Have you had some one in your life with ALS?
916442
ouch, sorry. well my uncle has ALS, he's had it since about 2002, he's in a wheel chair now and can't talk. my uncle is one of the most nicest people in my life, when we first heard he had it my dad came down stairs crying, that was the first I can remember seeing my dad cry. everyone loves my uncle and fortunately my uncle is gratefully for his time right now. I hope you feel better soon.
703185
Yes.  I have.  It was someone I knew, that I had grown up with.\n\nShe used to take the bus to this one shopping center, always in July, to get half price bathing suits.\n\nWhen I saw her, I was talking to her, and that is what she was doing.  I didn't think that much about it, but there was a rumor for a long while saying she had died.\n\nShe got off the bus.  The person with me said, Oh boy, who were you talking to?\n\nI found out later she had died by then.
1084098
as an above the knee amputee, the right leg (my gas pedal foot) is gone and i was a driver for 25 years for a living, i was in the hospital and rehab center for three months healing, building upper body strength and learning to transfer by myself without the help of a therapist. i had to build the strength in my left leg to hold all my body weight while i stand to transfer while holding on something for balance. \n\ni had to learn to stand on one leg with holding on the bed, wheelchair, walker, handrails, i had to learn to do things using only one hand, such as pulling my pants up after using the restroom. \n\ni had to learn to transfer to a wheelchair and push the wheelchair with me in it, not so easy as first, as you get stronger you can go faster. but going up ramps are still a pain, i can only do the lower ramps, no steep ones, i ask for help to do those ones. \n\ni had to learn to cook, do dishes, laundry from a wheelchair. i have to have someone with me to do groceries to push my grocery cart while i wheel around the store buying what i need.\n\ni am in the process of getting a prosthetic leg now, so i will have to learn to walk again with it. it will be a process since it has been over a year since i walked.\n\ni have to say, if you don't have any experience other then driving, it will be hard to find a job in a wheelchair.\n\nif you want to talk to me about more just e-mail me and i will answer the questions as best as i can. i will say being handicap is not easy, but you can live with it. you have to have a positive attitude, and don't ponder on your handicap, just do what you can do and the rest will come back slowly, but it is coming back.\n\nexcuse my spelling, spell check did not work.
974606
I am very grateful to have had two severely disabled aunts when I was growing up - not grateful that they were in pain, but grateful to see how they worked around it, overcame it, achieved so much - college, careers, etc.  \n\nAlso I am grateful for a gift they gave me which is the ability to look beyond disabilities when I see them in others - to consider the needs of specially abled people, without condescending to them or assuming they can't do anything.  \n\nThank you Mary and Martha, and may you rest in peace.
494204
My life partner was very sick for most of the time we were together - close to 27 years.  He had diabetes, epilepsy and was often sick and in the hospital.\nFinally, he had a stroke, and I had never dealt with anyone who had a stroke, and he kept on saying that it was a seizure, so I believed him.  He did not want to go to the hospital - he said he was fine - and I hesitated to take him to the hospital.  Finally in the middle of the night, he told me that he was paralyzed on one side, and it was then I realized to my horror that he had had a stroke.\nMy regret is that I did not take him to the hospital when I got home from work - and in just a couple of years, he passed - all the ills caught up with him, and he gave up on living since he had to depend upon so many people at that time.\n\nHe may have still died even if I did take him to the hospital that fateful day when he had the stroke, but of course, I'll never know for certain.\n\nI don't blame myself - really - since he told me over and over that it was a seizure - but I wish I had had more experience with strokes - his speech wasn't slurred and he "seemed" to be himself...I simply did not know.\nNow he is in heaven - no more pain, no more misery - just absolute peace and happiness forever.
470099
Thoughts on Families who Have Lived Long-term with Pancreatic Cancer\nhttp://www.pancreatica.org/survivor_stories.html
572555
i  havent,  but  my  brother  has.  he  tried  to  get  a  truck  driving  job and they  checked  his  credit.  he  didnt  get  the  job  because of  it.
822963
My Hubby and his Mother have.\n\nIn the house they live in when he was a baby, the previous owner killed himself in the back bedroom because his wife left him.\n\nThe ghost hated woman, and used to poke my MiL all night.  He also pushed her down the stairs when she was pregnant.\n\nThey have been back to the house since, and there was a squatter living there and said that the last tenants we a load of female students, who just left the house screaming in the middle of the night.\n\nMy in-laws also now tell me that there was a ghost in my old house, in my son's bedroom.  And whenever they came to stay it kept waking them up and throwing fireballs at them.
