Does anybody have a child with Fragile X syndrome?  What are the difficulties raising them.?
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i dont know but try doing a search in webmd for it
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I'd take a look at http://www.crazyboards.org. There's a parenting section and a bipolar section there. I'm personally bipolar and no great fan of that diagnosis in teenagers, let alone kids as young as 6, but that's just me.
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I have a 5-year old with autism.  My wife and I have been successful getting him to talk to us only if it's requesting food or certain play activities.  I'd say about half the time he asks on his own without being prompted.  We expand his vocabulary by offering him more choices or making him make more decisions.  For example, instead of putting in the video he hands us, we'll pick up another and make him point and say the title of the video he wants.  Eventually, he'll ask for the video by name right away.  It's only been the last few months that he's been doing this, so I'm optimistic about how he can grow from this step to more difficult social interactions (even if it takes a few years).
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My Uncle and his two sons have aspergers\n\nThey are all quite brilliant in their own ways, but have some quirks socially and tend to be messy and a little scatterbrained at times\n\nAspergers tends to be much milder and managable than autism\nYou can basically live a normal life \n\nSometimes we miss a blessing in disguise\nI hope you enjoy your gifted child
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Hi\nSorry you got such a stupid first answer. And then, the second response was so unhelpful and patronizing! Gee, what does she think that every parent that gets such diagnosis is jumping in one leg with joy ?" cool, my child is autistic. Now we can be in the in crowd." She needs to have her head checked. We are just going through the diagnosis and I know it is a very painful and sad stage in the life of any parent in that situation. And I am sure that aside from maybe not speaking your child has other symptoms. Otherwise, you would not have gotten the diagnosis. \nAnyway, I just wanted to tell you that I posted yesterday a very similar question, so if you click in my profile, you will see the answers that I have gotten so far and they are all a zillion times more helpful that the ones you got. I hope they help! Also, I just found out through my sister that lives in Miami, that they have two great schools there. One is private in Dade County  "The Carrie Brazer Center for Autism and Alternative Approaches, Inc.' (visit their home page at www.cbc4autism.org) and a public one Mailman Center for Child Development in Broward County.\nRight now, I am living in Switzerland and they have a fabulous school in Mongre its called FEDEA and the instruction is in English or French. Each child has his own teacher!!! And they have daily outings, they use the ABA Method, and its an amazing school but there is no financial assistance and the cost is seventy thousand swiss francs per year with translates into $ 56, 000.00 per year. So needless to say, unless you are quite rich the cost is prohibitive. That is why I'll have to move back home soon. Good luck to you! And if you need someone to talk to or excahnge info just email me.
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21 months is still a young age, what does ur family doc. say? There is a form of autism and its not as like full blown as autism...its called aspergers syndrome... my family doc told my friend she thinks her son has it and its difficult to diagnose and he's 5. He does some of the same things...plays by himself and he never looks any of us in the eye even the adults.\nGood luck i hope he's fine.
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My son has high functioning austism as well. He is 5 now and became verbal last year. His still likes to play by himself some of the time but he interacts with his siblings and some of the kids from his school. Find something that he really enjoys. For my son it is letters and numbers. I bought flash cards for him and invited a couple of the neighbor kids over. We had races to see who could find certain numbers. He loved it. Don't try too many kids though or he could feel overwhelmed. A lot of his interaction came from watching the other kids do things. He wouldn't go down the slide until he watched the other kids do it over and over again. Make a structured "game" of the play at first and then slowly let it become more spontanious. Good Luck you can email me at sbirch5@yahoo.com if you would like to discuss this further
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Here are some tips and suggestions that I hope will help you! I wish you all the best. Please keep in mind, as I'm sure you do, that not all children with autism are alike, and will have different needs. These are just guidelines, please consult an education professional who knows your child for the most accurate and relevant information for your family.\n\n- Recognize your child's strengths and interests and use these as opportunities for education (for example, if your child is very interested in Star Wars, you can teach math problems about Star Wars, make cleaning up into a game about Jedi powers, etc.) You never know when an interest may turn into a possible career option for the future (I recently read a book written by a man with Asperger's who made his childhood interest in "The Wizard of Oz" into seveal job opportunities! ["Demystifying the Autistic Experience" by William Stillman"]) (Source #1)\n\n- People with autism/Asperger's are often visual learners and learn well with pictures, charts, step-by-step written instructions, etc. (Source #1)\n\n- Consider reading books by authors with Autism/Asperger's (while these are often geared towards adults, I think they offer valuable information) Authors to consider include Temple Grandin, Edgar R. Schneider, Jerry Newport, Stephen Shore, and William Stillman (Source #1)\n\n- To motivate a child to use language, you could, for example if you know she wants juice, don't just give it to her becuase you know that's what she wants. Have her say, "juice," or if she is not ready for that yet, just the first sound of the word before you give her any juice. Gradually, very slowly, require him to say additional words such as, "want juice," then "want juice please," then "I want juice please, etc." before you give her the juice. Start with him requesting with one word for most of the things he wants (and keep this up for a long while), before starting to require sentences for any items. If you feel your child is not ready for this, please consider using the Picture Exchange Communication System (PECS) as an early step before implementing the above procedure. (Source #1)\n\n- Make clear and objective descriptions of the behaviors that are concerning you. Then, make some notes whenever the behavior occurs. You could make a chart with three columns: (A) What happens before the behavior, (B) What the behavior