My 17 year old Daughter was just diagnosed with this after a abnormal chest xray.
125205
Hello,\nI don't know anything about this disease sorry.\nI would suggest you get another opinion from another doctor. Have more test run. Blood work, nuc meds, MRI on her lungs if this is where this is found.  etc., etc.\nThis can be caused by a number of things. The important thing for you and your daughter is to make sure this is what she has....Never trust one doctor in serious medical problems. \nYou did not say exactly what or where this disease was found I am assuming the lungs?\nPS: If your doctor did not suggest other test to confirm this he should have.
653398
It sounds like she could be with child, but throwing up blood is not normal. It sounds like she has a serious problem, so please take her to the doctor.
245946
You need to take her to a pediatric neurologist. If she suddenly started having these problems, you might consider a visit to the emergency room. If these problems began slowly, you could consider getting an appointment ASAP with a boad certified pediatric neurologist and have your daughter's condition thoroughly checked out. \n\nThis sounds far enough out of the ordinary that you really need to see a pediatric neurology specialist as soon as possible.
670623
I think she'll be ok. Your pediatrician on the other hand needs to be examined. If that's not in their computer, doesn't it make u wonder what else isn't?
152485
go get a chest ct, my father inlaw has had teh same symptoms, and its lung ca
276111
I'm so sorry to hear about your loss.  One can't imagine what you went through.\n\nMy son had this at six weeks old, it was awful but with a 18month as well to look after, everything was awfult then.\n\nHe then had another attack of it at two years of age.  It was only at that time we realised how ill you can get.  I had to hold the oxygen mask to hids face whilst he fought to breathe.\n\nIt was an horrendous time & I now know that once your child has had it, they will always be suseptable for chest infections etc.\n\nI hope you get some serious answers.\n\nTake care
272113
Suggest to her and your parents that they work together ofr her treatment.  have them go with her for treatment and to help her ask questions.
26337
My son has HLHS. I'm not a doctor, but it sounds like your granddaughter had a similar procedure as my son. Did she have a Fontan? My son is eight years old now -- he enjoys swimming and martial arts and is doing very well in school. He may never be a jock, but our biggest issue right now is getting his handwriting neat ;-). He gets regular checkups from the pediatric cardiologist (every 6 mos. with an annual ECHO and a holter (sp?) monitor every two years.)\n\nWe wish your granddaughter and your family the best of wishes. Let me know if you want to talk.
643785
I have heard that she has cancer. I'm not sure what type but that is what has been going around. Whatever it is, I hope she gets better. That's seems like too much pain for a parent to bear.
27454
I think she should see a doctor. As soon as possible.
385749
My 17 year old son had not been feeling well. He had a blood test which indicated that he had hypothyroidism. His belly was also swelling. We went to see an endoconologist who tapped on my sons belly and than said he thought more was going on than hypothyroidism. We didn't have a clue. He sent us back to our family doctor, who referred us to a major medical center. We were told to drive him there as quickly as possible and not stop. He was admitted at 11pm and we were all exhausted. The pediatric residents on the floor examined him and that was the first time I heard the word cancer. He had a lump in his neck (lympth nodes), under his arm pits, and groin. His belly was swollen and filled with fluid. He couldn't eat anything at all, but they asked him to swallow a liter of contrast for a CT. I really don't know how he did it. \n\nThe entire time we were all calm, just anxious to find out the extent of the cancer. Everytime a doctor walked into the room the news just got worse and worse. My son at 17 handled it all calmly. A team of doctors came in (with the social worker - we quickly learned that when the social worker comes in with the doctors its probably not good news). My son had a volley ball size tumor in the abdominal cavity, tumors on the large and small intestine, rectum, spleen, liver, chest wall, spots on lungs, diaphragm, and malignant asicitis. Whew. I never felt so sick in my life listening to this news. My son was given a choice at that time . . to go home or to stay and fight his disease.\n\nAnd, in that maddeningly calm and philosophical way he has he asked, "Well . . is there any treatment for this?"\n\nHe was told that there was a possibility that the tumors might respond to chemotherapy. Since it was a rare, very aggressive sarcoma, we were told that there were no guarantees, but they would help him fight it if that is what he wanted.