it is a disease i have but have not been able to get many answers about it
212177
surf the internet for lupous!\n\nyou can even check in a medical encyclopedia\n\nI believe lupous profudus is a type of skin ulcer---but surf the web for more info
155283
Sorry don't know any one. But your family doctor could give you medication for it.
42717
I think you should seek a second opinion.  Sometimes pediatricians are quick to dismiss b/c they see so many of the same things all the time.  It could be something more serious (though I have no idea).  A friend of mine is in the process of getting over an extremely rare disease, and he wasn't properly diagnosed until he was taken to one of the best hospitals in the country.  Sometimes it takes some insistence and a clean pair of eyes to get to the root of the problem.  Best of luck with your kids!
496895
If the doctors dont know, then there is a problem!\ntry do a reseaech on it on google!\n\nGood luck
28742
I must say i'M not a doctor but I have had 2 friends with lupus one is in her sixties and the other is in her fifties, so it hasn't been a death sentence for either of them, and they have both had it since they were young, but with the other items you mentioned, I don't know the overall picture,  would suggest going onto WebMD and see what it says,Best of Luck
12290
it is a known cause of canser.dont worry, you have to drink alot.and i mean ALOT
37147
there is no cure BUT...you can absolutely keep it controlled by therapy and medications.  I have a friend who has been diagnosed with this terrible disease and because of the meds, you would NEVER know...just like you and me!  The site i posted in the source gives you some great resources...
339281
I feel that the United States doctors are going crazy w/ this diagnosis. I feel this is something you can help on you own.  I think that this is a super crazy world w/ tons of things going on in our lives at once and because of this, some of us have a hard time focusing.  You need to practice focusing possibly w/ the everyday use of meditation you could over come this so call disorder.
114642
In the healthcare professions this is known as 'student syndrome'.  The student often thinks they may have the disease being studied because 'they have all those symptoms too!"\n\nTalk to your mom.  Tell her exactly what you are saying here.  She will help you sort through it, and if needed, get you to the doctor to 'be sure' you are OK.\n\nBest wishes and good luck!
590165
I have had it for years- It causes great stress sometimes. Nothing can be done for it either.
440084
You might have a low imune system, try going to your doctor because there are a lot of things that can cause that.
269923
why do you want people to contact you if their relatives contracted this disease?  My sister got Legionnaires Disease in 84 or 85 (I think) and she became very ill.  She did live but has had diminished lung function ever since.  It was explained to me as like having a very bad case of pneumonia that does not always respond to treatment and that they could treat her symptoms but not cure the disease so she would basically live or she would die.  At the time she still had 2 minor children and we were all in a panic.  \n\nBut on a funny side note:  she actually got the disease from a dirty air conditioner vent while she worked as a waitress in a VFW club! ha! Legionaries disease from a VFW club! ha!
575342
~I could give you several medical reasons for your symptoms, but since you are on asking YaHoo Answers rather than talking to a doctor, you don't want a medical answer.  Since you don't seem to want to deal with it, live with it.
449110
You may want to ask your doctor what is wrong. He could help you.
477944
I was discharged from the Navy with a condition that they never fully determined.  They ran a few tests and ruled out a lot of things but they could never find anything that included all of my symptoms.  I looked up the symptoms of Sarcoidosis and I have almost all of them.  I am going to go to my specialist ASAP and see if that could be the mystery disease.
97322
That's a tough one, all medical records are completely confidential, so finding a person will be difficult,and most people with it probably won't want to talk about it. You might see if there's a national organization associated with the disease and contact them. They would probably have a spokesperson and ,maybe even ,people available to talk to you about it or, at least, give you information.
56638
It's pretty obvious you won't get reliable answers on this forum. WHY would you ask people who have NO clue about your childs disease? Ask the doctor who is treating her, and don't delay treatment by following stupid answers like drinking green tea.