My son (10 mos old) has facial paralysis that is less severe than Mobius syndrome, and I’m trying to find out more info about it.  The doctors are not sure if it is a genetic, developmental, or traumatic issue.  Although one doctor we talked to seemed to lean toward traumatic, with the trauma occurring from the use of forceps during delivery.  The doctor also said that if it WAS trauma, then there was a possibility he could improve on his own over the next few years.\n\nHas anyone had experience with this before?  My son seems basically normal but just has no emotive expression on his face.  He laughs with a straight face and cries with his eyes open.  If anyone has seen this before, have you seen natural improvement?  Or do you know of any treatment? \n\nAny extra information would be helpful.
133349
Hope this helps\n\n"Seventh" cranial nerve palsy due to birth trauma \n\nDefinition \nThis condition describes facial paralysis caused by compression on the facial nerves while an infant is inside the uterus or being delivered.\n\nCauses, incidence, and risk factors     \nDamage to the facial nerve (also called the seventh cranial nerve) just before or at the time of delivery may cause paralysis to the same side of the face stimulated by the damaged nerve. The entire side -- from the forehead to the chin -- may be involved in severe cases.\n\nThe most common form involves only the lower branch of the facial nerve, however. This nerve controls the facial muscles surrounding the lips, and the defect is seen predominantly when the infant cries.\n\nSince the facial muscles on the affected side are weak, the mouth is pulled towards the normal side during crying. Generally, the nerve has been damaged by pressure and the nerve fiber itself has not been torn, in which case, the injury heals and the face returns to normal over a few weeks to months.\n\nMost of the times, a congenital (present from birth) facial nerve palsy like this one has no apparent cause. Occasionally, however, a difficult delivery, with or without the use of forceps (instruments used by physicians to facilitate the delivery of the baby´s head), may result in facial paralysis.\n\nSome factors are associated with birth trauma, including prolonged pregnancy, epidural anesthesia, prolonged labor, oxytocin use (a medication used to induce labor and increase the strength of contractions of the uterus during labor), and large baby size (for instance, when the mother suffers from diabetes). However, most mothers who have these factors do not deliver babies with facial palsy or birth trauma.\n\nSymptoms   \nThese may be observed in the newborn infant:\n\nPresent immediately after birth \nFailure of the lower lip to pull down symmetrically while crying (typical) \nFailure of any movement on the affected side of the face (total involvement, unusual) \nEyelid may not close on affected side \nLower face (below eyes) appears asymmetrical while crying \n\nTreatment    \nIn most cases, observation to see if the paralysis will disappear is the only treatment. Permanent paralysis requires special therapy\n\nExpectations (prognosis): \nFull, spontaneous recovery is the typical outcome.
595685
Poor thing. Hopefully the chemist is open by now. For the skin I used Aloe Vera Bio Active Gel on my kids, as well as calamine. Cool baths helped. Piriton for the itch. Not sure about the mouth, but you could try ice pops. And lots of calpol/nurofen of course. Hope he's over the worst soon. Hang on in there.
299853
This is one source of this story http://www.oregonlive.com/printer/printer.ssf?/base/news/1146882329307730.xml&coll=\n\nThe army only investigated after this story was in the newspaper. The parents contacted the recruiter and were told, " He is a man, he doesn't need his mommy making his decisions." They offered to bring his medical and school records as proof of disability and were blown off. The newspaper article was their only recourse to keep their disabled son safe. Shame on the this recruiter! I hope he is dicharged and severely reprimanded.\n\n\n\n**** As for holding jobs YES an adult with autism IF CAPABLE should hold a job to have some sense of accomplishment, to have something they can be proud of. The military is NOT the place for adults with autism. There are laws that prevent the disabled from being harassed by recruiters for a reason. There is a BIG difference between Xbox games showing military ops and the real deal. Severe anxiety, sensory issues, communication delay's and social delay's are just a few symptoms of autism and make it impossible for an adult with autism to serve in the military.
658862
Hi!  My son was diagnosed almost a year ago with type 1 so I understand how you are feeling.  There is no cure for diabetes.  Yes, God can heal him but all you can do is pray for that and deal with the diabetes until then because it may never happen.  God would not have given you this precious little boy to take care of had you not been able to take care of him the way he deserves to be taken care of.  My heart goes out to you and I pray that God gives you the peace that he has given me to deal with this.  I believe that both of our sons will be better people because of this.  More compassionate and sensitive to others with disabilities.  If there is anything I can help you with or any questions I can answer or if you just need someone who has been there to vent to please email me at randareed1126@yahoo.com.  There is also a message board for parents of children with type 1 on the American Diabetes Association website that has an amazing support system.  Any questions you have someone will have the answer.  There are so many caring parents on their that have felt all the things we have felt and been through it all!  Here is the link to The Place for Parents messageboard http://community.diabetes.org/n/pfx/forum.aspx?nav=messages&webtag=adaparents  \n\nGod bless you and your son.  You will be in my prayers.
