does anyone have cervical dystonia?
930655
I spent years going to doctors and finally from a support group online learned to see a movement disorder specialist neurologist.I also have essential tremor and was so relieved when he told me I had cervical dystonia, finally a diagnosis.  I started on increased medication, (mysoline) and botox shots the next day.  The botox works wonders for me.  The pain went away, pretty much in about a month. Have you tried it?  It is very expensive if you do not have insurance, but there are other ways to get it paid for.  Sorry the dbms did not work for you, I have heard that it is awesome when it does.
264091
I have had Cervical Fusion for C5-6 and C6-7 in September 2004.  I have 6 Titanium screws and a small metal plate in my neck.  With my surgery they went in through the front of my neck which left a pretty noticeable scar.  When they cut the front of your neck as opposed to the back, the procedure is called "Anterior Cervical Fusion".  I was in such a tremendous amount of pain I really had no other option but to have the surgery.  \n\nI was so scared I can't even put it into words.  When I woke up from the surgery the pain was horrendous, I will never forget that moment.  I was scared to move my head.    The first thing I did was wiggle my toes to make sure I wasn't paralyzed.  (the chances of that happening are very slim and I knew this but still had to check) :) \n\nBelieve it or not, I went home the next day.  I was very careful about everything I did (which was not much for a long while)  It took me alot longer to recover than most people because I am a smoker.  When you are a smoker they have to take bone from the hip to do the bone graft.  I had to have lots of Physical Therapy and walking was difficult to say the least.  \n\nI recovered in about 1 year but again that is not the "normal" recovery time.  Now my neck does not hurt and the procedure was a great success.  I have a great Orthopedic Surgeon!\n\nMake sure to do your homework...\n\nHere are some good links:\n\nhttp://www.spine-health.com/topics/surg/overview/cervical/cerv03.html\n\nhttp://www.espine.com/diagnosis_acf.html\n\n\n\nFeel free to message me through Yahoo if you need more information.  Good luck and God Bless!
917189
We could use more information. Do the bumps itch? If not, that's strange. I'd be interested in hearing what you find out.
903331
Interesting\ncould be anxiety\nbut also could a condition called (Dystonia or Tardive Dyskinesia) which is typically caused by other psychotic medication but could be zoloft too? worth considering indeed since all those medications affect the brain.\nmy advice now is to talk to a psychiatrist (not a psychologist) & also a neurologist.\nif it was me, I wold stop the zoloft (after talking to my doctor)because if it is that condition(dystonia) then it MAY be even irreversible but hopefully it will stop once you stop the medication.\nlike I said, dont ignore it & ask for those 2 professionals mentioned above for their openion.\ngood luck
716858
I have tingling in my hands and arms and sometimes it hurts really bad, been doing it for several months. I went to the doctor and he took x-rays. It is a problem with my neck. Have they taken any x-rays? Maybe the next step would be to have some or maybe go see a chiropractor, they are miracle workers if you get a good one.
714856
If there is no pain involved (when you move your neck laterally and up and down) then it is probably your cervical vertebrae (C1 - C7) Some people's cervical vertebrae protrude more than others.
278107
I am praying none shud have this condition...usually life threatening but rare nowadays by the advent of newer antibiotics...but it must be really painfull condition and cud expect loss of sensation on one side of body..
190549
car accident with family about 7-8 years ago. nobody hurt but me. I got chronic whiplash. went through physical therapy, biofeedback, massage therapy, and have been on so many meds for it that most pills won't work for me anymore, and I developed an allergy to vicodin. now I get migrains, and the odd muscle spasm. really sucks. we got rear ended by a truck pulling a boat while pulling into a gas station. since we were hit while pulling it, it was at an angle, and hit the left corner of the back bumper. I was sitting in the back left seat, so I got the brunt of it all. but at least my parents and sisters were fine, and we didn't get hit worse. and insurance payed for all of my treatment, so that was fortunate as well.
882655
Yes, I had amazing results...at one point they also brought in a massage therapist and taught me a couple of simple techniques to do on my own...I suffered greatly from migranes for a long time, but after Chiropractic care, I hardly ever have one now.  I go for a routine adjustment every few months and no problems at all.
382519
Yes. I had it in 1991. I caught it at Club Med in St.Lucia, French West Indies. It started with a horrible headache which got worse and worse, lots of nausea, pain all down my spine. I was hospitalized for 2 weeks and not supposed to fly for two months. I lost 30 pounds, was light sensitive, couldn't stand noise. But it isn't a fatal illness, though you wish you'd die, the pain is so horrible. It is not as contagious as the bacterial version either.\n\nYour poor, sweet wife. Give her a hug (softly) from me. I feel for her.
939549
You can click here http://www.dystonia-foundation.org/defined/early.asp  to visit the Distonia Foundation.  The spelling is torsion - with an 's'.
917210
I had one September of last year. Unfortunately, part of mine died away. Apparently, that doesn't happen often. Up until that point it was looking pretty good and after the recovery of the surgery there wasn't any pain associated with it. I just had the Dorsi flap reconstruction (from the back) though and since then I have limited movement, muscle aches and spasms. Feel free to email me for specific questions.
835580
You might try going to a massage therapist who has experience working with neck pain. If it is still painful after the massage, you should probably see a doctor. \n\nGood luck.
15232
I too have this condition, along with my older brother, a son, a nephew , and my now deceased father .   All you may want to know about your condition can be found in the current issue of Consumer Reports issue of "onHealth" Volume18 Number 1 - page11. Learn to live with it as all of us have done except for my father.  Physicians did horrible things to him in search of a cure and he shook till he died at 80.
171359
I am so sorry that you and yours are having to experience that malady. A specialist in Neurology is my suggestion. If you've already consulted a Neurologist, check out yet another one. Truly, I will pray that you get the wisdom and help to deal with this.
830697
Hi Stephen.  I am sorry to hear about your suffering.  I have a couple of thoughts/suggestions.  \n\nFirst, have your been properly tested for vitamin B12 deficiency?  This is a common cause of peripheral neuropathy and most doctors do not know how to properly test for deficiency.  Usually doctors order a serum B12 test, however this can be normal even with deficiency.  The best laboratory tests for B12 status are serum Homocysteine and urinary Methylmalonic acid.  So, be sure this is not an issue.\n\nSecond, I would like to suggest a powerful book by Sherry Rogers, M.D.  It is called: "Pain-free in 6 Weeks".  She is an expert in environmental medicine.  In the book Dr. Rogers explains many, many causes of chronic pain that are not well understood (or even known) by most doctors.  The book is available at Amazon.com.  I highly recommend it.\n\nLast thought, how many Chiropractic evaluations have you had?  Have you ever had a neck injury (e.g. whiplash, sports injury, fall, etc.)?  It is not common, but an upper cervical subluxation could cause your symptoms.\n\nI hope this has been helpful for you.  Best wishes and good luck.
947032
YESSSSSSSSSSS!!!!  ME!  I had the Spinal Cord Stimulator implanted and it helped me so much.  Unfortunately my body HATED it and rejected it and I had to have it removed.  My surgeon said he had never seen a reaction like mine, so I know it's not normal.\n\nI have had chronic sciatica down my left leg and into my foot for 14 years.  I had surgery to correct a ruptured disc, but it took so long for the doctors to diagnose the bad disc that by then I had damaged the nerve.  Surgery helped with some of the back pain but never helped with the leg pain.  My most recent MRI shows scar tissue wrapped around the nerve root. Surgery really isn't an option because it will just cause more scar tissue to form.\n\nI wish you much luck and good health.  Feel free to contact me if you have any questions.