GBS is a neurological syndrome that causes the casing your nerves are in to be stripped. in addition to lose of motor functions, It causes paralysis. I have chronic GBS or CDIP. CIDP is rare, that's why I need to know someone going through the same syndrome.  I need to know what I'm feeling both physically and more so emotionally is the norm.  The syndrome is rare and there isn't much known about the residual and long term effects. It's tough for me and my family.  They feel as alone as I do.
202699
If you haven't tried it already, ask your neurologist about IVIG.  I have truly seen it work miracles.  They might be hesitant to use it because it is VERY expensive, but I think it is worth a try.
544823
http://www.mayoclinic.com/health/bells-palsy/DS00168\nBell's palsy\nIntroduction\n\nBell's palsy is a weakness or paralysis of the muscles that control expression on one side of your face. The disorder results from damage to one of a pair of facial nerves that runs beneath each ear to the muscles in your face.\n\nThe condition may result in a droopy appearance of your face. This can be a blow to your self-esteem, but most often Bell's palsy isn't serious.\n\nThe problem can occur at any age. Bell's palsy occurs more often in pregnant women, in people with diabetes or upper respiratory ailments, such as the flu or a cold, and in people with conditions that compromise their immune systems. Also called facial palsy, Bell's palsy is named for Dr. Charles Bell, a 19th-century surgeon from Scotland who first described the condition.\n\nBell's palsy clears up on its own within weeks or months for most people. In some cases, doctors prescribe a corticosteroid medication within the first few days, hoping to increase the likelihood of a good recovery.\nSigns and symptoms\nCLICK TO ENLARGE\nIllustration showing Bell's palsy Bell's palsy\n\nSigns and symptoms of Bell's palsy may include:\n\n    * Sudden onset of paralysis or weakness on one side of your face, making it difficult to smile or close your eye on the affected side\n    * Facial droop and difficulty with facial expressions\n    * Facial stiffness or a feeling that your face is being pulled to one side\n    * Pain behind or in front of your ear on the affected side\n    * Sounds that seem louder on the affected side\n    * Pain, usually in the ear on the affected side\n    * Headache\n    * Loss of taste on the front portion of your tongue\n    * Changes in the amount of tears and saliva your body produces\n\nThe severity of Bell's palsy can range from mild weakness to total paralysis on one side of your face. The onset of the problem is fairly abrupt, generally becoming apparent within several hours to a day or two. You may notice symptoms when you awaken. Pain in the vicinity of the ear can precede the palsy by a day or two. Weakness or paralysis usually peaks within 48 hours after onset of signs and symptoms. The faster the signs and symptoms progress, the more serious the weakness or paralysis you'll experience.\nCauses\n\nEach facial nerve controls all muscles on one side of your face, except for muscles involved in chewing. The cause of Bell's palsy is still unclear, and its development isn't well understood. But many scientists believe that a viral infection — perhaps most commonly by the herpes simplex virus, the same virus that causes cold sores — can cause the facial nerve to become swollen and injured. Impairment of electrical impulses directed to your facial muscles by the damaged nerve results in the weakness or paralysis of these muscles.\nWhen to seek medical advice\n\nMost people with Bell's palsy recover completely within a few months, with or without medical treatment. For a few people, Bell's palsy can be severe or involve complications.\n\nNot all instances of facial paralysis or weakness are due to Bell's palsy. See your doctor if you experience facial weakness, drooping or paralysis to determine the underlying cause and severity of the illness.\nScreening and diagnosis\n\nYour doctor may be able to make a preliminary diagnosis of Bell's palsy by looking at your face and asking you to try to move your facial muscles. Other conditions, such as a stroke, infections and tumors, also may cause facial muscle weakness, mimicking Bell's palsy.\n\nIf after a few days there's still doubt about the diagnosis, your doctor may recommend other tests:\n\n    * Electromyography (EMG). This test can confirm the presence of nerve damage and determine its severity. An EMG can measure the electrical activity of a muscle in response to stimulation and the nature and speed of the conduction of el
3568
My Mom has MS and quit smoking.  Stress, temperature, poor eating habits ( one with a lot of fat content) will bring on more spasms for her. She started doing yoga and eating better and taking vitamins, and it all seemed to help.  Stress is the worst thing for her, or standing up for too long. Each person is different, with MS, though.  Smoking can't be good for you, irregardless of having MS.  My mom also says that 'bad things' like numbness and tingling and pain and spasms seem to come and go.  She had numbness in her torso for about a year, and than one day PooF!  it was gone.  Good luck. Be strong. She's had it for about 25 years, now, or so and still doing fine. She walks slower at times and she gets muscle spasms in her legs still.  She has a hard time sleeping on most nights,but overall, she is doing great.  She doesn't take any medication for it.
