I have joint pain, migrains, I stay exalsted and enemic. I feel like I am all alone in this.
199011
Like all the previous replies, know you are not alone. We all have this disease and that is why we are able to reply here and help you out.  It is extremely frustrating when others don't understand the disease, or find it surprising how we can get so tired so often; how we can be in pain so often.  Sometimes I truly believe others think we are making it up. I am on a sick leave from work due to a string of flares that would just not go away. I get foggy spells sometimes, I am usually tired most of the time, and my joints get very achy and I can be bed-ridden for the entire day. Then some days are flare/pain free and you wouldn't even know I had the disease.\nOn a side note, I also have been taking Plaquenil for the past year and a half and have always been worried in the back of my mind that I would be within that small percentage who suffer eye damage from it. If you are on Plaquenil (hydroxychloroquine is another name for it)--make sure you see your Optometriest twice a year, rather than once a year.  \nLastly, to all the people who replied to this question and are suffering from ANY auto-immune disease, I wish you all the best of luck and hope that someday they will find a cure for us all.  Take care.
548770
I know how you feel. I've been there and its really a bad way to feel. If you want you can e-mail me. eula_hill7@yahoo.com I would be happy to be your friend.
338278
You're not alone at all. There's lots of people who feel exactly the same way you do. I've destroyed my life countless times and been in the hospital a few times as well. I've been on loads of different meds as well and am now hopefully on the right ones.
199305
what do you do as a job? i found that i had to change my attitude in a lot of different areas of my life. i don't know exactly what i'd suggest for you since i'm not sure what type of work you do. are you religious at all? that is something i got away from and i found myself sinking deeper and deeper into anger and despair. have you talked to your doctor about it? i have had to stay on an antidepressant. my family has a history of depression. sometimes we just have chemicals in our brains that are out of whack. it is hard to deal with life if your brain isn't working properly. i have made myself always look on the bright side. i dont' know you, but as a starter, you can be happy that you have a roof over your head and at least some type of employment. i honestly know how you feel. please don't consider killing yourself. i don't know how many times i made passive/aggressive attempts to harm myself. i was wreckless and i did not care at all. it's an awful feeling. i really suggest you talk to a doctor. psychological sickness is the same as physical sickness. some people do not understand that. there are methods to heal yourself. please talk to someone. i'll say a prayer for you.
515075
HI Angela are you under alot of stress/pressure at the moment and feeling tired or overcome even with simple things. Has your weight changed recently and did you get you blood sugar levels checked recently in case of diabetics.\n\nHave either your mother or your young sister ever presented similar symptoms as to the dizziness, blackouts foggyness forgetfulness and feelings of unreality.\n\nYou don't mention having pain or feeling fatigue or sickness. I have the symptoms you explain except the blackouts and other smyptoms. I have also pain that migrates fatigue sickness and mood swings and numbness. I am diagnosed with Fibromyalgia/ME since 2000. I know other Fibro/ME suffers who have regular blackouts with the symptoms you present plus pains fatigue mood swings and numbness. \n\nThis is difficult to diagnose and nothing shows up on scans etc which can seem to the un trained lay person or doctor in some cases (all in the head and the patient is depressed or lazy)\n\nTry to relax a bit and not dwell on this until you get the results of the brain scan back I know it not easy for you but worring can't do any good.\n\nTake care around machinery and do not drive and take it easy hubby's can some times make you feel worse at times like this if they don't support you or have compassion. \n\nAsk him to help out more and not hurt it doesn't work explain to your young children that mummy is feeling poorly and loves them very much but just needs to go slowly and cant rush about like a bat.\n\nHope you get the help and answers you require to take charge of a very frightening situtation. \n\nTake LOL.
474399
Well yes for once i do feel like you. And the week that passed i was in the eye of the storm, loosing my cat and watching my puppy die. Since i have no friends either in the country i live the last 3 years, i lost my 2 precious "babies" that kept me some company, altho im only 26 and not bad looking.\n\nIn previous summer i had a horrible incident of panic attack , i could not breathe. I went to Hospital but nothing was organically wrong with me, it was psychologicly caused from anxiety and feeling awful all the time.\n\nSince then, and becouse i hate having panic attacks i try to relax and never let anyone spoil my personal moments.\n\nIn this i want to to point out how much important it is to focus on your life in case you have been focusing on making other ppl's lifes better and neglecting your own. (just in case)\n\nAlso, friends are easily made if you make an effort. I grew up travelling around and i know how hard it is, im not good at it either. But i have learned in practise, if you are happy to make friends, you will at the end! It is natural.\n\nJust dont expect too much from ppl, and always be easy on yourself...especially if u feel bad...take your time, cry or be lazy, dont ponder and dont ask "about the future"\n\nEnjoy your ,even lonely, moments. You are definitaley, NOT ALONE in this.
