my 6 year old is a little girl and has a seizure disorder. i would really lke to get her a helmet as to prevent any really bad seizures
131147
http://www.freecycle.org/\n\nfind the one for your state/city
8774
A magic show!  Those are always fun.  Not gorey or scary for your daughters.  Or a play.  There are lots of possibilities!\n\nPoetess777
435313
No don't wait!!!! I have dealt with that my whole life, mine is migrains. Your daughter could be suffering migrains or it could be a tumor or blood clot, there are so  many different things it could be. Get her to a doctor as soon as you can, if it turns out ot be migrains then they can tell you about different triggers that set them off. Please don't wait because time could be of the essence!!!!!!!!!!
635813
Get her riding lessons or a week at horse camp.  For my daughter's 13th she got a portable phone.  She can walk around the house with it attached to herself with a microphone and ear plug thing so she can do dishes while talking on the phone.
332550
Kerrie-\n\nWow, that's a big question.  First of all I'm a parent, not a neurosurgeon so don't take this as gospel.  My daughter is almost five and has spina bifida, hydrocephalus and Chiari-2 malformation.  She also has a g-tube (more on that later) but has not suffered from seizures.  She has had the Chiari surgery (it's called decompression) at a very young age-about 13 mos-because her Chiari is pretty pronounced and prior to the surgery she would quickly become sympomatic if her shunt failed (I think we're on about the 20th shunt!).  She was also de-tethered at the beginning of last year because of severe lower back pain.\n\nBasically Chiari means that the brain is shifted down and back in the skull.  This forces the brain stem down into a sort of funnel where it connects to the spinal cord.  When pressure builds in the brain the stem is compressed and nerves are temporarily or permanently damaged.  Typically the nerves that are affected control upper neck and head stuff- breathing, swallowing, vocal cord mobility, etc.  My daughter's cords were paralyzed at 6 mos which caused stridor and aspiration of small amounts of food- hence the g-tube.  During the Chiari decompression surgery bone is removed from around the brain stem making more room for the stem- when the pressure increases there is less effect on the nerves in the stem because there is more room.\n\nTethered cord means that the cord is attached to either the spinal column or scar tissue (in the case of spina bifida).  As the person grows the cord is stretched instead of floating in the CSF in the column.  Stretching the cord usually causes a loss of mobility but can cause back pain.  Actually you are the first parent I've heard from whose child is experiencing pain like my daughter did- usually mobility is the issue.\n\nIs your son suffering from lower back pain?  I haven't heard of Chiari causing back pain but I'm a salesman, not a neurosurgeon.  What I have learned is that the brain and spinal cord are all floating in one interconnected and balanced system of fluid.  Pressure building in one part of the system can cause issues with other parts of the system.  Unfortunately I've also learned that neurosurgery is basically a science of highly educated opinions.  Only so much can show up on an MRI and there are no hard-and-fast rules.  Some kids can tolerate a lot of ventrical pressure and some can't.  Some kids have severe Chiari but are never decompressed because they never show any symptoms- basically their nervous systems can just deal with it.  Some kids lose mobility when their cords are tehtered and others are in pain... you get the point.  At the end of the day it comes down to how much you trust and respect the surgeon and what they are basing their actions on.\n\nI still haven't answered your question, have I?  If your son is experiencing back I would think it's probably caused by the tethered cord so it makes sense that the surgeon wants to do that first.  It really doesn't matter, anyway.  If the cord is tethered that has to be fixed whether it's the cause of the pain or not.  For my daughter the de-tethering was much more difficult to recover from than the decompression surgery but the surgeons were clear that because of the amount of scar tissue from her spina bifida repair that it was probably the most complicated one they had seen.  The decompression was much simlpler- surgery took a few hours and she was home in a week.  It took her a while to get full mobility back in her neck (the surgery is done at the base of the neck) but that was just from the surgical pain.  The Chiari symptoms eased almost instantly and the whole thing was behind us in a month or so.  De-tethering was a much longer procedure with 6+ weeks in the hospital but again her procedure was VERY complicated because of her unique circumstances.  The pain went away after the surgery healed and two months after surgery she wa
497194
http://www.webmd.com/content/article/77/95370.htm\nAbout Childhood Seizures\n\nhttp://www.webmd.com/content/article/60/67118.htm\nODD Resource\n\nAs a child I suffered from seizures until about the age of 8. the medication I was on to help prevent the seizures from happening was trial and error until they found something that worked. Often the medication would make me tired and I would take 2 hour naps in the middle of the day and continue to go to bed at my normal 7:30 bedtime. \n\nIt sounds like the doctor's can't tell you much right now because they haven't received the blood test results yet. Have you already considered talking to your doctor about reducing dosage of medication for the ODD and considering psychotheraphy as part of your child's treatment? Psychotherapy will help guide your child to understanding her condition and teaching her to learn from it and correct her behavior. If the medication is in fact affecting your child's quality of life to the same severity that ODD might have, you might want to consider options. Seizures aren't as bad as they seem although they can be scary for the person experiencing the seizure and those around them. Check out the link above.\n\nI hope you are seeing a nuerologist, as these are both brain-related conditions.
