My younger sister has it, She was diagnosed at 1 yrs. She has a shunt, but also has some seizures. Because her seizures need to be stopped with valium my parents watch her constantly. I was recently home visiting and she had a seizure in her sleep. Anyone ever had night seizures? If so, is there a device to detect the seizure? She also has some learning and motor skill disabilities. I guess I'm wondering how adults with hydro. live, are you on your own? is your case mild or severe?
216036
some known one of me has it\nhe once had the seizure in his sleep\nhe is not an adult but a teen\nhis parents dont let him go far off places alone\nbut they dont keep a 24 hour watch on him\notherwise he is normal
215675
As  a matter of fact, a woman I recently dated insists that Aspartame was the root of her seizures. Apparently it is in tons and tons of products. She switched to a completely organic diet, and the seizures stopped after time. She is in the process now of getting extensive testing done to find out if the Aspartame was really the underlying CAUSE.\n\nShe did have a history of epilepsy in the family and did have a touch of it herself when she was a teenager and she had soem sort of brain operation which totally stopped them.\n\nIt was only many years later when all of these aspartame products started soming onto the market that she started having seizures again.
420712
I went through 39 years of medication and my seizures just getting worse. I started out with petit mal got complex partial, grand mal, and tried every seizure med possible. I finally went in for the brain surjery 6 years and never had another seizure. If you have the chance I would go for the surjery instead of trying all the medication I went through and losing my entire life.These doctors are very good and you need to give them a chance so you son can have his life back.
85876
Hello again there!  Sorry to hear about how you feel.  I also have CFS or abstein bar.  I'm a bit of a pro at it, the difference with me is that I am a new person after my treatment. CFS starts out as Mononucleosis (MONO) the virus which if untreated turns to CFS, so that's why my doctor treats it with Valtrex.  Depression and anxiety come with CFS which also causes joint and muscle soreness, that's where the antidepressants come in.  As far as the fybromyalgia the only thing I know for it is pain management and that is something I don't dare explain because I have no personal experience but from my mother having it I know it's not easy to treat. Listen, if your doctor disagrees with the treatment that I just described to you as far as the CFS then you need to find someone who is more open to your health solutions. I love my doctor, he's so wonderful that my trust in him is unmentionable. I know it's scary to try someone new, but you need to feel better.  Wouldn't you like to feel normal again?  Be able to get up when you wake up and go.  Not fall asleep at the wheel.  You get my point.  I'm a new person and I have a new baby.  Believe me it feels good to be awake and the weight of the world is now a lot more manageable.  By the way drinking makes it worse, a lot worse!  So if you do, you need to take a break until you're all better.  Believe me it didn't help me any, I thank GOD for today. Chat with you later   I hope this info helps u a little bit. By the way if you're having trouble with a day at a time, try an hour at a  time.  Sounds like you're under a lot of stress and that makes the CFS worse all of the time.  Help is on the way,  you'll be alright. My doctor always reassured me that I'd be o.k., he is very involved with his patients and that's why everyone loves and trusts him so much
237735
Well , if that was a case that i have , i would try invstigating for other causes for seizures to exclude any other pathology , and it might be idiopathic without a known cause , but answering to yr question developing a seizure 44 years later after a trauma , i would say i havent heard of something like this , i dont think that there is anyone would give u a definite answer , but personally i would say it is not releated ! if i have more info abt it i will let u know !\nCheeerZ!
593400
I used to be the staff attorney for the Indiana State Bureau of Motor Vehicles.  I have epilepsy too, and they used it as an excuse to fire me.  They said I lied when I said I was not "subject to seizures," even though my Dr. had told me I wasn't as long as I stayed on my medicine, and they knew from day 1 that I had it.  They suspended my license too, and I had to fight all the way to the Indiana Supreme Court to get it back.  Check with the Epilepsy Foundation to see what the requirements are in your state for getting back your license.  Most states require you to be seizure-free for one year.
336256
My friend has acute pancreatitis and it is terrible to see her go through with it when she has a seizure. I have been in the hospital with her many times and have seen grown men cry. Cut out the drinking if you can. It is not worth it. p.s. My friend is not a regular drinker and therefore her seizures are not very often, however by what i have seen i would advise you to try at least to cut down and if possible to stop drinking altogether.I think you know the risks as in DEATH!!!! \nBest of luck.\nMichelle xxxxxx.
294756
I had a real similar event last summer, on the Fourth of July.\nbut it was due to a brain tumor,  the rest sounds real familiar matter of fact, deja vu.\nI'm a 42-year-old male two daughters.\nand a girlfriend, that I'm amazed she stayed with me :)\nI also lost a lot of memory.  Most of it as a comeback.  I still have seizures everyday.  \nI can empathize with you about the anger thing.  I still have family members that are not speaking to me :)\nthe doctor told me that it's real normal, for the anger and it seems to me.  It's a different kind of anger than just plain angry.\nand I was lucky to have a loving girlfriend that has stayed with me,\n\nstory is way too long to put into this context.\nI understand everything you've gone through.\nand if you need someone to talk to.\nit would be good for me to talk also.\nAllanMayta@yahoo.com\n\nAllan Mayta
493309
There is no test at this time to pin point where a seizure is exactly coming from.\nIt would be very nice if they new, but they do not. They make a educated guess though....\nDo you have epilepsy? \nI have years of experience as well as having many family members also having this. My youngest is on medication for it. \nI personally think one can control there seizures, however the quality of life would not be like everyone else.\nStress on the body causes a seizure, including medications, exercise. \nFrom past research I have done I read where the medications for seizures were "tripped" over by doctors doing tests in insane asylums. Where patiants were nothing but the doctors personal guinea pigs. I still feel we are doctors guinea pigs! I personally fired one neurologist (for yelling at me and my child. He gave my child the wrong medication then destroyed the paperwork and told the disability people he never saw us. I have prof of all this but could not find a attorney who wanted to go against this doctor) and his partner I could not work with for the one I fired was in the same office. I did file a grievance against this doctor...\nA good neurologist in my opinion is hard to come by. I am in a small community in Oregon though. Washington has GREAT doctors and programs! \nBecause of having seizure disorder we can not take many medications other can. We NEVER no when a seizure is going to happen. The last one I had was about a month ago and was a big surprise to me! AND scary! I feel it was due to pain medication I was given by a doctor who ignored what I told him. \nEpilepsy Foundation has done nothing for us but ask US for money. Money we do not have. Epilepsy is a very expensive thing to treat. EEG's are very old fashioned, someone some day will come up with another way to read electronic impulses, if of course they had not come up with something already which we do not have in our area. Driving 6 hours to a bigger facility is very stressful! \nAnyhoo these are SOME of my thoughts on this subject.....