449538
Hi, I think autism and sensory disorders (trouble with balance) are inherited because quite a few people in my family are just like the people you are talking about. It could very well be Asperger's Syndrome because both boys and girls can have this and they do include all the problems that you mentioned. However...Asperger's Syndrome has no facial changes. It could be a different syndrome closely related though...lots of genetic syndromes can have symptoms that are very closely related to autism. Some syndromes even include what is called autistic like behaviors. Have you ever thought of getting the family...all of them tested at a geneticist? Also it could be a metabolic problem so you could also have everyone tested with a specialist in metabolics. The tests are usually just a simple blood test...nothing scary or anything. Good Luck!
322791
Hi Mike, I'm sorry to hear this is worrying you. Ironically, just last month, I spoke with someone who has this disorder. This guy is a business owner, and actually very nice. His entire family knows, and understand. \n\nAccording to him, the different personalities were created to deal with stressful situtions. One can be aggressive, another shy, or one extroverted and outgoing. Many people choose to integrate the personalities, rather than get rid of them. This means the personalities work as a team, and understand the purpose each one serves. Not to make light of what you're going through, but sometimes I wish I had a few stand in's. lol Some say it's not an illness or disease, just an advanced coping mechanism of the mind.  \n\nThe main personality is called a "host" and the others are "alternates". These are just a few terms used, but there are others.  To answer your question, if you're over 21, I would begin searching for a qualified therapist, and after you have been confirmed as having DID, I would then figure out ways to tell your family. You can also join one of the yahoo groups dedicated to DID. They might provide more insight and suggestions. Whatever you decide, I wish you well Mike. Here is a link to yahoo did groups. Cut and paste to your browser: http://tinyurl.com/l9bls
67235
I tend to agree with the above person. Although there seems to be quite a bit of info on the internet, it's often better to have it explained to you by an expert. There are different treatment modalities, that I won't go into here. Best to speak in depth with your childs doctor. Best of wishes.\n\nHave you discussed surgical options?
622628
It sounds like he may have some deep rooted feelings and being he is so young, he is unable to express to anyone properly what is bothering him.\n\nDoes this boy go for any child psychology?  He may need to do this as well as take his medication.  Medication alone, can only do so much.  But with the proper therapy and medication, could mean a whole world's difference for that little boy.\n\nI wish him good luck and I hope he feels better soon.  I hope I was some what helpful!
12254
This is a difficult one - especially for your daughter. I don't exactly have the answer or an answer, but I will say we are in similar boats.  My 14-year old son has had epilepsy since he was 8.  All of a sudden he was having seizures.  He didn't really seem to have a problem dealing with the illness until he hit middle school, when the true peer-pressures, and reputation development comes into play.  Now that he's in his 1st year of high school, he's showing the embarrassment of having this disease.  He has wanted to play basketball since forever, and when time came to try out for the team, he just didn't. He said he changed his mind.  He doesn't want me to wear his medical id bracelet, nothing relating to his illness.  All of it stems from his reputation and people not thinking differently about him.  What he and his dad are doing now is having him talk to his doctor and others he may feel comfortable talking to let him understand that he has options and doesn't have to be afraid or ashamed that he has epileptic seizures and as his doctor said, he may grow out of them.  But what I think is we need to find ways to get this across to our kids and let them know that their illnesses don't control who they are; they control who they are and what they can do in life.  And it still can be the best!  I can say that b/c I'm a cancer survivor, I know how a illness can cripple you mentally!  So I keep both our children in prayer and we'll come through! Best wishes worried mom!
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I have a wonderful 12 yrs old son that has a brain stem tumor.He has had seizures since the age of 3.He is developmentally delayed having the abilities of a 4-5 yr old.He too,is my biggest joy.\n\nThe tough part is is seeing him struggle with simple day to day tasks.He will never play sports,drive, or hold down a job.Most likely,I'll never have grandchildren.\n\nThe joys are seeing him wake up every morning with a huge smile on his face.Saying I love you ,Mommy just melts my heart.We home school and to see the pride on his face when he "got it" on a new subject.\n\nThis is a wonderful question.Thank you for allowing me to share my story.I wish you luck with your special angel and hope he goes as far as possible.With a parent like you in his court,he'll do well!!