349498
I feel your pain  as I too do not like to go to doctors, however; it is important that you do go. Look to a friend that has a doctor that they trust and go see that one, when you first see the doctor tell him/her how you feel.
199954
chronic aching fluish pain all over my body daily\nosteo knee pain\npain from the death of my mother\npain in my relationship\npain from not feeling loved anymore
133804
no you are not alone. for the longest time i got the same feelings only i would lay ther with my eyes open, not beeing able to move my body, it only lasts a few minutes but feels like forever. Take niacin(b12)
601854
Find a friend, if that doesn't work there is always BEN&JERRYS Chunky Monkey, it always makes everything better.\n\nBut honestly, I have felt all of those things, and that is not a good place to be.  I hope that you can realize that you are special and of infinate worth.  It breaks my heart that you feel that way. Feel free to email and we can talk, you don't have to feel so alone and that can be a start.
173475
i completely understand. i have the same problem. i think you have to be happy. just because there are people around doesn't mean you can't be lonely. like something is missing and you're not quite sure what sometimes. doctors sometimes help but i think it's all something that can be worked on by ourselves it just may take awhile. i'm sure this isn't really an answer but at least you know you're not alone in this aspect :)
303080
I know how you feel. My mother was diagnosed with fibromyalgia about 8 years ago. She is in shocking pain for which she takes prednisolone. She is allergic to many things so this is her only option. She also suffers from extreme tiredness and very weak and sore muscles. She also has Mitochondriamyopathy which contributes to the fibromyalgia. I have been having a lot of trouble for several years now and my physiotherapist thinks I have fm as well. I can understand how you must feel. Are you very sensitive to touch? that seems to be a major problem for my mother and I. I don't know if there is any other suggestion to help with pain since you are on meds, apart from hydrotherapy which is what I am doing at the momment. It allows you to get moving more freely without the weight of your body putting strain on your muscles. Keep moving for as long as you can, the hydro really does help. Good luck.
314356
Go and see a GP and request for a MRI scan. The scan will X ray you inside out. This should help you to resolve some of your problems.\n\nUse the scan to check for cancer also. It may be something that makes you feel sick.
338651
I had the same problem at 15 but back then you just lived with it.  I have had both osteoarthritis and rheumatoid arthritis for the past 50 years and let me tell you, it's no joke!  Sissies don't make it; it takes a lot of grit to keep going.  I've had a knee replacement, a lumbar laminectomy, a cervical discectomy and in 8 days, I will have a total hip replacement.  I know how very frustrated.  Personally I did not have any luck with therapy, orthopedic inserts, braces, or a TENS unit.  I have taken Voltaren 75 mg. twice a day since 1990.  I have walked with a rollator for two years.  I have no answers for you but I feel your pain, both physical and emotional.  I have a wonderful team of doctors and surgeons.  If it were not for my faith in God I would not have anything to look forward to.  God bless and good luck!
373166
I am sorry to hear about the pain you are having...\nI was diagnosed with fibromyalgia, chronic fatigue and rheumatoid arthritis.\nI would find another doctor, a more understanding one..\nThe tests (at least in Australia) for fibro and chronic fatigue, well they have no definitive tests, and it is mapped by a thorough examination and you go through the history of your pain and then doctors and specialists and they will be able to answer your questions..\nI hope you find relief....
165166
Sounds a lot like depression. You need to see a dr. and tell him your symptoms. Problem with it is you have no energy so you lay around & the lack of exercise and just getting out of the house makes it continue to progress & get worse. You may need an antidrepressant. (worked for me)
172013
me, too. It has been going on for a while now. I actually fall asleep at work sometimes, or am close to being in physical pain trying not to.\n\nI asked for help on here too, and got lots of good advice--the best I thought was that I should get more exercise. I bet that really would help. Only problem is==>too tired to start. When I get home all I want to do is crash.\n\nI have been thinking about going to the doc to rule out anything like diabetes, or thyroid probs, or hormones, or God forbid, cancer, lupus, etc. There are SO many physical causes for tiredness including depression, chronic fatigue syndrome, allergies, and so on.  So I guess we need to see first if we are otherwise healthy, and then see if we can find an exercise partner to make us shake a leg. I hear that once you really get into an exercise routine, the tired feeling goes away.\n\nI am willing to try if you are.