\n\nHis response was, "Well. Let's do it than."\n\nAnd, with every treatment he's had in the past 19 months he's had the same response. There is no protocol and few treatment options for his cancer but  his pediatric oncologist and team has worked tirelessly looking for answers. They have been amazing.\n\nAfter 8 months of high dose chemotherapy his tumors responded significantly to the treatment. His primary tumor shrunk over 50%, others disappeared totally, he was able to have one surgical debulking to remove 75% of visible tumors. Last year at this time he still had active cancer and was asked he would like to try an experimental procedure where they heat the chemicals and bathe the abdomen with them. This was to address the tiny and microscopic disease that had embedded onto the diaphragm. All he said was, "Let's go create some information about this. If it works . . we'll know its a good treatment . . if it doesn't work . . we'll still be creating valuable information."\n\nHe had the surgery, they removed his spleen, the tumors on his intestines peeled off, and scrapped as much of the tumor from the diaphragm that they could. The experiment worked and he had no evidence of disease for the past 8 months.\n\nVery early on, I would say during those first horrible moments of diagnosis we all made the determination to remain positive. To face news whether it was good or bad. And enjoy each moment that we had. We also learned to 'live inside the box' when we need to . . to close out any thoughs of the future . . he is here now, in the moment . . and that is how we live each day. This is not to say that we havn't had some gut wrenching, pretty much primordial crying at times . . but at the end of the day, what good is that. You still need to face the facts, good or bad, and just deal with it. \n\nAfter 8 months of remission, he has recently had two nodules reappear on the dome of the liver between the diaphragm. And, so we begin the fight again.\n\n He starts chemotherapy next week . . on his 19th bi
16362
yea she had FOP. A rare genetic disorder that makes the bones in your body grow bones... Very sad and interesting. By the time she is a teenager, she won't be able to move at all.
438595
My 17 year old has cancer but other than fluid build up, he has always been asymptomatic. He did feel his cancer though, but we didn't know what it was. He kept feeling a hard lump in the abdominal area and asked what it was. I didn't know but kind of dismissed his concern. I did feel ill at ease though, but I couldn't put my finger on why. You just don't expect a healthy athletic kid to have abdominal cancer, you have nothing to compare the experience to.  Unfortunately, a month later he was diagnosed with stage IV cancer.\n\nThere are many types of cancers that give no warning signs at all and can progress to a stage IV without symptoms. If you have a feeling that something is wrong, than you need to act on that instinct.\n\nIt is probably best for you to go have a complete physical and mention your concerns to the doctor.\nWhen we were first trying to figure out what was wrong with him, nothing made any sense and in hindsite we should have been communicating more with his pediatrician. So talk to your doctor. Tell him why you feel this way and insist that he take you seriously.\n\nI will always regret not taking my sons comments that something was wrong as seriously as I should have.\n\nAsymptomatic Illness\nhttp://www.nlm.nih.gov/medlineplus/ency/article/002217.htm\n\nhttp://en.wikipedia.org/wiki/Asymptomatic\n\nSome examples of some asymptomatic cancers:\nOvarian, cervical, skin, testicular, breast, prostate, and colorectal cancers
666920
it maybe  what they call a calcified granuloma which would show up as a spot on your lung but that is nothing harmful lots of people have them and they can tell by a chest xray if thats what it is. your doctor is probably right but it would also help if you said your age and what kind of doctor it was that told you that. Also a radiologist probably read the xray sometimes you can get to talk to them about it. Don't panic because it probably is nothing but if it would make you feel any better get a second opinion and/or ask if you can see a pulmonologist (lung doctor).  When it comes to YOUR health you can't be too cautious. If you have any more questions send me a message
432368
Could be a fibroid, which isn't cancer. Further testing will reveal what it might be. She might have to have a biopsy. This is when they go in...possibly by a broncoscopy (camera down the trachea and into the lungs)...view the area of concern and snip a piece of tissue and then send it out for testing. The pathologist will determine if it's cancerous.\n\nBest wishes.
408233
Sounds like an intussuception or a volvulus. Do a webMD search for more info. Doesn't have to be a family history. Just an unfortuante little girl.
460787
Brest cancer!!! Unless she recently had a baby but it doesn't sound like it from your description.