524564
It does sound as though your brother does have some emotional issues. Your parents should first have him checked out by a physician, maybe it's something organic otherwise I think he might benefit from seeing a psychologist. When my son was a child he used to exhibit almost the same type of behavior you described and when he was in his twenties he started to really behave erratically and was eventually diagnosed as a paranoid-schizophrenia. It's been a hard road living with him like this but we always knew he was a little different and so I guess we've gotten used to it. If he does have a mental disorder, not only he but the rest of the family should seek help in dealing with this sort of illness. It can be very devastating and although they are doing wonders with therapy and medication, these types of disorders can only be controlled NOT cured.  There is a great book you might want to read, it's called "When Madness Comes Home".Good luck.
448879
I think it all starts earlier than one suspects. I am appalled at the way in which children use the term "spastic" as an insult.  What are they learning at home to be so insensitive?  It doesn't get better. I was once in a position where I needed to recruit a typist and I suggested to Human Resources that perhaps this was a job which might be made available to a disabled person who might otherwise find it hard to gain employment.  I encountered bafflement.  "Any particular disability?" I was asked.  I have a son who has been disabled since the age of twelve.  He is hoping for a job worthy of his very considerable intellectual skills, but he keeps his disability well concealed when job hunting.  He has seen too much of people's attitudes. In many ways, we still live in the jungle.
439093
I'm guessing this is for a class... I don't know about a single condition, but all the things you listed are consistent with lower motor neuron, cranial nerve deficiencies. Can the baby see, move its eyes, or smell? if so, there are defects in cranial nerves 5-12, and perhaps some spinal nerves as well, depending on the baby's activity. Either there was trauma to the pons/medulla or a severe birth defect/ genetic condition, or some type of autoimmune reaction against the myelination systems of the nervous system (oligodendrocytes or Schwann cells).  this is a very poorly worded question; perhaps you could clarify.
171673
I don't usually respond to website questions but I read this one and thought I would. My 7yr old daughter has high functioning autism. At first she was diagnosed with aspergers. She is a loner and quite happy to be that way.There are 5 children in the family and she would prefer to be on her own. It saddens me more to see her in the school playground on her own that what it does her.She has an aide at school and is left out by other children because of this - she has only just come to understand that people actually like people.There are a lot of educational things for people with aspergers and autism to help them along on their lives.An example is - social stories (where one learns the correct behaviour in social settings).\nThere is a program called The Dore Program (I think the website is  www.dore.com or could have .au on the end!!!) They take children and adults with learning disabilities - including autism and aspergers - the create exercises for each individual and they are done a couple of timesa day for 12 to 18 months.During this time the client can go from non reading and writing to overtaking their peers. It also helps with behaviour and motor skills. I have read these stories and spoken to a consultant at the institue. \nI know this isnt answering the above question but to all sufferes of any disability there is always hope and tomorow can only be a better day.\nThanks for reading.
602045
1. If the patient is NPO do you need evidence with MBS or some other tests before you do a bed side eval with different lquids and food textures? \n2. Also has anyone had experience with the National standards diets for dysphagia? Would like to know whether anyone likes the standardization, whether it works in SNF settings or not. \n3. Have you known of patients developing swallow problems after a few months after a stroke and they have become medically stabilized. What would cause such a sudden onset. Pt has developed no other problem and progressing well otherwise. Are there some medications (changes in dosages , etc., that might likely cause some side effects that affect the strength and mobility of muscles? Any thoughts on that? \nAnyone with experience with   ** Vital Stim? **   or E-stim? what's the difference? between the two instruments? \nSoem SLPs tend to say E-stim is better than Vital stim. redaing the literature both seem to be based on minimal research and the FDA approval seems to just say that the instrument is safe to use under specific conditions. \n\nMay be it help for your but i did not find anything else about this topic
556875
Our oldest is autistic and wasn't properly diagnosed until age 6. It was actually a relief to find out what was going on. We felt like complete failures as parents because it seemed like everything we did for him was wrong. Once we knew what was going on and were able to educate ourselves, we were able to relate to him better and find a comfortable home life.\n\nAs for how my partner dealt with it... there were times when he was so frustrated he blamed me, himself and the doctors. Of course, I did the same thing. It made our marriage hell for awhile. The important thing is that we resolved ourselves to deal with the situation and we've made it through.\n\nI think all children are a gift from God... regardless of a disability. And, no, I wouldn't have changed anything from conception to birth. There's no guarantee that anything would have turned out differently.
69514
i have it still and im 23. so it has nothing to do with autism, yet my aunties son is autistic, i think it is a little bit like the same thing, kinda shy to talk and feeling uncomfortable in the presence of other people.\nyou should take him to a psychologist, with me when i was about 14, they used to give me games to play, like football and little puzzles to try to relax me to talk, but it never worked. it might work for your son though, so you should try it.