198416
it is importain to be sleep deprived for the test. everything else should be done as you normally would do. the things they do during the test could possibly cause you to have a seizure...for example you'll have to do a breathing excersise which is basically hyperventilation and you'll do that for approximately 3-5 mins. theyll ask you to take a nap and seizures and interictal activity may show up then as well also they will put a strobe light in front of your eyes and blink it at different frequencies.\n\nthis test is noninvasive and the only thing that may affect your test would be some drugs like barbituates and other street drugs...caffeine will increase your beta waves but nothing significant and prescriptions like prozac will make fast eye movements show up on the test but all of that can be differentiated from epileptic activity\n\nthe epileptic activity they would be looking for may or may not show up. that would depend on what area of the brain the originate from. if you have experienced seizures in the past it is very importain to describe in detail how it began...like an aura (strange smells, seeing lights, strange feelings like intense deja vu or being unable to talk; even embarrasing auras like sexual feelings right before a seizure) this information will help with determining the area of the brain that the seizure comes from.\n\nthe only bad part of the test is that there will be a little bit of paste left in your hair the good thing is though it washes right out\n\ni hope this helps
318171
Yes sounds like it. My daughter has it and is now on medication. The Medication these days are fantastic. From the sounds of it you will be able to get it under control and when you are old enough you will be able to drive if it is controlled. One useful tip I thought was great, when you have a bath(which it is not uncommon to have a fit with the heat) tie a small string around you big toe and the plug, and if you do have a fit you will kick the plug out. Good luck for the Future   By the way please don't let the first answerer scare you. It is very rare for this to be dangerous.If you take the right precautions talk to the epilepsy foundation they will be able to help you too.
300392
hi\n\nI also have a seizure disorder due to a brain tumor.\nhot weather, or just getting overheated greatly increases.  My seizures.  I've talk too other people with seizure disorders, i.e. brain tumor/epilepsy and it seems pretty consistent he is a problem.\nheat can cause the brain to swell just a bit.  In some of us, just don't have enough extra room to accommodate the extra swelling.\n\nto stay cool :)
265760
I've had epilepsy since age 7, when I had a brain abcess.  I never know when I'm actually having a seizure, but I feel strange afterwards.  You may have had them at night, when you weren't aware of them, or others may just not have been around, and you didn't have a grand mal seizure, so you didn't lose complete control.  I often have seizures, and the only way I know I've had one is I feel a little strange, and maybe a little out of it, and my husband confirms that I just had one, or tells me about it even if I didn't realize it.\n\nOne way I notice I may have had one is if, for example, I'm sitting at the computer, and I sort of "come to myself," realizing that I don't remember what I was just doing, and I have real trouble concentrating for a few minutes afterwards.
358709
Yes I have...It is a something that runs in my family...I believe it is called Menier's (not sure of the spelling)Disease...It is caused when the water level in the middle ear is disrupted...My father takes anti-vert, although from what he has told me a person can build up immunity to its effects...He does get it very bad at times and he is aware of its onset, so he takes 1/2 of a Valium which reduces the anxiety of knowing that he may be laid up in bed for a week, but it does seem to help him with the symptoms...or...get this...he puts the hair drier to his ear...the gentle air flow seems to help level out the water imbalance...he is 76 years old so he has become quite proficient in his own health care...He was also told about a surgical procedure...but that could possibly leave you deaf...I like the hair drier idea myself...contact your doctor and ask your family members if they have had it...I know my paternal grandmother had it, my father has it, and I get it too...My best preventive is just move more slowly, avoid wild amusement park rides, and when I'm on a boat or a passenger in a  fast moving car, I NEVER look down...only forward...I hope this has helped...
138911
I am not to sure that you can ever actually get rid of it totally. There is however medication and some go off of their medication and make it a long while before having another seizure. Try the Epilepsy Foundation and there Heroes Among Us section on stories of people dealing with epilepsy...mine is there too.
226264
Mogens Dam is not a specialist in pediatric epilepsy, but he is the most experienced neurologist and professor in epilepsy in Denmark. He's been my neurologist in two periods, is currently and has been for the last 6 y.\n\nI find him very pleasant and nice to talk to. You can reach him and the link below.\n\nAlso you'll find a link to The Danish Epilepsy Association's pages in English
170756
you are 17, you have a medical problem, and you sound depressed. I have had epilepsy for 30 yrs since I was 6 and I remember being depressed as a teen about it. I guess the most I can tell you is to try your best to keep up on your sugar levels and and the testing because it is important. Good luck and I hope everything works out.