what are the name of some organizations dedicated towards finding a cure for Phenylketonuria (PKU)?
965142
this is a good start, let me know if you need more, good luck
672589
You mean a charitable organization?  Please give more information.
573961
In PKU, the tissue cells are unable to use the amino acid phenylalanine, which is present in all protein foods. Phenylalanine cannot be metabolized, so it and its deaminated products accumulate in the blood and act as nuerotoxins that cause brain damage and retardation within a few months.
419190
Here is the website for Partnership for Prescription Assistance.\n\nhttps://www.pparx.org/Intro.php
124164
Dumpling is wrong. PKU is a lifelong condition, not an allergy. Being off the diet may result in any number of physical changes to the body. It is important to contact a specialist to determine the amount of protien a PKU patient can tolerate.
254415
United Cerebral Palsy Associations, Inc. \n1660 L Street N.W., Suite 700 \nWashington, D.C. 20036 \n(202)776-0406; (202) 973-7197 (TT)\n(800) 872-5827 (V/TT)\nE-mail: ucpanatl@ucpa.org\nWeb Address: http://www.ucpa.org\n\n\nIndependent Living Research Utilization Project (ILRU) The Institute for Rehabilitation and Research\n2323 South Sheppard, Suite 1000\nHouston, TX 77019 \n(713) 520-0232; (713) 520-5136 (TT) \nE-mail: ilru@bcm.tmc.edu\nWeb address: http://www.bcm.tmc.edu/ilru\n\n\nNational Easter Seal Society, Inc.\n230 West Monroe Street, Suite 1800\nChicago, IL 60606 \n(312) 726-6200; (312) 726-4258 (TT) \n(800) 221-6827\nE-mail: nessinfo@seals.com\nWeb address: http://www.seals.com\n\n\nNational Rehabilitation Information Center (NARIC)\n8455 Colesville Road \nSuite 935 \nSilver Spring, MD 20910-3319 \n(301) 588-9284 (TT/Voice); (800) 346-2742 \nWeb address: http://www.naric.com/naric
754827
There are a number of organizations\n\nPeace Corps http://www.peacecorps.gov/\nChristian Children's Fund http://www.christianchildrensfund.org/\nSave the Children http://www.savethechildren.org/
982386
you could try contacting your local social service or human services office and ask them for information. also public health might have some information. \n\nthey could also tell you about advocate agencies such as AARM that advocate for people with special needs and also provide education services.
106424
I had a clincial presentation not too long ago that included a family who had 3 of their 5 kids (yes, it is autosomal recessive and the parents knew that...) \nThe kids said that the felt like they had a pretty normal life, as compared to their friends, and they can for the most part. But, say, if their friends all go out for a pepperoni pizza they just can't dive in. The consequences can be devistating. Permanent mental damage and retardation can occur to someone not adhering to their diet.\nTheir diet just have to be watched and be careful with from birth, for the above reason.\nOften the diet of a PKU patient is controlled by their physician and dietician. There is a company that produce a commerical line of food products for these individuals. Basically, their protein intake is very carefully monitered and phenylalanine is kept at very low levels, and tyrosine becomes an essential amino acid. I hope this information helps.
315577
this might help\nhttp://www.marrow.org/cgi-bin/NETWORK/center.pl?ctr_typ=TC&state=Alaska&st_abbr=AK
406260
Help find a cure for Juvenile Diabetes.
946689
One  fo the best places to help with and they do a lot of good and that is St.Judes hospital.......Danny Thomas was the founder of this org,and now his daughter is taking over since his death.You could  contact St.Judes hospital and i am sure they could direct you.They help with a lot of cancer children,and most everything you give goes directly to the hospital to help the children.Another one is Feed The children foundation......................Good luck
83948
There are so many.....All of them are linked to here\nhttp://students.missouri.edu/~aphia/links.htm
528888
Google Kevorkian. You'll find lots of stuff.
984896
Center for Regenerative Biology - maybe??\n-MM
195283
Two great recipients would be your local or state chapter of the American Diabetes Association (www.diabetes.org) and the Joslin Diabetes Clinic in Boston (www.joslin.org) - Joslin is the leading diabetes research and treatment organization in the country.\n\nHelpful suggestion - make sure you figure this out BEFORE your fundraiser, because it's illegal to do such a fundraiser without being able to tell contributors where their money will go.\n\nGood luck!
610788
I dont know where you are living ,but look into the Queen Elizabeths Foundation website under" Disabled Living Foundation" and also under" emPower "\nand there is another one in Germany under www.FIMITIC.org\ne-mail address www.FIMITIC@t_online.de