I'm 29 and have had ulcerative colitis for 4 yrs. now and would like to find a support group.  We don't have any in my area to attend.  So online is the next best thing I guess.
204551
Support Groups: \nSocial support can often help with the stress of dealing with illness, and support group members may also have useful tips for finding the best treatment and coping with the condition.\n\nThe Crohn's and Colitis Foundation of America (CCFA) may be accessed at www.ccfa.org.\n\n\nHere are some other links to try\n\nhttp://ibscrohns.about.com/od/onlinesupport/
575922
i believe there are support groups
348143
check out achalasia@yahoogroups.com
342607
I dropped them years ago when it took them 3 months to diagnose my daughter with Crohn's Disease.  She suffered horribly and lost 25 pounds.  They told me she had some kind of "virus," and even possibly cancer.  It was the most stressful time for all of us - my other kids were terrified their sister was going to die.  As soon as open enrollment came at my job I dropped Kaiser and enrolled in a PPO, which is more expensive but has totally been worth it for the kind of care she received.  With a PPO you don't need a referral to a specialist, so when my knee was killing me I just made an appointment with an orthopedist who did an MRI that week and surgery within the next three weeks.
90954
Is there like, a regional office listed in phone book?  or look in "support group listings" in newspaper; or call churches-- lots of times groups meet there.  If all else fails, call national office?\n\nkeep coming back, it works if you work it!
611366
Hi,\n\nSorry to hear about the MM;  it broke up my marriage so hopefully the same will not happen to you.\n\nI am a little shocked he is so far along at 39;  "usuallly" we "young people with MM "  have lower progression.\n\nWhat is his outlook - SCT ?  Thal/Dex or Velcade?  Treatment should lower cell loading and he should get stronger.\n\n"both" of you could use some counsuling - to help get over the hard parts.  the mental game is REALLY hard;  so depression is there someplace;  to go from "alive and healthy" to "terminal cancer" is a really tough one to swollow.  Many people have told me "they understand" but truthfully, unless the doc give YOU that kind of news,  you really don't.  All you can do is work together to make it better till he gets better;  hopefully he will.\n\nYou really need to sit down and discuss what is going on;  that you, as "primary support person" have a lot on the plate and that, while you understand,  you need him to help as much as possible.  HE needs to be patient and work with oyou;  make him part of the support,  not just the person needing support.\n\nPart of the weekness is (probably) low HGB and the meds - see what you can do to keep him strong.  Docs should be albe to help and see if you can get some friends / relatives to give you a break;  even for a couple of hours a week.  You can't be superwomen forever;  ask for some help.\n\nAls, let him know, he NEEDS to keep up the strength as much as possible, for as long as possible.\n\nThere is a lot of help on the MM sites, even stuff for the caregivers.\n\nhttp://www.multiplemyeloma.org/\nhttp://www.myeloma.org/main.jsp\n\ngood luck,\n\nJewells\n28 months and still here
334821
here is a link to alot of different support groups,and chat groups,involving sex abuse,both adult survivers,and children..hope it helps
133961
Looks like there are a few online chat sites and support groups for transplant recipients\n\nhttp://groups.msn.com/TransplantSupportLungHeartLungHeart\n\nhttp://www.transweb.org/people/recips/resources/support/nocal.html\n\nhttp://www.amdahl.com/ext/batrio/calendar.html\n\nhttp://www.otsfriends.org/\n\nhttp://www.changeofheartsupport.com/
617287
sorry to hear about your situation.....it sounds like you could benefit from a support group or some one on one counseling....I would ask your primary care doctor for some referrals on both.....it would be a good chance to vent your frustrations, fears, depression, emotions etc.....if your situation is such thaat you are homebound or not able to find this help I would try an online support community..here is a link to one http://groups.msn.com/ChronicPainSupportGroupCPSG and another  http://chronicpainsupport.org/ \n\ngood luck...hope you feel better
460555
If I were you I would:\n\n1) Call your regular doctor about finding one.\n2) If you can't do that, try searching for gastroenterologists in your area over Yahoo! or Google.\n3) If that doesn't work, try a phone book.\n\nAt least one of those should work.
557117
Wow!!!  Don't know what else to say.  I lost my 18 yr old in June, 2005.  And my mother 10 days after him in June, 2005.  And I thought I was having it BAD!!!  I guess that old adage that my mother used to say is true.  "There's always someone who has it worse".  I am sooo sorry, that I don't know what to say.  All I can do is to tell you that I am on yahoo messenger, as americanhousewife2005 and my email is americanhousewife2005@yahoo.com...I'm truly there for you to talk to!!!
346960
I'm surprised the don't have my picture as their poster child.  I am so addicted to Yahoo Answers......where's the support group?  I will only agree to accept help if it's an online support group.....
614615
If you are having constant pain, ask your doctor to refer to to a gastrointerologist.  He will run tests to determine what the problem is.  Sometimes, general practice doctors don't have the expertise to diagnose problems in the digestive tract.\n\nIf you are not yet an adult, have your folks insists on a gastro consultation.  I suffered from horrible pain for a year while my regular doctor did NOTHING!  Finally, I changed medical plans, and got with a gastro who diagnosed my problem.\n\nPain is a symptom that something is WRONG!  Keep insisting on getting the help you need.  You might want to check out\nwww.ccfa.org for information to see if any of your symptoms match the most common ibd diseases.
268963
I can't help you specifically in your geographic area, but your doctor would probably know about these things. If not, call the major local hospital directly and ask. You will probably have to talk to several people before you get to the right one, but if there is a group in the area - whether at a hospital, church, or health club - SOMEBODY there will know about it.\n\nJoining a support group can be a good thing. Getting to know other people with a similar health situation can be an excellent way to encourage you and help you learn about your own situation.\n\nBest of success.
655282
Yes, me and my mom joined WW a few years ago. It did work! But it was too far for us to drive to meetings and got kind of costly. It took a little while to get going on the weight loss, but I did lose 10lbs during the time I was there. The people are very supportive, so I would recommend it to others. The only thing I got bored with, was always counting my food. But they have since changed the ways they do it. I would definitely join with someone, though. That way you don't slack as much. I'd say preferibly with someone in your home, so that you can both watch what you buy and eat together. I truthfully didn't know if the meetings encouraged me more or not to lose weight quicker. I'm the hardheaded type, so if I don't want to stay with something that I don't like, I won't.
54580
Diagnosing online is never smart to do, However, if stools are hard, then you may want to consider a lot more fiber in your diet.\n\nDring atleast a large glass ot metemucil every day for a week or two and that poroblem will go away
93910
Look in your local newspaper - sometimes they post meetings in a "Community" section or in the Classifieds.  You may want to call some local churches or libraries to see if they know of any groups.\n\nIf there aren't any, perhaps YOU can start one.  Sometimes having clinical expertise isn't what is needed - sometimes you just need to know people who are going through the same thing!\n\nGood luck to you!