I have lupus and I am almost always exhausted.  I only have the energy to do a fraction of what I used to.  And, as I have an energetic seven yr. old daughter, who wants Mommy to do activities with her, I'm really having a hard time.
200030
I suffer from the effects of lupus also. Your energy level is a hard thing to deal with, believe me I know. I personally do what I can when I am able. Have you talked with your doctor about it? My doctor gave me this same advice. "Do what you can when your level is up and rest when you need to". You have to allow your body to catch up. Sometimes when I over do it I end up in bed for days. Each person is different. I hope you have a good relationship with your doctor or doctors like in my case. So, when things change with your body's' health you can get the best advice for you. I would love to talk sometime, since we have the same disease. I know from my own experience that talking helps.
518598
Perhaps your energy level was just low.  Have a good dinner, get some good rest, and retry tomorrow.  It'll probably be better if you're usually a better shot.  Don't try to change anything big if you're usually a better shot.  My daughter is a baller, and once in a while, she just can't hit anything!!
86815
I've been on some pretty heavy doses of steroids in the past, the toughest part is preventing yourself from eating everything in the house!  Try and cut down on the salt and processed foods (incredibly high in fat and salt).  Look for alternatives to flavour things like pepper, lemon juice, spices (I went through a Curry phase). This still may not prevent the typical symptoms of steroid use like Chipmunk cheeks and a round tummy, some people just exibit those symptoms.  Just keep an eye on your weight, try and eat healthy, and don't let Lupus stop you from being active.
32078
/Get check for Parkinsons and Lupus.  I have personally seen someone who was diagnosed for MS, but her movements look more like Parkinson's.\nRN
484662
Have you thought about filing for Social Security Disability?  And then I would also contact you county health and social services department.  They may be able to get you on your state medicaid program.\n\nI have Lupus and APS....it isn't fun.  So far I haven't been in the hospital this year.  First time in a long time.
396306
Looking for answers is a great way to help her.  Activities like dancing, walking through the mall, travel, etc. can really take its toll on someone with lupus.  It is a chronic disease and your girlfriend is probably a lot like me....and doesn't want to risk losing a great guy by telling them how difficult life can be living with Lupus.  \n\nDealing with lupus is a personal thing.  Don't push the issue but be understanding if she asks for alone time.  \nSome things that really help me are:\n\nDrop her off close to the place you are going instead of making her walk extra distance.\n\nTell her to let you know when she is too tired and needs to rest or let her sleep in on the weekends.\n\nThese are two things my ex really didn't understand.  He didn't have patience for my needs.  \n\nShe is lucky to have someone who is willing to take the time to learn.
3334
Sounds like the baby had some effect on you.  I'm not saying 35 is old, it was my favorite age, but having a baby takes an awful lot out of you (I'll bet you noticed that without me saying it).  Then you're not sleeping right and definitely not excercising like you should, and the extra weight.  All that can add up to some unusual problems for you.  If it's severe you ought to see a doctor who will take a good look at it and maybe try to rule out arthritis.  Not a doctor that likes to prescribe pain pills for everything, that'll cause more problems.
614609
Too many possibilities ... but given your gender age and just a blind hunch, ask your doctor about RA and SLE. He might want to do some blood work and check your ANA values.\n\nDo your joints feel warm to the touch?\nDo you have any unexplained rashes?\n\nYou can send an email to me if you wish to give me more info.
221092
My Aunts have this--they are all in their 50's.  None of them were diagnosed with it until they were in their late 40's & early 50's.  They are all 3 coping diferently with it as it has affected them each differently.  They all still lead very active lives and don't let it slow them down.  It's a matter of mind over matter--they each make sure they get plenty of rest before and after things that they know will wear them out, are careful about their diets, and have sought the most agressive treatments they can get.  They are all happy in their lives and haven't let the disease control their lives.  They treat it like everything else they've had to deal with in thier lives--it's just another challenge!
144801
I got that way from lack of energy, turned out I had cancer and it was sapping my energy. He takes it personally, but I can't help it.  Good Luck!!
359283
I am extremely sorry to hear your story and you have my hearfelt sympathy.  I can only imagine the deep pain of hurting you must go through everyday.  I really feel for you and I hear and support what you are saying about paying more attention to your kids and looking out for any early 'warning signs'.  I can't really advise you on anything you're asking for but I just wanted to write and wish you well, may God help you in whatever you do.
503343
i was the same way with my 4 yr. old. and i told my doctor, and she gave me some samples of lexapro, which works great !! helps well with the moods also !! so the best answer i can give you is to go to your doctor and explain what your symptons are and how your feeling. always remember doctors can help.
618588
I suggest you see a health care specialist. it sounds like you might have something more serious. my mom went through some symptoms like that when she had fibro mengia. which is fatigue, massive times of urinating and pain or dizziness and the blahs. or it could be something as easy as like when i had mono (the kissing disease) i didn't feel like eating all my body wanted was sleep and i couldn't stop myself from falling asleep at weird times and places. but since i am not a doctor it could be something else completely. just go get checked out! wish you all the best!
300760
I also have SLE Lupus....I get the sores/hives on my scalp mostly. What meds are you taking? Are you a stay at home mom? Steroid creams do help and yes, stress makes it so much worse. Use a sensitive skin face wash and use a steroid cream prescribed by doc. Take good care of your self and get the book Healthy Healing...lots of good advice for Lupus symptoms. Try to go on a detox for a week...this makes skin clearer and helps muscle pain.\n\nHope this helps. Email me if you want to know more about the book. I can email back everything the book says to do.
210049
Hi. I have lupus too and also am on Plaquenel. \nDon't keep scrubbing your face. That will only make it worse. Use a gentle moisturizer. I use on by Mark. that is very light. Maybe try using a gentle cleanser like Cetaphil too.
522119
You aren't saying what type of medications you're taking. The stronger the pain medication, seems the more side effects like sleepiness go with it. Can you take Ibuprofen? \nI'm 40 and it sounds to me like you've done quite a bit in your life and you want to continue to do so, especially because that's what your children want? Children, bless their hearts, usually want what the parent wants, for their parents to be happy. =)\nAre there things you can do that aren't physically challenging? Maybe sell stuff on Ebay?\nIt's hard to give advice on something I have little feedback on. I hope you find the answers you're looking for.
611513
I am chronically ill.  Lately I found that my doctor has been mal-treating me for the last four years.  I am a peaceful person, but this has had me furious.  I have thought how much fun it would be to break him in half.  So, in this case it is good that I've not gotten out much.