365009
Demand a second opinion. Positive note I had similar symptoms for years rarely a day off. I had a brain scan, a EEG and other tests turns out I have hemiplegic migraines - very scary. I have an aura with mine - a bad taste often triggered by what I eat or smell. Gloss paint sends me off my legs for up to 2 weeks. I was investigated for having a stroke! Go back an see your Dr if symptoms don't improve and demand further tests! Have allergy/ sensitivity tests done, mine showed my triggers as being corn, melon, larger etc. I changed my diet and took FEVER FEW natural health supps and have made a fantastic recovery, with the occasional relapse. I f your symptoms are new to you and you have had no further investigations than a DR appointment, go back and demand more. Take a friend or relative with you if your reluctant to push the issue. You only have one life - enjoy it. Luv J xx
342614
Hey, first of all you should know that guillain- Barré syndrome has many presentations and different clinical forms, all which have a different prognosis. The fact that your mother had to be put on the respirator in the ICU means she had a severe type of this syndrome. Plasmapheresis is an adequate treatment and she seems to be making progress but still it could be a few more weeks before she doesn't need the respiratory support.You should ask the specific questions you are posting to your mother's doctor as he knows the case, still he might not be able to answer everything you want to know. You have to be patient!! i hope your mom recovers soon!
521781
Some guy Andy got a stroke and got half paralysed. He started to go into the deepest hell of overwhelming emotions and cried himself to sleep every night. However, there are these friends and relatives there who visit him and tell him not to give up. He started physiology and regained his former self.\n\nThis is a rough idea. Write it in ur own words.
164418
Progressive bulbar palsy is a form of MND that primarily involves the lower motor neurons of the cranial nerves, therefore symptoms are isolated to the head and neck. Some patients will also display involvement of the cranial nerves and if this is the sole manifestation it is referred to as Pseudobulbar palsy.  This refers to the difficulties from loss of muscular control and muscular movement in the cranial nerves, which regulate facial, neck and throat muscles.  There is a huge amount of literature on this-Im not sure what level of detail or what specific reason you have for asking- The answers would be different for a physician, a student, or a victim of the disease, depending on the specific motivation.\n\nWow-good answer Vin-
222612
Don't panic..First,let me ask you,how often you experience those leaking of your memory.It's of vital impotrance.It could be related also with your mental stance,the level of stress,etc.If you passed through some very "tough" and harsh occasions they might be the cause of your symptoms.Anyway,dear go ahead and try to find a good neurologist and don't postpone your visit.Be patient and sooner or later everything will come into the proper places!
464296
Here is a foundation for GBS: http://www.gbsfi.com/\nAnd another link with lots of information, treatment options, etc:\nhttp://www.nlm.nih.gov/medlineplus/guillainbarresyndrome.html\n\nI would talk to his nurses/doctors and see if he has hit his limit on physical rehab.
21601
help,\n\nI'm not sure you'll find many articles out there that addresses ADD and/or learning disabilities as an inherited condition.  I've never seen any, so I can't begin to answer what the chances are for a child born to one or both parents who have suffered the same.\n\nI would say that all one can do is to pay close attention to the child's development, and to take quick action if any developmental problems present itself.  I know this isn't much help...best of luck.
217446
You can go to pubmed.com you should be able to find out more information there. I have had a 'TYPE' of seizure disorder since I was five, I am now 28-with a 7 yr old-who has no symptoms of ever having any type of seizure disorder - I even had one while I was pregnant for her, she is perfectly normal and healthy. Good luck on finding what you need to know!!
219790
This is a weird disease and is often misdiagnosed.  In fact it is more the rule than the exception that this is misdiagnosed.My mother came down with it after the flu shots were started. Has your father had the \nflu shot ? The drug companies now have insurance to cover this eventuality. Contact the drug company that made the shot. Maybe they will give you some help with the medical bills. My mother had that over twenty years ago and I didn't know she had had the oral vaccine when it first came out. If I had that knowledge I would have advised her to contact the manufacturer.  As it was my parents did not have Medical insurance. And they used up their life savings paying the hospital bill.  She was hospitalized for a month but that was over 20 yrs. ago when there was no treatment for this disease.  The prognosis is as weird as the disease. It is the only neurology disease that you can fully recover from.  However some people are left with permanent effects that range from a mild limp to paraplegia.That was at the time of the unknown treatment.  My mother was left with a dropped left foot. She had some permanent neuropathy. The treatment should prevent your father from having any permanent residuals.  He is lucky to get it now that it is more recognized. I could go on at length about this disease but this should give you a handle on this polio like disease.
