My mom has Lupus Erythematosus.  Can she file for disability?
108014
First of all, I'm sorry for your mom.  My mom had Lupus also. Check with the social security office on applying for disability.  I know my mom didn't qualify, but she never was able to work.
445263
I suffer from the effects of lupus also. Your energy level is a hard thing to deal with, believe me I know. I personally do what I can when I am able. Have you talked with your doctor about it? My doctor gave me this same advice. "Do what you can when your level is up and rest when you need to". You have to allow your body to catch up. Sometimes when I over do it I end up in bed for days. Each person is different. I hope you have a good relationship with your doctor or doctors like in my case. So, when things change with your body's' health you can get the best advice for you. I would love to talk sometime, since we have the same disease. I know from my own experience that talking helps.
332547
Lupus doesn't cause all those symptoms.\nLupus is where the body attacks it's self and you have organ problems like kidney disease and organ infections and skin problems and you can't go out in the sun without being covered.\nLupus is  a non contagious, chronic inflammatory condition with reddened skin patches, lupus cause the body to make auto antibodies which attack the skin and other organs.\nSounds like your mum has something else not lupus, take her to a different doctor.
929470
There are some cases where people are truly disabled and need the benefit, but the Social Security Administration tends to drag its heels. If you die before they pay, they don't owe anyone anything. If your doctor says you can't work, you are entitled.  Don't be discouraged by the ignorance of some of the posters.\n\nAccording to Social Security regulations, you have to be turned down once for disability, before you can call in an attorney.   If you have been approved, but your benefit has not been paid, contact your Congressman.  They can get things moving.  If you haven't been denied yet, you are going to have to wait for that to come.  When you get the denial, then you can get an attorney.  The attorney's fees are limited, by law,  to a percentage of what is owed to you for back benefits.  At least that how it was when I was trying to help folks through that maze.\n\nGood luck.
989001
Even with the diagnosis, there are moments when your mom is lucid enough that she could sign the proper papers, with a notary present.  So that is the best way to go.  Otherwise, the only other way is to obtain a court order to the same effect, and that is costly and you will have the obligation to prove your case.
772703
Looking for answers is a great way to help her.  Activities like dancing, walking through the mall, travel, etc. can really take its toll on someone with lupus.  It is a chronic disease and your girlfriend is probably a lot like me....and doesn't want to risk losing a great guy by telling them how difficult life can be living with Lupus.  \n\nDealing with lupus is a personal thing.  Don't push the issue but be understanding if she asks for alone time.  \nSome things that really help me are:\n\nDrop her off close to the place you are going instead of making her walk extra distance.\n\nTell her to let you know when she is too tired and needs to rest or let her sleep in on the weekends.\n\nThese are two things my ex really didn't understand.  He didn't have patience for my needs.  \n\nShe is lucky to have someone who is willing to take the time to learn.
810845
I have Lupus and APS.  WIth treatment and taking care of yourself you can live a fairly normal life.\n\nDespite the symptoms of lupus and the potential side-effects of treatment, people with lupus can maintain a high quality of life overall. One key to managing lupus is to understand the disease and its impact. Learning to recognize the warning signs of a flare can help the patient take steps to ward it off or reduce its intensity. Many people with lupus experience increased fatigue, pain, a rash, fever, abdominal discomfort, headache, or dizziness just before a flare. Developing strategies to prevent flares can also be helpful, such as learning to recognize your warning signals and maintaining good communication with your doctor.\n\nIt is also important for people with lupus to receive regular health care, instead of seeking help only when symptoms worsen. Results from a medical exam and laboratory work on a regular basis allows the doctor to note any changes and to identify and treat flares early. The treatment plan, which is tailored to the individual's specific needs and circumstances, can be adjusted accordingly. If new symptoms are identified early, treatments may be more effective. Other concerns also can be addressed at regular checkups. The doctor can provide guidance about such issues as the use of sunscreens, stress reduction, and the importance of structured exercise and rest, as well as birth control and family planning. Because people with lupus can be more susceptible to infections, the doctor may recommend yearly influenza vaccinations or pneumococcal vaccinations for some patients.
44128
There's a good article about Lupus at http://www.hopkins-arthritis.som.jhmi.edu/other/lupus.html\n\n"The good news is that only two out of 100 children whose mother has lupus will get lupus. The genetic risk is small. It is not strictly a genetic disease."\n\nHope this helps.