was, and (C) What happened after or as a result of the behavior. You may find that it gets her attention from adults, or that it gets her a time-out (maybe she is overwhelmed in the situation and wants to be removed). If you see a pattern from the information you collect, you could teach her other ways to get attention or whatever she is gaining from doing these behaviors. These could include, tapping someone on the shoulder, asking for attention, handing someone a card that says, "attention please" or "all done" (to get permission to leave an area), etc. Also, make sure that you are giving her praise or a reinforcer (something she likes) when he is engaging in positive behavior. \n\n- "Many children with autism are good at drawing, art and computer programming. These talent areas should be encouraged. I think there needs to be much more emphasis on developing the child's talents. Talents can be turned into skills that can be used for future employment." (Source #2)\n\n- "Teaching generalization is often a problem for children with autism. To teach a child to generalize the principle of not running across the street, it must be taught in many different locations. If he is taught in only one location, the child will think that the rule only applies to one specific place." (Source #2)\n\n- "I interpret language literally. It's very confusing for me when you say, 'Hold your horses, cowboy!' when what you really mean is 'Please stop
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ok, well my little bother has got mild asperges syndrome. asperges syndrome is a type of autism. children [and adults] with this can often find it hard to concentrate. sarcasm can not always be properly understood and they find it harder to read emotions. there are varying degrees of it though. \nmy brother was also born through ceserean, but i dont know if it affects it. my brother was also given the tripple mmr vaccine which my other brother [without autism] didnt recieve. it is much more common in boys than in girls.\nremember he is still your brother and dont treat him any differently than you used to, maybe it is not so bad as they only found it when he was 11! i dont know though, i myself am only 14! :s\nummm just help your mum around your hme with washing tidying and try nt to do anything that would annoy her, eg) staying out late and so on, but just try and carry on as normal. a good book is 'the curious incident of the dog in the night time', by Mark Haddon im not saying youre brother will turn out like this ki, chances are he wont, but it shows the pros and cons of asperges syndrome. add me on msn or emailme if you just want to talk, wonderhat@hotmail.com\ngood luck! hope everything turns out ok for you\nactualy\ni KNOW it will!\nxxx\nxx\nx
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Children with special needs require alot of attention.  For some people that is ok but, if you are short tempered than its wrong for you to be around these children. I have enjoyed helping children with special needs and you're right it is very rewarding.  So many people ignore them or don't reach out to them and they really thrive on any attention that they get.  Sounds as if your a neat person to be devoted to thse children.  God bless you and your efforts.
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Thanks for the information, I saved the link and will read thought it later. I have a 5 year old nephew who has been diagnosed as autistic, he also has vision problems. I have had my doubts about the diagnosis from the beginning, hope your paper helps bring some light to the situation. \nThanks.
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I know of a family that had 4 kids......they were first cousins, and they ended up having 4 kids with learning disabilities....and downs syndrome......\n\nSo I would say no...do not have kids unless you are prepared to have kids with many challenges.....
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http://www.webmd.com/hw/raising_a_family/tp22217.asp\nhttp://www.orthoseek.com/articles/congenmt.html\ngo to this website
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I have a 26 yr old son with Autism and ADD and he is the biggest blessing in my life.  Try to find support from other parents in your community.  Check out www.PHP.com (there are groups like PHP all over North America.\nAlso I love the books  "Laughing & Loving with Autism" by R. Wayne Gilpin.  Also read "Ten Things Every Child With Autism Wishes You Knew" by Ellen Notbohm.  I also used prayer to help us through the rough spots...there is light at the end of the tunnel..  Autistic kids are truly wonderful...write down what they do and say...we used sign language until our son could talk and it worked very well.
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Isn't it sad when people with Autism are considered to be partially and, in the case of your country, lumped in the same group as people with mental retardation?  I have yet to meet a child with Autism that is not VERY bright.  They all seem to ahve a high intellect, but lack the ability to communicate this.\n\nAt an rate, Autism is a HUGE spectrum, so to give a lifetime prognosis is difficult, and would have to be done on an individual basis.  Every person is SO different.  The best treatment that I have seen is the Applied behavioral Analysis (ABA) program.  It seems to have an amazing affect on almost every individual that goes through it.  best of luck!!
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An excellent book to read and keep in your private library is "The Explosive Child".  This book has a wealth of information about living with children that have difficult behaviors and explosive temperments.  \n\nFrom personal experience I can tell you that you have to have clear, concise, well defined and understood rules.  You must be 100% consistent.  It's not worth the fallout to give in if a rule has been made.  Implement a positive behavior support plan.  Rule out additional problems such as learning diabilities, seizures, mental health disorders, developmental disabilities, etc.  If the child exhibits violent behaviors address them swiftly with a zero tolerance policy.  Safety is a primary objective.  Make it clear that if the child cannot or will not control his behavior then he can be placed in an environment where safety is assured.  That can be a hospital, residential center, or juvenile facility.  Ask for help.  Actively seek programs and resources in the community to help involve your son in positive programs.  \n\nIt's a rough road.  Seek out some support for yourself also. Other parents that share similar difficulties can help you to cope or find resources when your well has run dry.  If nothing else it is a relief to be able to talk to other people that know just what it is like to be where you are.  If you can't find a local group Yahoo groups, MSN or one of the other online communities can be excellent sources of support.
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Check out the Fragile X Foundation website http://www.fraxa.org or the National Fragile X Foundation website http://www.fragilex.org