459586
I do.  Hi, nice to meet another chiarian. How is life for you?  I have been diagnosed with ACM since 1999.
393394
For me, it was when a friend of mine offered to push me around an amusement park in a wheelchair, just so I could go. I was 38 years old at the time and had disability come at the age of 34. I have a hard time accepting it. Anyway, I was going to stay home and not go on the field trip with our kids because I knew that I could not walk it. She offered, and then per-swayed me to go. We hung out all day and had a great time. She was totally unselfish in her act of kindness. She enjoyed my friendship enough to inconvenience herself. It meant the world to me.
483723
Many times.When my first boyfriend and I broke up. When my husband cheated on me. When my sister died at 46. When my brother died at 36. When my mother died. Two weeks ago when my son-in-law was diagnosed with cancer at 28. One night when I was having chest pains and didn't think I would live to see the next day. Many other times too. through out my life. I just say to my self. This to shall pass. I wish I knew more about whats going on with you. So maybe I could help. Some of the questions people ask are to vague. We need more details. Sorry life is hard for you.Right now.
1171570
Not me personally, but my nephew has.  My nephew is an extreme special needs child. He has cerebral palsy and epilepsy.  Seeing an 11 year old in a wheel chair that doesn't talk, feed himself, and drools a lot (his medications cause that), cause people to stare. Sometimes it's a stare of pity. Sometimes a stare of disgust.  Fortunately, there are people that are nice enough to ask my sister his affliction, instead of staring.  They prefer to be educated. Unfortunately, a good portion are heartless, and only see his disabilities.  Not his great smile, or hear his wonderful laugh.  He has taught me much in this world about love, patience and most of all, civility.  I wish others would take his lessons to heart.  I love you, ALAN!!!!
660244
do you have any single brothers? uncles? cousins? nephews? grandfathers? How old are you sons? Is this genetic? I want what you have. You are so lucky. She is so lucky. You guys take care of each other. you give me hope.\nlove yall and don't even know yall
136626
Although divorced now, when I was married we just had our first child. Shortly thereafter, my father-in-law was diagnosed with terminal cancer. He stuck it out with us for two years. As his time approached, everyone knew and my wife (at the time) gathered with her brother and mother at his bedside. I stayed home with our son. That night at about 11:30 he passed. About 1:00 am that morning, I awoke to hear our little son talking in his room. This went on for about 20 minutes. Then quiet. I fell back to sleep, and upon awakening in the morning went to get my son. When I did, I asked him about his talking last night. He said yes, he was talking to Pa pa. I cringed and said what! He repeated, he was talking to Papa. I said where was Papa. He pointed to the window in his room! I was in a cold sweat, and didn’t know what to say!\nSuffices to say, from that point on, I believe there is more death than we can know!\nThis is a true event!
190624
Yes and yes.  On more than one occasion I have either seen, heard, or felt the spirit of someone who had passed.  A little boy use to visit me at regular intervals.  He would stand next to my bed until I would sense him and open my eyes.  He would smile, then disappear.  I haven't seen him since my second son has been born.  We smell smoke every time my wife's grandfather is near.  In our old house, there were cold spots that moved around the house.  Our cats would move around the spots like they were trying to avoid running into someone.  I watched two surgeries being preformed on myself and was even able to give details and repeat parts of conversations and actions of the doctors and nurses.
399350
Mine is waking up after months in a coma.  Not having any memory of anything except my kids and husband.  I was then told I was no longer married and then I begged to speak to my Mom and I was told my Mom died 1 year earlier.  I wasn't even in the State where I had gotten ill.  Now, I still have amnesia and my short term memory is barely there.  I write a lot of things down.  I then was told I married again and I do not remember getting married again (after the West Nile Encephalitis).  The man took advantage of me and my very serious condition.  I am still trying to find a lawyer to get it annulled.  My life has been hell ever since I woke up. Sometimes I wish I never woke up.  And I also had to be brought back to life 2 times, I do not recall anything.  I do believe this is a good thing in the long run.  But I had to teach myself how to write, add, subtract, type, etc. again.  I did not get any help from anyone until about 9 months ago.  The rehab program is wonderful and I am not the same person, but I know that I just have to survive differently.  Your Dad was a very lucky man.  He didn't get any brain damage from that incident.  He would have been in the same situation as I am now.\nI'm glad he is okay and you didn't have to endure a great loss.
214612
Familial ALS represents between five to 10 percent of all cases. The rest arise spontaneously and mysteriously, making seemingly random attacks on previously healthy adults. ALS can strike anyone, anytime.