31023
I am female and now 49, and was diagnosed w/MS when I was about 24.  At the time I was diagnosed, there was no 'proof positive' test for MS.  I believe the best test now is the MRI.  \nDepending on your relationship with your PCP, I would try to explain about your concerns and possible sysptoms and that you would like to talk to a Neurologist; who would be the doctor to be treating you if you did in fact have MS.  \nThough, remember there are literally thousands of diseases connected to the nerves, and a lot of the symptoms are the same as MS.   \nAs for your concern about being diagnosed '...until it's nearly too late to do any good about it...'  there are no preventative drugs for MS.\nThere are 4 types of severity of MS, and each person can differ from one to another. Also even if family memebers have MS, it doesn't mean they will all have the save 'type' of MS.\nThe newer medications now on the market have been proven to 'keep' the disease in remission for longer and longer periods of time.  (It's been over 5 years for me now, and I contribute it to the new medication - so there is almost always 'something' the doctors are able to do to help with the symptoms.\nThe only real advice I will offer is not to get 'stressed' out by thinking about it. Talk to a Neurologist and get some information from the Hospital Library.  \nI really haven't heard of anyone actually 'dying' from MS, more from commplications of the disease.\nWhen I was diagnosed, I was told the 1st requirement for MS is: a sense of humor! And trust me that piece of advice has helped me through the years...
342279
MAN I FEEL FOR YOU I HAVE BEEN DEALING WITH R.S,D FOR YEARS NOW . WHICH IS A NERVE DISE. I,M GOING IN DEC.1 TO HAVE ASPINAL CORD STIMULATOR PUT IN TO SEE IF IT WILL CUT DOWN THE SOME SO I CAN GET OFF THE PAIN  MEDS OR CUT DOWN ON HOW MUCH I,M TAKING A DAY.IT SUCKS BUT WHAT CAN YA DO .E MAIL ME AT ICDDPPL1995 @YAHOO.COM.GOOD JUCK
124065
A couple of years ago I went through a period which lasted around 3 months where, every night just after falling asleep, I would feel unable to breathe, I could feel my heart beating faster and faster and I would be trying to scream to wake myself up but I couldn't move or make a sound. I would consciously know that I was asleep and I knew that I needed to wake up but there was nothing I could do. In the worst instances, about 5 times, I was sure I was going to die. Then after what seemed like a long time I would manage to yell and my husband would wake me up, in reality I'm sure it was probably only a couple of minutes. In the end I would try to keep myself awake as long as possible because I was too scared to sleep. I can't exactly recall when or why it stopped happening so regularly, it still happens to me very occasionally, maybe once or twice a year. The best way I can describe it is like having a panic attack in my sleep. I've never technically had it diagnosed at sleep paralysis but after reading up a lot about it on the internet since it started happening I'm pretty sure that this is my problem. I'm not sure if this is what you were after but I hope it helps.
221092
My Aunts have this--they are all in their 50's.  None of them were diagnosed with it until they were in their late 40's & early 50's.  They are all 3 coping diferently with it as it has affected them each differently.  They all still lead very active lives and don't let it slow them down.  It's a matter of mind over matter--they each make sure they get plenty of rest before and after things that they know will wear them out, are careful about their diets, and have sought the most agressive treatments they can get.  They are all happy in their lives and haven't let the disease control their lives.  They treat it like everything else they've had to deal with in thier lives--it's just another challenge!
579870
Many  people experience what  your going through, but not many people talk about it.\n Back in  olden times they  called your experience a "night Hag" That paralyzing feeling caused  by "Her sitting on your body and  holding you down"  \nIt's a  thing of child hood past... not many people talk about that theory anymore, although it is in  some books!\n\nNow, as far as going to a Dr.  It may be a good Idea to talk to him..he might want to do  some tests, but most likely he will tell you it's normal and to not worry about it..it happens to everyone..I've had it happen many times!! It is not a fun experience..usually it will go away right away.. the longest  one i have had is like  a few minutes actually!!! THAT WAS AWFUL!!! \n\nwhen it happens to me it's helpful to relax and stay calm.. i  usually imagine my self "fighting it off" and that  usually works.   try moving your upper body  before anything else that has always seemed to help me out too.  if anything talk to your Dr. if you feel necessary..then try looking it up and doing a little research  who knows what  you might find!!