561446
600 mg. Is extreme. Seizure is a high risk. I would say that you should stay with this amount for a few months to see how things are going. More is not necessarily better. You could benefit by having even less and take a second medication. There is a lot of trial and error in finding the good med match for anyone. It is not the same for every person. The Dr. can't give you some thing that they believe will harm you. ( 150mg times 4 times a day ) is double what most people take. (300mg) can cause a seizure if taken in one dose.  The Dr.wants you to be healthy and away from depression. Take notes of how things are going and keep seeing the Dr. hope things go well for you.
123492
check out www.kidshealth.com
226264
Mogens Dam is not a specialist in pediatric epilepsy, but he is the most experienced neurologist and professor in epilepsy in Denmark. He's been my neurologist in two periods, is currently and has been for the last 6 y.\n\nI find him very pleasant and nice to talk to. You can reach him and the link below.\n\nAlso you'll find a link to The Danish Epilepsy Association's pages in English
238538
You are not going to convince him...trust me I have a son that tried to convince me. Be thankful that Dad is letting you go in the first place. He is looking out for your safety, and best interest, so if he is willing to let you go, you have to be willing to follow his rules. Otherwise, the answer will probably be NO the next time you ask!! \nIf your crush has a true interest in you, a helmet isn't going to get in the way....if anyone asks...tell them you are trying to set a new trend or you were having a bad hair day and felt best to cover it up!! Whatever you do...follow the rules you father has set, show him that you can be trusted, and in time he will give you a little more leeway. Good luck and Have fun.
9608
Hi, 2 of my daughters' had seizures. My oldest daughter had them on and off for about 8 yrs. There were conflicting diagnosis's as to the cause. My daughter is a diabetic and Diabetes can cause seizures, that was one diagnosis. The other diagnosis was Epilepsy. My daughter was treated with medication for Epilepsy, but has been seizure free for 10 years now, and has not had to take medication for 9 years. My other daughter had seizures also and she too is diabetic. Her seizures were not caused from the Diabetes or Epilepsy but from high fevers. She never took medication for them and eventually "out grew" them. In my opinion seizures can be very complex or relatively simple, however even doctors don't know all the causes of seizures sometimes the cause is never known. Hope this helped somewhat. I also have a nursing degree and what I learned about seizures from my schooling I think just covers the very basic knowledge we know and there is alot more to learn. I hope your aunt finds out the cause and is able to get treatment. Let me know if this info helped you or not. Email me at s_34_28_36@yahoo.com Good luck and God Bless you.
504999
You can get the proper answer about a bike for your daughter by going to a bike store.  The people working there will be able to  help you a lot.
10460
I would not because the bike helmet is made as light as possible, probably is not waterproof,does not have the same insulation (cool versus warm) and probably is designed for a different type of fall (you are more likely to slam your head in a backwards fall on a snowboard. Besides you will probably look goofy to boot
37341
I've had epilepsy since I was 12 and and EEG is not always going to be give the doctors the answer they want when when they want it. If you are having seizures of fits they just need to find out what meds are going to keep you stable so you don't have to keep going to the doctor for them to figure it out. If they can't figure it out between the two try a new neurologist for a second opinion.
323913
They need to be doing a CT Scan, blood tests etc, I went to the ER because I was fainting and my friend thought that I was having seizures and they did blood tests, and a CT Scan, and they also did an EEG they should be testing this, because there could be something seriously wrong, especially because of her age!! I would make an appointment with her regular doctor and talk this over with him and tell him that you want tests done to see what is wrong, and if they don't do it I would take her elsewhere!  If you have to check out the Mayo Clinic in Rochester MN I live in MN and it is the best hospital in the world!! People come from all over the world to go to the Mayo Clinic!
260701
www.ccs.com has mini boards. They should be good for him. You don't want to get one that is really small because he would have to spread his legs far apart to learn how to balance if he never used one.
554894
This is such a sensitive question. I admire you for standing by your man in this way. It is the right thing to do. And I would get in touch with the national epilepsy foundation. I know there are resources and maybe even support groups for families or couples dealing with this issue. It is not that uncommon you know. I have actually helped someone when this happened to them. It is a little scary at first, but it is also such a loving time to be there for another human being when they obviously need you. Get some more info. Get into a network of support. I know you will be a great friend.