of symptoms it causes and how different people experience the symptoms. Also, its symptoms are similar to those of many other disorders and diseases.\n\nFibromyalgia is often diagnosed after other conditions have been ruled out; there are no tests that can confirm the diagnosis. The presence of specific tender points as well as chronic, widespread pain on both sides of the body above and below the waist can help confirm a diagnosis of fibromyalgia.\n\nHow is fibromyalgia treated?\n\nWhile there is no specific cure for fibromyalgia, symptoms of this syndrome can be treated and controlled. If you have fibromyalgia, taking an active role in your treatment is very important to managing your condition.\n\nTreatment may be different for each individual. It can include:\n\nRegular exercise to help with muscle aches and stiffness. \nChanges in your routine, schedule, and surroundings to improve your sleep habits and reduce stress. \nTaking medications to help you sleep better and to relieve pain. \nGetting counseling to help you manage chronic pain and find better ways to handle stress. \nSome people with fibromyalgia also find complementary therapies such as acupuncture, massage, behavioral therapy, and relaxation techniques helpful.
36396
I have had Fibro since I was 16 and am now almost 36. I have the same diagnosises as you including Myofascial Pain Syndrome and others. Actually, MPS should be a given. In my experience pain medications do not work. I have also tried biofeedback, steroid shots, trigger point injections, nerve blocks, accupuncture, foot braces, wrist braces, carpal tunnel release surguries, and so much more. All just torture and I felt like a guinea pig.\nMy best advise is make sure to get plenty of sleep, take a multiple vitamin, keep active in at least low impact sports, and consider Magnesium and Malic Acid supplements (consult the doctor or a nutritionist to have your Magnesuim level checked- it is a simpe mouth swab and not painful), meditation does help some in keeping the pain back if you can seperate your mind from the pain, and try to take 2-3 warm Epson Salt baths a week (Epson salt contains Magnesium and soaking in a warm tub of it helps to get the mineral into the body. Magnesium aids the muscles in using oxygen and when the level is low which is typical in Fibro it can cause are cramps, spasms, and pain.) \nAlso, Fibromyalgia is a neurotransmitter disorder certain foods can trigger similiar symptoms to Fibro. Try eliminating Monsodium Glutamate from your diet. I did and some of my symptoms (chronic headaches and nausea) went away. It is in everything from Doritos to chicken soup. A few key finding's of an FDA study found MSG to cause a "burning sensation in the back of the neck, forearms and chest". Otherwise, learn your limits and pace yourself.\nGood luck!
168602
first, stop complaining ( idont mean this disrespectfully) start claiming your healing! Positive words from your mouth only! Thank God for healing you and believe. Break all strongholds the enemy thinks he has on you, and stop reinforcing them.  he can not hear your thoughts, but he can hear you speak. Speak only with a knowing that you will be healed, and stay positive in that way as well. Fibromyalgia and depression go hand in hand almost all the time, your physical pain is your internalized anger. find out why the anger is there and deal with it. God will help.\nStop feeding any and all negativity into yourself, by your own thoughts and mouth. This is something that grows so big inside of you it may take a while to cleanse.\nRefresh your mind and your soul and start feeding it love and healing. "With God ALL things are possible" Know this.\nGod bless you.\nSorry if this sounds a bit extreme, but ive seen this grip on others, and i know that God heals. Ive been a nurse for 20 yrs. and my mom suffered terribly from fibromyalgia.\nFYI sweethart please know this has not been caused by sin. when the enemy is trying to suck you down, its because he is extremely threatened by you or Gods plan for you.
877008
If you haven't already, get to a pain management doctor. I'm sure he can help you. Don't take the pain though, get to a doctor and MAKE them do something. There is help for you, you just have to be ready to keep going to doctors until you find it. Don't settle on pain, get to a pain management center. Good luck.
