It's A dibiltating disease which i am finding hard to get any info on.would be gratefull for any help.
202545
Here are some websites-\nhttp://cfids-cab.org/MESA/\nhttp://www.meresearch.org.uk/\nhttp://www.mefmaction.net/
597922
I couldn't find anything on a Burke's or Bourque's disease...but I did come across this..\n\nit's an alphabetical listing of all the diseases...you might be able to find what you're looking for here:\n\nhttp://www.mic.ki.se/Diseases/Alphalist.html
39036
i dont know but try doing a search in webmd for it
636554
Try this website it seems to have a lot of info;\nwww.emedicine.com/derm/topics677.htm
206124
http://www.webmd.com/content/article/7/1680_53609.htm
37147
there is no cure BUT...you can absolutely keep it controlled by therapy and medications.  I have a friend who has been diagnosed with this terrible disease and because of the meds, you would NEVER know...just like you and me!  The site i posted in the source gives you some great resources...
561276
Last year my son developed a very rare disease, that typically affects toddler age Asian boys ( my white son was 8) it was very uncommon, and we kept going and going to the DR, as more symptoms finally kept coming up,one DR finally thought he recognized it, but my son was forming it atypically, we kept going back, FINALLY diagnosed it!   3 weeks of being horribly ill 104 fever constant for 3 weeks! and 4 days in the hospital, and 6 months of follow up with a cardiologist. My point is KEEP taking her, they will find something, it could be a very rare thing! They brought ALL the personnel in the room to look at my son because NONE had ever seem this disease!!!
263370
Hi. \nI just did a Google Search for ataxia.\nBTW, if you search for attaxia you will get the wrong answers.  No offense, just trying to help.\nI am sending the link that hopefully you will check out under "sources".  There are alot of different ataxia sites that might give you some encouragement.\nI Care!\n~Linda S~\naka ~longleggedblonde1378~
651804
Have you checked out www.webmd.com? You prolly have since it's on TV and whatnot, but I can try.
573821
Try webmd.com and I think they have the links you will need.
101807
try www.sciencedaily.com and search the disease. this are results of clinical trials. maybe you can find something. in  portugal we take aloe vera from a monastery franciscan and eat fiber.
545183
Cassie: please google hydradenitus suppurativa there are thousands of sites, and a society of for people that have the condition and others that are interested and care. You are better  off asking the question there. The condition is fairly rare. (Merck manual does not discuss it), (even though about 2.5% of the U. S. public may have the condition.). Although it is very rarely fatal, it does kill. My uncle died of it. (in no large part because he smoked and was not too careful about taking care of himself. )Some of the sites have lists of professionals, in various neighborhoods that are knowlegible on the subject and may treat you for minimal charge.\nGood luck.\nDoc. Dan.
528661
Deterioration, lack of progress, degeneration...any of these any help?
442789
I do not have it, but I have a condition that can lead to it.\n\nI hope your mom has been diagnosed early... for her, and for you and the rest of your family.  \n\nLook it up on the net.  Web MD whatever, Google it, Wikipedia.  I dont want to tell you anything, you need to read it for yourself *and this d*ck telling you your mom is going to die... GO TO HELL MAN! what a jerk*\n\nI dont know how old you are.. but regardless.  Read what you can, understand as much as you can absorb... and love your mom and be a good girl :) \n\nGood luck to your family, I wish you the best.
83685
This is a very inforamtive site.  Also, try joining a support group and you will get a lot of information.  I have a daughter that has VCFS and I have actually learned more from the support group than I have from reading about it.
38979
I am so sorry to hear of your father's diagnosis. All I can think of would be to possibly look into clinical trials where most if not all of the costs for treatment are covered. I wish you and your family well.....
103956
Hope this link helps you and the little guy. Seems to have alot of helpful information.\n\nhttp://emedicine.com/derm/topic686.htm