333490
I highly doubt she would not qualify for SSI.  She lost a limb; that is a disability.  Call the dshs to ask if there is someone like an advocate who could help her fill out the forms. Call the SSA at 1-800-772-1213 to ask them to send a packet to apply for SSI, and I think you have to specify how many docs that have her records.  I kept putting it off for my son thinking I had to compile all the medical records, and I was wrong, they do that themselves, you just sign the release of info.  \n\nMy son has Tourette Syndrome, and I got letters from doctors and teachers/day care to submit with my application to back up information about problems he has and he was approved within a month and a half, and they pay a lump sum of all the back money from the day applied.
875668
you need to talk to your doctor, if he has documented you disabilities it's you doctors reports that persuades SSI your need for benefits.  By all means file, and put your doctors name as physician, as it was explained to me the Doctor's report is a deciding factor, SSI will send you to a doctor of their choice, for a second opinion,  As it was explained to me you are not expected to take a job of night clerk or anything.  If you are disabled where you cannot do the work you have been trained to do you are disabled.  I wasn't expecting to get disability, but my income had decreased due to working at a lower level, but could not continue and my income reflected the lower level, so got disability within a month.  Health insurance was a problem had to wait to get on medicare,
526723
My grand mother had children and has lupus. She needs to follow her docotrs orders.
632905
Yes - and no. Doctors even have a hard time understanding this disease and how it affects people. \n\nMy sister suffers from lupus. It is a disease that attacks the immune system, much like AIDS does. Only this disease tends to come and go. Sometimes, she is hospitalized for months, then later she doesnt see a doctor for a year. WEird, very hard on her mental health and her marrriage and her job. Was finally let go from a job she had for 17 years due to the time missed...terrible disease.
1156220
well sorry but it will take a while to get an approval for disability ( if you get approved at all)  my friend who has a serious illness was declined twice, had to get an attorney and took three years to finally get approved ( he got all the back pay though)\n\nBut you have to start with social service, go talk to one of the case workers,  they will have perhaps food stamps ( EBT cards)  and at times some emergency money for rent and utilities.
929254
My father is registered disabled but he had some difficulty in getting the authorities to recognise it in the beginning.    He had to apply a second time.  He has ankolosing Spondilitus which is basically fusion of the bones in the spine, he had treatment for this condition when he was younger which made it worse.  Sometimes he is fine and can do a lot more than you say you can do, however when he has a bad day he cant even walk.\n\nI think you should apply again to be registered disabled and maybe get some advice from the Citzens Advice Bureau, they are brilliant with helping to fill in forms, and often the right choice of words can make a difference to the application.\n\nIts difficult to advise on sorting out the weakness on your right side as I do not know what has caused them, I guess it could have been a stroke, which often leaves weakness on one side of the body, sometimes these cannot be rectified and only your doctor can advise you of this, go back to your doctor and talk about your problems, what you want to be able to do, what you can and cant do and get them to advise on what else they can do to help you and what you can do to help yourself.  \n\nI know you may feel you have done this before but I'm afraid you have to keep on to get people to notice what your life is really like.\n\nGood luck
678083
My da died when I was 15 and I wish I had know the information in the site below. It is to late for your mom but not for others. I have helped many since I have learned this info because nobody should have to live with the medical injustice going on today!
812984
nowday;s you have to be really ill to get ssi.you have to not be able to work or fungshion  . my friend has a bad heart desease and she can;t walk 8 feet before she has to sit down... this is her 5th try
1120958
Not only can Lupus cause the more common symptoms mentioned, but it also causes the body to turn on itself. When my wife was diagnosed with Lupus at 23 yrs old, it attacked her kidneys and turned 70% of them to scar tissue. Prednisone was used to treat it and that caused AVN, osteoperosis, osteoarthritis and a whole bunch of other stuff.\n\nNow, at the age of 34, my wife has recently spent 2 weeks in ICU after the Lupus attacked her brain and sent her entire body chemistry out of whack. This condition is referred to as Lupus Cerebritis, or CNS Vasculitis. In her case, due to all of the complications connected to it, is was nearly fatal for her.\n\nAs doctors know little about it, when compared to other more common conditions, it makes Lupus more difficult to diagnose and treat. There is still much research and experimentation ongoing relating to Lupus. \n\nJust my 2 cents for you...