906564
Have you discussed Fibromyalgia with your doctor?  There is no specific test for fibro, but a diagnosses is made when all other causes are ruled out.  A chiropracter would not help the symptoms of fibromyalgia, it affects the soft tissue not bones.  I ask because you conplaine of pain in the trigger points, fatigue which are common in fibro.  The pain is usually a deep muscle ache and spasms that can involve any part of the body.  Joint pain is common also.  Sleep disturbances are usually associated with fibro as well as restless leg syndrom, stiffness especially in the morning, anxiety and depression, pain worsening when there are changes in the barometric pressure before and after a storm, cold and humid weather also make the pain worst.  The trigger points become hard and hurt to touch.  If your doctor is not familiar with fibromyalgia I would suggest seeing someone who is qualified.  Its a complicated syndrome and there are many aspects that need to be treated in order to be able to function.  I was diagnossed 10 yrs ago and my doctor didn't know enough to treat me properly.  I am now disabled and have to take narcotics to aleviate the pain to a point where I am able to function with some normalcy.  I would think that a spinal xray would show a tumor, but I would ask for an MRI to rule out the posibility of a buldging or herniated disk or anyother problem with the spine.  The pain of fibro is much like rhumatoid arthritis but it doesn't cause the deformaty.  I hope this helps.
895530
I have fibromyalgia, and have a great deal of difficulty getting restorative sleep....I usually get about 6hrs, but it's not "good" sleep, pain in my "trigger spots" wakes me often, and I have chronic migraines as a result of my poor sleep rhythm. Praise the Lord, other than that life is WONDERFUL!   ;-)\nEDIT:\nOh...did I mention, Hubby's a big SNORER?   LOL
553925
I was diagnosed with it when I was in my 20's...over 20yrs ago!  It is a relatively new diagnosis and doctors are just now beginning to understand just how debilitating it can be... make sure you trust your doctor as it is not an easy diagnosis to make and there are alot of other illnesses out there that have symptoms very similar to fibromyalgia!  My sister swears by herbs to help hers.... I swear by pain meds and rest.... guess it all just depends on a persons point of view and just how bad a day that person is having!
452807
Jack has a point - I have constant low level pain which (  before I had it ) I thought would be intolerable but now I notice it less frequently and since it is unlikely that I will ever be entirely pain free I have accepted it and adapt my life around it (pace of activity, level of activity, delegation!! etc helps) I remember what it was like to be pain free and I am sad to think I will never have that again and never have the energy levels I once had as I am full of enthusiasm and plans to do lots. But I have just altered my plans rather than lose them.\n\nTo Jerzeygirl I would just like to say that people will naturally feel sadness and loss when someone dies, and to deny them that is not helpful. Our emotions help us to think about he person, grieve, accept, and ultimately move on ... but it takes time.\nHomily for the day finished !
1171333
SORRY TO HEAR ABOUT THE FIBRO I ALSO HAVE IT AS WELL AND I KNOW EXACTLY HOW YOU FEEL. ITS A HORRIBLE THING TO HAVE AS FAR AS BEING PREGNANT WHAT DO YOU MEAN? AS FAR AS MORE PAIN AND THE PAIN MEDS IF YOUR ON THEM AND BEING PREGNANT OR WILL THE FIBRO HARM THE BABY? SORRY DIDNT NO WHAT YA WERE LOOKING FOR BUT IT WONT HURT THE BABY DUE TO THE FIBRO AND MORE PAIN? MORE THEN LIKELY I THINK I HAD IT WHILE I WAS PREGNANT BUT THATS BEEN 18 YRS AGO I AM 40 MY SONS GIRLFRIEND IS PREGNANT SHE TO HAS FIBRO. BUT....I WOULD LOVE TO TALK MORE WITH YOU ABOUT THIS SO PLEASE EMAIL ME IVE BEEN LOOKING FOR PEOPLE TO TALK TO CONCERNING THIS GOOD LUCK TO YOU LANAY   lanay40@yahoo.com  i will be waiting to hear from you thanks
1102721
I have fibromyalgia and have found, along with drugs prescribed to help me sleep and relax muscles, that physiotherapy can be a great help, if the therapist is experienced in treating patients with the disorder. Otherwise flare-ups can occur. Mine can release knots of muscles and trigger points and relieve much of the pain. Mild exercise is good, but studies show that heavy exercise backfires. Fibromyalgia patients react differently to exercise and have to be cautious. You might consider acupuncture. It worked well for me until electrodes were added to the needeles and I flared up.
546379
My husband and I use a product called "blue emu" it helps alot.  Also you need to start watching what you eat.  I'm very very arthritic and stay away from FAT, it totally swells the pain in my joints to unbearable.  It really works, trust me.  Also there is a product called MSM and it is a wood pulp derivative and works very well in elevating pain. Ive been at this game for some time now.  Follow all these steps and it should really improve your pain considerably.